Global Healthy Living Foundation Capabilities Overview

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Global Healthy Living Foundation Capabilities
Overview

• March 7, 2007

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Presentation Outline

• Funding organizations needs
• Channel patient awareness to drive education
• Diagnosis
• ICAP Improve compliance, adherence and
  persistency among existing users
• Sequence - GHLF positioning
• Drug approval
• Physician education
• Structured supporting stabilizers - GHLF
  expertise
• Healthy Living Forum (Community-based programs)
• Physician advisory board meetings
• ICAP activities
• Minority outreach
• Continuity
• Preserve and enhance ongoing outreach
• Incorporate existing programs
• Increase disease state awareness message depth

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Overview GHLF Disease-state sites
Global Healthy Living Foundation

• 515 N. Midland Ave.Upper Nyack, NY 10960

• Seestrasse 73CH-8702 Zurich, Switzerland

• Brands managed by people with the disease. Not
  all brands are shown.

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Overview Chronic Disease Specialties

• Asthma/COPD
• Arthritis
• Psoriasis
• Diabetes/DPNP
• Sleep Disorders
• Cancer
• HIV
• Childrens diseases
• Heart diseases

• Cholesterol/Hypertension
• Depression/Anxiety
• Obesity
• Irritable Bowel Disease
• Sickle Cell Disease
• Erectile Dysfunction
• Osteoporosis (bone health)
• BPH

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Overview About GHLF

• Mission Statement
• We protect the value of existing health awareness
  messages and extend the foundation to drive
  patients to lead healthier lifestyles by
  incorporating diet, exercise, a positive mental
  outlook, and the proper drug therapy.
• We improve the quality of life for people with
  chronic diseases.
• We focus on patients, caregivers and healthcare
  professionals.
• We aspire to change the long-term identity from
  chronically ill to empowered, healthy patients.
• Niche Capabilities
• Hispanic, Asian, Asian Indian, African American
  and GLBT community outreach programs with
  cultural and language sensitivities.

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Outcomes and Strategies

• Possible Program Outcomes
• Increase awareness
• Increase diagnosis
• Sustain long term commitment to a healthy life
  compliantly and persistently
• Typical Strategies
• Leverage GHLFs reach, reputation and experience
  to increase/generate disease awareness and
  education
• Initiate/continue dialogue with audience, begin
  with registration and profiling
• Educate users with messaging designed to motivate
  compliance
• Promote long-term patient relationships with
  continued presence and support at events

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The Doctor-Patient Formula
Patient Recruitment Physicians Members Advocacy
groups Local/state government Community
centers Religious/civic organizations
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Program Overview What are Healthy Living Forums?

• GHLF organizes and executes local patient events
  called Healthy Living Forums in community
  centers.
• We bring together patients and their caregivers
  in an entertaining environment for symptom
  management including exercise, nutrition,
  motivation.
• Partnerships with local patient/consumer groups.
• Day or half day workshops provide participants
  with information about
• Treatment options allotting time for QA
• Exercise (with emphasis on swimming and water
  aerobic movement)
• Nutrition
• Positive mental outlook
• Relaxation/meditation techniques

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Organizing Healthy Living Forums

• Outreach to patient groups with event details
• Physician speakers
• Exercise physiologists
• Psychologist presentation
• Nutrition seminar
• Central location
• Meal(s) included
• Medically-relevant inexpensive gifts
• Free of charge
• Pre-registration required
• Transportation provided from surrounding areas to
  central location
• Outreach to physicians treating patient groups
• Advisory boards with local treating physicians
  for event content input
• Honorariums for event participation
• Use of key opinion leaders
• Physician contact includes names provided by
  patient groups
• Outreach integrated with representative-physician
  contact
• Partnership with local teaching hospital/medical
  center
• Grand rounds

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Surround-Sound ReachPatient

• Level 1
• Local Patient Groups
• Doctor Recommendation
• Direct Mail
• Word-of-mouth
• Email
• Website Announcements
• Chat Rooms
• Message Boards

• Level 3
• Healthy Living Forums
• Educational Materials Distribution

• Level 4
• Follow-up programs

• Level 2
• Community Centers
• Retirement Centers/Communities
• Doctors Offices
• Local Elected/Appointed Officials
• Municipal Health Departments
• Churches/Synagogues/Mosques
• Support Groups
• Fraternal Organizations
• Health Clubs
• Local Universities/Colleges
• Teaching Hospitals

• Level 5
• National/Local Exercise Association(s)
• Total Immersion Swimming
• Advertising
• Publicity

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Surround-Sound ReachProfessional

• Level 1
• Local physicians advisory board meetings
• Educational materials distribution
• Physician networking

• Level 2
• Dedicated/Customized Physician/Healthcare
  provider web site

• Level 3
• University/college medical and healthcare
  associations
• Board of institutions
• Local professional societies

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Program Overview Swimming

• Sample swim program agenda
• 730800 A.M. Check-In and continental
  breakfast, distribution of medically relevant
  items
• 800830 Welcome addresslocal patient advocate
  moderator
• 830900 Land exercises and pool warm-up
  (certified swim coaches)
• 900915 Change for pool
• 9151015 Water instructionVertical swimming,
  horizontal swimming, range-of-motion
• 10151030 Change, return for presentation
• 10301115 Presentation by MD
• 11151200 Lunch
• 12001230 P.M. The Healing Partnership Between
  You and Your Chronic DiseaseLaurie Ferguson,
  PhD
• 12301245 Reflections and farewell

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Program Overview Healthy Living Forum

• Sample Healthy Living Forum agenda
• 730-800 A.M. Check-in and continental
  breakfast, distribution of medically relevant
  items
• 800830 Welcome addresslocal patient advocate
  moderator
• 830-845 Stretching and warm up by local
  exercise physiologist
• 845-930 Physician presentationDiagnosing,Treat
  ing and Living with (disease)
• 930-945 Range of motion exercise demonstration
• 945-1015 The Healing Partnership Between You
  and Your (disease)Laurie Ferguson, PhD.
• 1015-1030 Reflections and farewell

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Program Overview ICAP (Improving Compliance,
Adherence Persistence)

• Keeping patients motivated after or in between
  events
• Certificate of participation/thank you letter
• Virtual exercise clubs
• Online clubs that encourage exercise and allow
  patients to report their exercise success
• Birthday cards
• GHLF sends out birthday cards to registered
  patients(year long activity)
• Photo competition
• Where in the world are our patients? Patients
  send photos of themselves on vacation with their
  certificate of participation
• Conference calls
• Patients dial a toll-free number and have the
  ability to join a number of conference calls with
  medical professionals

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Program Overview ICAP (Continued)

• Monthly E-newsletter
• The monthly newsletter informs members of up to
  date news regarding their disease, birthday
  wishes, activity reminders, advice column,
  updates on patients progress with virtual
  exercise clubs, etc.
• Micro Grants
• Micro Grants encourage people to continue
  practicing the healthy lifestyle they learned at
  an event.
• Mentoring
• Mentors with the disease are trained to lead and
  grow groups.
• Mentors advance in a master path, and are
  rewarded with conference attendance and
  education.

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Program Overview Physician ICAP

• Keeping healthcare providers informed after or
  in between events
• Continuous healthcare provider communication
• Advise doctors how their recommendations were
  implemented into the patient events (based on
  focus group worksheet).
• Patient Update
• Anytime a patient makes changes on the virtual
  exercise club their healthcare provider is
  automatically notified via email.
• Event Notification
• Notify healthcare providers of upcoming patient
  events via email and invitation
• Program support
• Integrating existing healthcare provider ICAP
• Integrating existing patient ICAP

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Indianapolis Patient Event

• Blended with Healthy Horizons and Lilly grant to
  demonstrate momentum and create a learning
  experience for the long-term longitudinal study.
• Logistics
• Brookside Community Center
• September 1, 2007
• Growing Older and Staying Healthy
• Arthritis, hypertension, diabetes, cardiovascular
  (cholesterol), acid reflux, obesity, asthma
• Physician, psychologist, exercise physiologist,
  nutritionist, moderator, Butler faculty
• Faculty and student experiential learning
• Data collection and analysis to confirm
  longitudinal study direction
• Community outreach
• Promotion, publicity
• Market research
• Additional opportunities?
• Shared costs

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Next Steps

• Parallel development tracks
• September 1 patient event
• Butler/GHLF grant preparation
• September 1 patient event
• GHLF responsibility
• Butler learning experience
• Butler/GHLF grant preparation
• Create core committee
• Determine demographics (audience, disease) and
  mission
• Create timetable and budget
• Identify foundation partners
• Study parameters
• Schedule next meeting

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Appendix
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Appendix I GHLF Board of Advisors

• Rhoda Green, PhD
• Thomas Lehman, MD
• Mark Young, MD
• Bryan OYoung, MD
• Barry Schoenberg, DPM
• Howard Schertzinger, MD
• Joel Silverfield, MD
• Deborah Chase
• John Dickson, MD
• Locally constituted medical boards of advisors

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Appendix I GHLF Board of Directors

• I. Elaine Allen, Professor, Babson College,
  Babson Park, MA
• Ward White, Director, The Marcus Foundation,
  Milwaukee, WI
• Jack Finnegan, President, The MacGregor Group,
  Pine Brook, NJ
• David Wolf, Esq., Cowan DeBeats Abrahams
  Sheppard, New York, NY
• Richard Fetter, Dean, College of Business
  Administration, Butler University, Indianapolis,
  IN
• Seth Ginsberg, Co-founder, GHLF, New York, NY

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Appendix II GHLF Affiliated Professionals

• Dr. Robert Abdoo, New York
• Dr. Emmanuel Akinwuntan, Leuven, Belgium
• Dr. Gülseren Akyüz, Istanbul
• Dra. Jacqueline Dote Araya, Santiago
• Dr. Caroline Barmatz, Tel Aviv
• Dr. Hugo Nuñez Bernadet, Punta Del Este, Uruguay
• Dr. David Cassius, Seattle
• Dr. Lesley Castro (Ph.D), San Diego
• Dr. Gerardo I. Correa, Santiago
• Dr. Veronica Rodriguez de la Cruz, San Juan
• Dr. Jeff Davis, Birmingham
• Dr. Yohann D. Delarue, Paris
• Dr. Peter Disler, Melbourne
• Dr. John Dickson, London
• Dr. Keith Feder, Los Angeles
• Dr. Laurie Ferguson (Ph.D.), New York
• Dr. Andrew Frank (Ph.D.), London
• Dr. Rhoda Frindell Green (Ph.D.), New York
• Dr. John Goldman, Atlanta

• Dr. Stoyan Kemerov, Plovdiv, Bulgaria
• Dr. Jong-Moon Kim, Buk-Do, South Korea
• Dr. Stanley Kornhauser (Ph.D.), New York
• Dr. Thomas Lehman, New York
• Dr. Roger Levi, Rio de Janiero
• Dr. Jef Lieberman, Atlanta
• Dr. Rodriguez Mariu, Madrid
• Dr. Mark Medici, New York
• Dr. John Markenson, New York
• Dr. Zaliha Omar, Kuala Lampur
• Dr. Bryan OYoung, New York
• Dr. Eliott Pellman, New York
• Dr. Ernesto Candau Pérez, Madrid
• Dr. Bouathep Phoumindr, Vientiane, Laos
• Dr. Ted Pincus, Vanderbilt University
• Dra. Joyce Bolaños de Rodríguez, Caracas,
  Venezuela
• Dr. Alvydas Rudokas, Vilnius, Lithuania
• Dra. Marta Saad, São Paulo
• Dr. Howard Scherzinger, Cincinnati

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Appendix III GHLF Board of Institutions

• Royal College of Physicians, London
• Columbia Presbyterian Hospital, New York
• Hospital for Special Surgery, New York
• Weill Medical College of Cornell University, New
  York
• Long Island Jewish Medical Center, New York
• Maryland Rehabilitation Center, Baltimore
• Johns Hopkins School of Medicine, Baltimore
• Metropolitan Atlanta Rheumatology Society,
  Atlanta
• New York College of Podiatric Medicine, New York
• Phelps Memorial Hospital, New York
• University of Utah Medical Center, Salt Lake City
• St. Francis Hospital, Hartford, Conn.
• Mt. Sinai Medical Center, New York

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Appendix IV Bios

• Louis Tharp, Executive Director and Co-Founder
• After running a successful international public
  relations, advertising and marketing company for
  nearly 20 years, and working for some of the
  largest international PR and marketing agencies,
  Louis Tharp became a social entrepreneur in 1999,
  co-founded, and acted as venture capitalist for
  CreakyJoints, an international service
  organization for people with arthritis. Today,
  CreakyJoints is a division of GHLF, which also
  includes other disease-state groups. Mr. Tharp
  was previously a contract writer for the New York
  Times as well as other daily newspapers, and
  published his first hardcover book, The Complete
  Manager's Guide to Promotional Merchandise
  (Dow-Jones Irwin) in 1989. Mr. Tharp is a
  competitive swimmer and is the swim coach for the
  U.S. Military Academy Triathlon team at West
  Point, NY. He serves on the board of visitors for
  the College of Business at Butler University,
  Indianapolis where he graduated with a B.S. in
  Journalism in 1972.
• Seth Ginsberg, Board Member and Co-Founder
• Seth Ginsberg was diagnosed at age 13 with
  Spondyloarthropathy, a degenerative form of
  arthritis. He co-founded CreakyJoints at the age
  of 18, in order to help fellow arthritis
  sufferers understand the benefits of exercise,
  diet, a positive mental outlook, and a productive
  relationship with their doctor. Today,
  CreakyJoints is a division of GHLF, which also
  includes other disease-state groups.. Mr.
  Ginsberg graduated from Babson College, Boston,
  with a B.S. in Social Entrepreneurship in 2003..
  He is a former board member of the Westchester
  Arthritis Foundation and spokesperson for the
  National Arthritis Foundation.

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Appendix IV Bios (continued)

• Richard Tjoa, Client Service Technology Vice
  President
• Richard Tjoa oversees technology implementation
  and growth at GHLF, including multi-language
  patient and physician websites. He graduated from
  the University of California at Berkeley with a
  B.S. in Electrical Engineering and Computer
  Science and was one of two in his graduating
  class to earn the Kennedy Interdisciplinary
  Studies Award where he worked in the field of
  American Government and Institutions.
• Laurie Ferguson, Ph.D., Vice President of
  Research and Education
• Dr. Ferguson received her Ph.D. in Psychology
  from the Derner Institute at Adelphi University,
  New York in 2004. She is a frequent speaker at
  CreakyJoints events and leads GHLF research. She
  was a founding professional of the Exhale
  Foundation, graduated cum laude with high honors
  from Smith College, and received her Masters of
  Divinity from Princeton Seminary.

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Appendix IV Bios (continued)

• Marco Pilloud, Managing Director, Europe 
• Marco Pilloud, based in Zurich, began as
  Managing Director, Europe of CreakyJoints in 2000
  and was named to lead GHLF in Europe in 2004. He
  was formerly Area Manager of the Swiss Business
  Unit of Computer Sciences Corporation, and Key
  Account Manager with UBS Swiss Life. Mr. Pilloud
  received his B.A. in International Affairs in
  1991 from George Washington University in
  Washington, D.C. and his MBA in International
  Business in 1995 from Sacred Heart University,
  Luxembourg. He participated in the World Swimming
  Championships for Luxembourg in 1991, and
  continues to swim and coach in Zurich.
• Stefan Bill, Program Associate
• Stefan Bill graduated from Berufsschule
  Burgdorf, Burgdorf, Switzerland in 2004, and is
  responsible for event organization and
  administration for European programs. He is
  fluent in English, Swiss German and High German.
  A nationally and internationally recognized
  competitive swimmer, Mr. Bill uses his coaching
  and swimming expertise in the CreakyJoints
  A-Games as a lecturer and instructor.