Title: Global Healthy Living Foundation Capabilities Overview
1Global Healthy Living Foundation Capabilities
Overview
2Presentation Outline
- Funding organizations needs
- Channel patient awareness to drive education
- Diagnosis
- ICAP Improve compliance, adherence and
persistency among existing users - Sequence - GHLF positioning
- Drug approval
- Physician education
- Structured supporting stabilizers - GHLF
expertise - Healthy Living Forum (Community-based programs)
- Physician advisory board meetings
- ICAP activities
- Minority outreach
- Continuity
- Preserve and enhance ongoing outreach
- Incorporate existing programs
- Increase disease state awareness message depth
3Overview GHLF Disease-state sites
Global Healthy Living Foundation
- 515 N. Midland Ave.Upper Nyack, NY 10960
- Seestrasse 73CH-8702 Zurich, Switzerland
- Brands managed by people with the disease. Not
all brands are shown.
4Overview Chronic Disease Specialties
- Asthma/COPD
- Arthritis
- Psoriasis
- Diabetes/DPNP
- Sleep Disorders
- Cancer
- HIV
- Childrens diseases
- Heart diseases
- Cholesterol/Hypertension
- Depression/Anxiety
- Obesity
- Irritable Bowel Disease
- Sickle Cell Disease
- Erectile Dysfunction
- Osteoporosis (bone health)
- BPH
5Overview About GHLF
- Mission Statement
- We protect the value of existing health awareness
messages and extend the foundation to drive
patients to lead healthier lifestyles by
incorporating diet, exercise, a positive mental
outlook, and the proper drug therapy. - We improve the quality of life for people with
chronic diseases. - We focus on patients, caregivers and healthcare
professionals. - We aspire to change the long-term identity from
chronically ill to empowered, healthy patients. - Niche Capabilities
- Hispanic, Asian, Asian Indian, African American
and GLBT community outreach programs with
cultural and language sensitivities.
6Outcomes and Strategies
- Possible Program Outcomes
- Increase awareness
- Increase diagnosis
- Sustain long term commitment to a healthy life
compliantly and persistently - Typical Strategies
- Leverage GHLFs reach, reputation and experience
to increase/generate disease awareness and
education - Initiate/continue dialogue with audience, begin
with registration and profiling - Educate users with messaging designed to motivate
compliance - Promote long-term patient relationships with
continued presence and support at events
7The Doctor-Patient Formula
Patient Recruitment Physicians Members Advocacy
groups Local/state government Community
centers Religious/civic organizations
8Program Overview What are Healthy Living Forums?
- GHLF organizes and executes local patient events
called Healthy Living Forums in community
centers. - We bring together patients and their caregivers
in an entertaining environment for symptom
management including exercise, nutrition,
motivation. - Partnerships with local patient/consumer groups.
- Day or half day workshops provide participants
with information about - Treatment options allotting time for QA
- Exercise (with emphasis on swimming and water
aerobic movement) - Nutrition
- Positive mental outlook
- Relaxation/meditation techniques
9Organizing Healthy Living Forums
- Outreach to patient groups with event details
- Physician speakers
- Exercise physiologists
- Psychologist presentation
- Nutrition seminar
- Central location
- Meal(s) included
- Medically-relevant inexpensive gifts
- Free of charge
- Pre-registration required
- Transportation provided from surrounding areas to
central location - Outreach to physicians treating patient groups
- Advisory boards with local treating physicians
for event content input - Honorariums for event participation
- Use of key opinion leaders
- Physician contact includes names provided by
patient groups - Outreach integrated with representative-physician
contact - Partnership with local teaching hospital/medical
center - Grand rounds
10Surround-Sound ReachPatient
- Level 1
- Local Patient Groups
- Doctor Recommendation
- Direct Mail
- Word-of-mouth
- Email
- Website Announcements
- Chat Rooms
- Message Boards
- Level 3
- Healthy Living Forums
- Educational Materials Distribution
- Level 4
- Follow-up programs
- Level 2
- Community Centers
- Retirement Centers/Communities
- Doctors Offices
- Local Elected/Appointed Officials
- Municipal Health Departments
- Churches/Synagogues/Mosques
- Support Groups
- Fraternal Organizations
- Health Clubs
- Local Universities/Colleges
- Teaching Hospitals
- Level 5
- National/Local Exercise Association(s)
- Total Immersion Swimming
- Advertising
- Publicity
11Surround-Sound ReachProfessional
- Level 1
- Local physicians advisory board meetings
- Educational materials distribution
- Physician networking
- Level 2
- Dedicated/Customized Physician/Healthcare
provider web site
- Level 3
- University/college medical and healthcare
associations - Board of institutions
- Local professional societies
12Program Overview Swimming
- Sample swim program agenda
- 730800 A.M. Check-In and continental
breakfast, distribution of medically relevant
items - 800830 Welcome addresslocal patient advocate
moderator - 830900 Land exercises and pool warm-up
(certified swim coaches) - 900915 Change for pool
- 9151015 Water instructionVertical swimming,
horizontal swimming, range-of-motion - 10151030 Change, return for presentation
- 10301115 Presentation by MD
- 11151200 Lunch
- 12001230 P.M. The Healing Partnership Between
You and Your Chronic DiseaseLaurie Ferguson,
PhD - 12301245 Reflections and farewell
13Program Overview Healthy Living Forum
- Sample Healthy Living Forum agenda
- 730-800 A.M. Check-in and continental
breakfast, distribution of medically relevant
items - 800830 Welcome addresslocal patient advocate
moderator - 830-845 Stretching and warm up by local
exercise physiologist - 845-930 Physician presentationDiagnosing,Treat
ing and Living with (disease) - 930-945 Range of motion exercise demonstration
- 945-1015 The Healing Partnership Between You
and Your (disease)Laurie Ferguson, PhD. - 1015-1030 Reflections and farewell
14Program Overview ICAP (Improving Compliance,
Adherence Persistence)
- Keeping patients motivated after or in between
events - Certificate of participation/thank you letter
- Virtual exercise clubs
- Online clubs that encourage exercise and allow
patients to report their exercise success - Birthday cards
- GHLF sends out birthday cards to registered
patients(year long activity) - Photo competition
- Where in the world are our patients? Patients
send photos of themselves on vacation with their
certificate of participation - Conference calls
- Patients dial a toll-free number and have the
ability to join a number of conference calls with
medical professionals
15Program Overview ICAP (Continued)
- Monthly E-newsletter
- The monthly newsletter informs members of up to
date news regarding their disease, birthday
wishes, activity reminders, advice column,
updates on patients progress with virtual
exercise clubs, etc. - Micro Grants
- Micro Grants encourage people to continue
practicing the healthy lifestyle they learned at
an event. - Mentoring
- Mentors with the disease are trained to lead and
grow groups. - Mentors advance in a master path, and are
rewarded with conference attendance and
education.
16Program Overview Physician ICAP
- Keeping healthcare providers informed after or
in between events - Continuous healthcare provider communication
- Advise doctors how their recommendations were
implemented into the patient events (based on
focus group worksheet). - Patient Update
- Anytime a patient makes changes on the virtual
exercise club their healthcare provider is
automatically notified via email. - Event Notification
- Notify healthcare providers of upcoming patient
events via email and invitation - Program support
- Integrating existing healthcare provider ICAP
- Integrating existing patient ICAP
17Indianapolis Patient Event
- Blended with Healthy Horizons and Lilly grant to
demonstrate momentum and create a learning
experience for the long-term longitudinal study. - Logistics
- Brookside Community Center
- September 1, 2007
- Growing Older and Staying Healthy
- Arthritis, hypertension, diabetes, cardiovascular
(cholesterol), acid reflux, obesity, asthma - Physician, psychologist, exercise physiologist,
nutritionist, moderator, Butler faculty - Faculty and student experiential learning
- Data collection and analysis to confirm
longitudinal study direction - Community outreach
- Promotion, publicity
- Market research
- Additional opportunities?
- Shared costs
18Next Steps
- Parallel development tracks
- September 1 patient event
- Butler/GHLF grant preparation
- September 1 patient event
- GHLF responsibility
- Butler learning experience
- Butler/GHLF grant preparation
- Create core committee
- Determine demographics (audience, disease) and
mission - Create timetable and budget
- Identify foundation partners
- Study parameters
- Schedule next meeting
19Appendix
20Appendix I GHLF Board of Advisors
- Rhoda Green, PhD
- Thomas Lehman, MD
- Mark Young, MD
- Bryan OYoung, MD
- Barry Schoenberg, DPM
- Howard Schertzinger, MD
- Joel Silverfield, MD
- Deborah Chase
- John Dickson, MD
- Locally constituted medical boards of advisors
21Appendix I GHLF Board of Directors
- I. Elaine Allen, Professor, Babson College,
Babson Park, MA - Ward White, Director, The Marcus Foundation,
Milwaukee, WI - Jack Finnegan, President, The MacGregor Group,
Pine Brook, NJ - David Wolf, Esq., Cowan DeBeats Abrahams
Sheppard, New York, NY - Richard Fetter, Dean, College of Business
Administration, Butler University, Indianapolis,
IN - Seth Ginsberg, Co-founder, GHLF, New York, NY
22Appendix II GHLF Affiliated Professionals
- Dr. Robert Abdoo, New York
- Dr. Emmanuel Akinwuntan, Leuven, Belgium
- Dr. Gülseren Akyüz, Istanbul
- Dra. Jacqueline Dote Araya, Santiago
- Dr. Caroline Barmatz, Tel Aviv
- Dr. Hugo Nuñez Bernadet, Punta Del Este, Uruguay
- Dr. David Cassius, Seattle
- Dr. Lesley Castro (Ph.D), San Diego
- Dr. Gerardo I. Correa, Santiago
- Dr. Veronica Rodriguez de la Cruz, San Juan
- Dr. Jeff Davis, Birmingham
- Dr. Yohann D. Delarue, Paris
- Dr. Peter Disler, Melbourne
- Dr. John Dickson, London
- Dr. Keith Feder, Los Angeles
- Dr. Laurie Ferguson (Ph.D.), New York
- Dr. Andrew Frank (Ph.D.), London
- Dr. Rhoda Frindell Green (Ph.D.), New York
- Dr. John Goldman, Atlanta
- Dr. Stoyan Kemerov, Plovdiv, Bulgaria
- Dr. Jong-Moon Kim, Buk-Do, South Korea
- Dr. Stanley Kornhauser (Ph.D.), New York
- Dr. Thomas Lehman, New York
- Dr. Roger Levi, Rio de Janiero
- Dr. Jef Lieberman, Atlanta
- Dr. Rodriguez Mariu, Madrid
- Dr. Mark Medici, New York
- Dr. John Markenson, New York
- Dr. Zaliha Omar, Kuala Lampur
- Dr. Bryan OYoung, New York
- Dr. Eliott Pellman, New York
- Dr. Ernesto Candau Pérez, Madrid
- Dr. Bouathep Phoumindr, Vientiane, Laos
- Dr. Ted Pincus, Vanderbilt University
- Dra. Joyce Bolaños de Rodríguez, Caracas,
Venezuela - Dr. Alvydas Rudokas, Vilnius, Lithuania
- Dra. Marta Saad, São Paulo
- Dr. Howard Scherzinger, Cincinnati
23Appendix III GHLF Board of Institutions
- Royal College of Physicians, London
- Columbia Presbyterian Hospital, New York
- Hospital for Special Surgery, New York
- Weill Medical College of Cornell University, New
York - Long Island Jewish Medical Center, New York
- Maryland Rehabilitation Center, Baltimore
- Johns Hopkins School of Medicine, Baltimore
- Metropolitan Atlanta Rheumatology Society,
Atlanta - New York College of Podiatric Medicine, New York
- Phelps Memorial Hospital, New York
- University of Utah Medical Center, Salt Lake City
- St. Francis Hospital, Hartford, Conn.
- Mt. Sinai Medical Center, New York
24Appendix IV Bios
- Louis Tharp, Executive Director and Co-Founder
- After running a successful international public
relations, advertising and marketing company for
nearly 20 years, and working for some of the
largest international PR and marketing agencies,
Louis Tharp became a social entrepreneur in 1999,
co-founded, and acted as venture capitalist for
CreakyJoints, an international service
organization for people with arthritis. Today,
CreakyJoints is a division of GHLF, which also
includes other disease-state groups. Mr. Tharp
was previously a contract writer for the New York
Times as well as other daily newspapers, and
published his first hardcover book, The Complete
Manager's Guide to Promotional Merchandise
(Dow-Jones Irwin) in 1989. Mr. Tharp is a
competitive swimmer and is the swim coach for the
U.S. Military Academy Triathlon team at West
Point, NY. He serves on the board of visitors for
the College of Business at Butler University,
Indianapolis where he graduated with a B.S. in
Journalism in 1972. - Seth Ginsberg, Board Member and Co-Founder
- Seth Ginsberg was diagnosed at age 13 with
Spondyloarthropathy, a degenerative form of
arthritis. He co-founded CreakyJoints at the age
of 18, in order to help fellow arthritis
sufferers understand the benefits of exercise,
diet, a positive mental outlook, and a productive
relationship with their doctor. Today,
CreakyJoints is a division of GHLF, which also
includes other disease-state groups.. Mr.
Ginsberg graduated from Babson College, Boston,
with a B.S. in Social Entrepreneurship in 2003..
He is a former board member of the Westchester
Arthritis Foundation and spokesperson for the
National Arthritis Foundation.
25Appendix IV Bios (continued)
- Richard Tjoa, Client Service Technology Vice
President - Richard Tjoa oversees technology implementation
and growth at GHLF, including multi-language
patient and physician websites. He graduated from
the University of California at Berkeley with a
B.S. in Electrical Engineering and Computer
Science and was one of two in his graduating
class to earn the Kennedy Interdisciplinary
Studies Award where he worked in the field of
American Government and Institutions. - Laurie Ferguson, Ph.D., Vice President of
Research and Education - Dr. Ferguson received her Ph.D. in Psychology
from the Derner Institute at Adelphi University,
New York in 2004. She is a frequent speaker at
CreakyJoints events and leads GHLF research. She
was a founding professional of the Exhale
Foundation, graduated cum laude with high honors
from Smith College, and received her Masters of
Divinity from Princeton Seminary.
26Appendix IV Bios (continued)
- Marco Pilloud, Managing Director, Europe
- Marco Pilloud, based in Zurich, began as
Managing Director, Europe of CreakyJoints in 2000
and was named to lead GHLF in Europe in 2004. He
was formerly Area Manager of the Swiss Business
Unit of Computer Sciences Corporation, and Key
Account Manager with UBS Swiss Life. Mr. Pilloud
received his B.A. in International Affairs in
1991 from George Washington University in
Washington, D.C. and his MBA in International
Business in 1995 from Sacred Heart University,
Luxembourg. He participated in the World Swimming
Championships for Luxembourg in 1991, and
continues to swim and coach in Zurich. - Stefan Bill, Program Associate
- Stefan Bill graduated from Berufsschule
Burgdorf, Burgdorf, Switzerland in 2004, and is
responsible for event organization and
administration for European programs. He is
fluent in English, Swiss German and High German.
A nationally and internationally recognized
competitive swimmer, Mr. Bill uses his coaching
and swimming expertise in the CreakyJoints
A-Games as a lecturer and instructor.