Using NCI Data to Pinpoint Strengths and Shortcomings of Community Services

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Using NCI Data to Pinpoint Strengths and
Shortcomings of Community Services

• NASDDDS Teleconference Series
• May 19, 2005

Sarah Taub Human Services Research
Institute staub_at_hsri.org
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Participating NCI States (as of May 2005)
WA
ME
VT
ND
MA
SD
RI
CT
WY
PA
DE
NE
IN
WV
DC
KY
NC
HI
SC
OK
AR
AZ
Orange County
AL
TX
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Participating NCI States

• Alabama
• Arkansas
• Arizona
• California (4 Reg Centers)
• Connecticut
• Delaware
• Hawaii
• Indiana
• Kentucky
• Maine
• Massachusetts
• Nebraska

• North Carolina
• Oklahoma
• Pennsylvania
• Rhode Island
• South Carolina
• South Dakota
• Texas
• Vermont
• Washington, DC
• Washington State
• West Virginia
• Wyoming

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Primary NCI data sources

• Consumer Survey
• Family Survey
• Adult Family Survey (at home, 18)
• Family Guardian Survey (out-of-home)
• Children Family Survey (at home, lt18)
• Provider Survey
• Staff Stability
• Board Representation
• System Data
• Incidents
• Mortality

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Additional Data Sources

• Case Management tools developed by WA State and
  used by other NCI states
• Case Manager Survey Additional Family Survey
  Questions
• Time Measurement Tool
• Basic Profile Report (in development)
• To be used in conjunction with a modified Univ of
  MN RISP and State of the States data
• Bureau of Census and Labor Statistics data

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Where does NCI fit in?

• One component of state Quality Management systems
  crosswalks to the Quality Framework
• Widely-used process for measuring consumer and
  family satisfaction
• States integrate NCI with other QA data for
  annual reports strategic planning
• Produces system-level data
• Some states also use NCI to measure county- and
  provider-level performance

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Crosswalk of NCI Data Sources to Quality Framework

• I. Participant Access
• Family Surveys
• Case Management Surveys
• II. Participant-Centered Service Planning
• Family Surveys
• Consumer Survey
• Case Management Surveys
• Basic Profile Report

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Crosswalk of NCI Data Sources to Quality Framework

• III. Provider Capacity and Capabilities
• Family Surveys
• Provider Survey
• Consumer Survey
• IV. Participant Safeguards
• System Data
• Family Surveys
• Consumer Survey

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Crosswalk of NCI Data Sources to Quality Framework

• V. Participant Rights and Responsibilities
• Consumer Survey
• VI. Participant Outcomes and Satisfaction
• Family Surveys
• Consumer Survey
• Basic Profile Report
• RISP Survey

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Crosswalk of NCI Data Sources to Quality Framework

• VII. System Performance
• Basic Profile Report
• Census, Economic Analysis, Labor Statistics
  data
• RISP Survey
• State of the States Survey
• Family Surveys
• Provider Survey

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Examples of State Applications

• Alabama
• Choice and decision-making was identified as area
  for improvement state responded with five year
  plan to increase of PCP facilitators and
  offering SRV training to families
• Also using consumer and family surveys to measure
  satisfaction pre- and post- community placement
  from closing of state facility

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Examples of State Applications

• South Carolina
• NCI tools used to supplement compliance reviews
  (performed by contracted agency)
• Align measures with CMS Quality Framework
• Plan to provide individual reports to providers

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Examples of State Applications

• Rhode Island
• Data used in risk management, incident
  prevention, safety planning processes
• Quality Consortium reviews data, identifies
  priority areas for improvement
• Results used to revise licensing requirements for
  staff training, curriculum and professional
  development

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Examples of State Applications

• Arizona
• Steps taken to improve womens health care
  outcomes resulted in rate of annual visits
  increasing from 30 to 70
• Asking the questions increases awareness about
  options (e.g., families can change support
  coordinators)

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Examples of State Applications

• Washington State
• Consumer Survey used as core of Waiver Review
  Process
• DD Council sponsors advisory group to review
  results and make recommendations for improvement

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NCI Priorities Current Activities

• Update website (in progress - will include
  state-specific products and reports)
• Add measures to crosswalk with Quality Framework
• Data Brief on Family Survey results (in progress)
• Update orientation for new states
• Finalize system protocols on utilization, access,
  and expenditure indicators
• Develop newsletter