Quality care for people with Down syndrome and Dementia

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Quality care for people with Down syndrome and
Dementia
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• Demographics
• Alzheimers disease in Down syndrome

• Age Specific rates N201
• 40-49 Years 9.4
• 50-59 Years-36.1
• 60-69 Years-54.4
• Ref Prasher VP. Age specific Prevalence, Thyroid
  Dysfunction and Depression Symptomatology in
  adults with Down syndrome and dementia

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Victorian Down syndrome and dementia workshop.

• The nature of dementia.
• The relationship between Down syndrome and
  Alzheimers disease
• Communication strategies
• Responding to changed behaviour

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Issues

• Diagnosis
• Lifestyle
• Models of care
• Changing roles for disability workers

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Diagnosis

• The role of the General Practitioner and
  Disability worker
• Centre for Developmental and Disability Services
• CDAMS

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Signs of dementia in a person with an I.D.

• Loss of speech
• Disorientation
• Loss of daily living skills
• Changes in personality
• Long periods of inactivity or apathy
• The development of seizures

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Lifestyle

• Unknown number of people living at home with
  ageing parents
• Community residential units
• Congregate care
• Day programs
• Supported employment

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Models of care Person centred planning

• Design and deliver support services based on what
  is important to the person.

• Three steps
• Planning
• Supports
• Feedback

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Outcomes of Person Centred Planning

• Outcomes determined by the person being planned
  for are likely to result in a plan which
  increases

• Choice
• Competence
• Respect
• Community participation

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Models of Care Person centred planning vs person
centred care

• developmental vs support
• increases choice vs limits choice to avoid
  confusion
• maximises potential vs maintains existing
  abilities whenever possible

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Changes in program practices for disability
workers

• provide closer supervision
• maintain present levels of independence by
  increasing staff supervision, prompts and
  hands-on care
• modify the individuals support plan to
  anticipate changing ADL needs
• monitor and document increased episodes of
  confusion, disorientation or memory lapses

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The Way Forward

• Strengthen AAVs links with the disability
  service sector
• Continued dialogue between AAV and disability
  stakeholders to promote understanding and
  relevance
• Provide ongoing support and education for
  disability support workers

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