Illinois Department of Human Services DIVISION OF DEVELOPMENTAL DISABILITIES Lilia Teninty, Division

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Illinois Department of Human ServicesDIVISION OF
DEVELOPMENTAL DISABILITIESLilia Teninty,
Division Director

• We Are Here to Help!

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Purpose Today

• Overview the Illinois Developmental Disabilities
  system, services eligibility requirements
• Explain how individuals with Developmental
  Disabilities can access services supports
• Explain the Prioritization of Urgency of Needed
  Services (PUNS) process its importance to
  individuals with Developmental Disabilities
• Answer your questions

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What is a Developmental Disability?

• A person with mental retardation or a related
  condition. A related condition is one

• attributable to cerebral palsy or epilepsy, or
  any condition, other than mental illness, found
  to be closely related to mental retardation see
  next slide
• manifesting before age 22 continuing
  indefinitely
• resulting in substantial limitation of function
  in 3 or more major life activities self-care
  understanding learning mobility
  self-direction and capacity for independent
  living

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Examples of Related Conditions

• Pervasive Developmental Disorders such as
  Autistic Disorder, Retts Disorder, Childhood
  Disintegrative Disorder, Aspergers Disorder
• Impairment of general intellectual functioning or
  adaptive behavior requiring treatment
• Manifested before age 22
• Likely to continue indefinitely
• Substantial functional limitations in 3 or more
  areas self-care, language, learning, mobility,
  self-direction, capacity for independent living

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Our Mission Provide leadership management in
the design and delivery of person-centered
supports and services to individuals with
Developmental Disabilities Our Vision
Individuals with Developmental Disabilities
should be able to enjoy meaningful relationships
with family, friends others experience
personal growth development and participate in
activities of their choice in communities of
their choice

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What Guides Us?

• Strategic Plan (on DHS website)
• Statewide Advisory Council
• Legislation
• Federal Regulations

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Illinois DD Service SystemServes over 50,000
individuals

• Over 340 community service providers
• More than 300 private Intermediate Care
  Facilities/Developmental Disabilities (ICF/DDs)
• 9 state operated developmental centers
• More than 30,000 individuals receive services or
  supports while living at home or with family or
  relatives or by themselves in the community

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Overview of Services

• Pre-Admission Screening (PAS)
• Individual Service and Support Advocacy (ISSA)
• Independent Service Coordination (ISC)
• Residential Living Services
• Day and Vocational Services
• Individual and Family Support Services

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Pre-Admission Screening (PAS)

• PAS services provided through 18 Independent
  Service Coordination (ISC) agencies Front Door
  to Illinois Developmental Disabilities services
• Prevents inappropriate admissions to nursing
  facilities and enrollments in Waiver programs
• Eligibility Individuals reasonably believed to
  have a Developmental Disabilities requesting
  Medicaid funded Developmental Disabilities
  services or nursing facility services

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Pre-Admission Screening Agencies

• Conduct and secure assessments
• Educate individuals, guardians, families on
  services
• Provide notices of determination to individuals
• Assist individuals with the choice process
• Provide referrals
• Assist with service selection and linkage
• Assist with requests for submission to DHS
• Monitor for 4 weeks after initiation of
  services
• 24 hour/day-365 days/year accessibility

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Individual Service Support Advocacy

• Provides collaborative assistance to
  individuals and providers to enhance service
  delivery
• Eligibility Persons enrolled in one of the
  Home-Based Community Services Waivers (HCBS)

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ISSA Services

• 4 visits/year with each individual
• 1 visit to ensure Individual Service Plan
  participation
• 1 visit to the individuals residence or day
  program
• Collaborative conflict resolution with
  providers
• Refer unresolved matters to DD Network
  Facilitators
• Annual redeterminations of waiver eligibility
• 24 hour/day-365 days/year accessibility
• Review and verify CILA program rate information

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Independent Service Coordination (ISC)

• Provides education, referral linkage for
  children and adults with Developmental
  Disabilities
• Eligibility Children seeking DD services,
  except admission to Skilled Nursing
  Facility/Pediatric Services and Adults seeking DD
  services whose service needs are not yet
  determined, or are not eligible for PAS or waiver
  services

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ISC (cont)
Due to limited funding, services are made
available in priority order beginning with most
critical need

• Individuals completing a PUNS Form
• Individuals subject to Discharge/Linkage/Afterca
  re (to comply with 59 IL Adm. Code 125)
• Individuals DHS requests due to special
  situations
• Adolescents aging out of public school system
• Individuals unable to access services who have
  few family/natural supports

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ISC (cont)
General ISC functions include

• Intake
• Goal setting specialized services referrals
• Transportation to facilitate referrals
  linkage
• Crisis intervention
• Completion of PUNS forms
• Coordinate mandated discharges.linkage,
  aftercare
• Planning for individuals aging out of public
  schools

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RESIDENTIAL LIVING ARRANGEMENTS

• Provides security care for individuals
• Community Living Options
• Intermediate Care Facilities
• State-Operated Developmental Centers

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Community Residential Services

• Intermediate Care Facilities (ICF/DDs)
• Specialized Living Centers
• Skilled Nursing Facility-Pediatrics (SNF-Peds)
• Supported Living Arrangements (SLAs)
• Foster Homes
• Special Home Placements (SHPs)
• Home Individual Programs (HIPs)
• Community Living Facilities (CLFs)
• Childrens Group Homes
• Child Care Institutions (CCIs)
• Community-Integrated Living Arrangements (CILAs)

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Community Integrated Living Arrangement (CILA)

• Flexible living arrangement for adults with
  Developmental Disabilities focusing on service
  needs of individuals in their home or community
  setting of 8 or fewer individuals living together
  under the supervision of licensed agency
• Eligibility Must be determined to have a
  Developmental Disabilities

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Individual Family Support Services

• Enables people with developmental disabilities to
  continue to reside in their own or family homes
  while receiving services such as
• Respite
• Client and Family Support
• Family Assistance Program
• Home Based Support Services
• Other in-home support services

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Day Vocational Services

• Developmental Training
• Regular work/sheltered employment
• Supported employment
• Adult day care
• At home day services
• Other day programs and vocational evaluation and
  development

These services enhance skills in major life
areas, work-related activities employment skills
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Respite Care

• Provides temporary relief
• to caregivers
• Care provided in home
• Care provided through short-term placement in
  residential setting

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Home-based Supports

• Services to help adults with Developmental
  Disabilities live at home
• Transportation
• Respite care
• Day training
• Therapies
• Personal care

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Training Programs Job Coaches

• Programs to teach life and skills for the work
  place
• Supported Employment
• Developmental Training
• Job Coaches
• DD Workshops

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Adaptive EquipmentAssistive Technology

• Specialized equipment to help people live or
  work more independently

• Lift chairs
• Software
• Computer equipment
• Voice activated sensors
• Reacher/Grabbers

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In Home Supports

• Services to help people live more independently
• Transportation
• Training
• Counseling
• Help w/medications
• Crisis Intervention
• Housing Support
• Genetic Counseling

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Intermediate Care Facility- Individuals with
Developmental Disabilities (ICF/DD)
Residential facility of 3 or more persons, or a
distinct part thereof, serving residents of which
more than 50 percent have mental retardation or a
related condition

• Licensed by the Department of Public Health
• Certified by Centers for Medicare and Medicaid
  Services
• Serve individuals receiving active treatment in
  accordance
• with Code of Federal Regulations 483.440
• Provide training, treatment, and health
  services
• Promote individuals self-determination and
  independence.

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State-Operated Developmental Centers (SODCs)
SODCs are specialized Intermediate Care
Facilities/ Developmental Disabilities (ICFs/DD)
for persons with intense behavioral and/or
medical difficulties

• Individuals are only admitted after careful
  screening by PAS and a review team that includes
  Division of Developmental Disabilities staff and
  family/guardian
• Services are provided with the goal of quickly
  restoring the individual to a community-living
  situation
• The Division of Developmental Disabilities
  continues its SODC census reduction efforts by
  assisting people choose where and with whom they
  live and by developing additional community
  resources

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Where are theState-Operated Developmental
Centers?

• Kiley Waukegan
• Mabley Dixon
• Howe Tinley Park
• Ludeman Park Forest
• Shapiro Kankakee
• Fox Dwight
• Jacksonville Jacksonville
• Murray Centralia
• Choate (MH and DD) Anna

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Now that you understand more about the Illinois
Developmental Disabilities System
Services How do individuals families access
the system services?
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ISC/PAS AgenciesFront Doors to Illinois DD
Services
PACT
Options Advocacy McHenry County
Community Alternatives

• Day One Network

Community Service Options
Access Services of Northern Illinois
Suburban Access
Community Serv ice Options Rock Island/Mercer
Service, Inc.
Western IL Service Coordination
Livingston Co. Mental Health Board
Central Illinois Service Access
Champaign County Regional Planning
West Central Service Coordination
Prairieland Service Coordination
Great Rivers Service Coordination
DD Services of Metro East
Southern IL Case Coordination Services
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Finding a PAS Agency

• Call 1-888-DDPLANS
• 1-888-337-5267 1-866-447-6404 (TTY)
• Visit www.dd.illinois.gov or www.dhs.state.il.us

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What happens at the PAS Agency?

• Education of available services support options
• Screening to ensure a reasonable belief
  individuals have a developmental disability
• Completing the PUNS Form enrolling in the PUNS
  database

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Why should an individual with Developmental
Disabilities complete a PUNS Form?
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A Little History

• PA 93-0503 requires DHS to create a
  cross-disabilities database (8/03)
• PUNS form database implemented (11/04)
• More than 14,000 persons have been enrolled in
  PUNS since November 2004
• Already using PUNS data for planning
  authorizing services when new funding is
  available

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PUNS Enrollment Process

• Individual (guardian, caregiver, family) meets
  face-to-face with PAS agency (Educate on service
  options, screen for DD)
• Identify need for services urgency of need
  (Emergency, Critical or Planning)
• Complete PUNS form enter in PUNS database
• Update PUNS record whenever the service need
  changes significantlybut at least annually

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Who gets a PUNS Form
Individuals of any age who

• Are reasonably believed to have a developmental
  disability
• Seek new, additional, or different services
  provided through the Illinois DD system
• Have a care giver age 60 or older
• Have a need for services/supports or caregiver
  who turning age 60 or older within next 5 yrs

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Who DOES NOT Need a PUNS Form
Individuals of any age who are

• NOT believed to have a developmental disability
• NOT projecting a need for services in next 5 yrs
• receiving services, but want a different provider
  with no change in the type of services received
• staying in the same program whose Individual
  Service Plan is adjusting to meet their changing
  needs for a particular service. No change in
  funding source

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Why PUNS Enrollment is Important?

• Becomes an individuals (and familys) record of
  his/her 5-year outlook for DD services/supports
• Enhances capability to advocate for and obtain
  new or expanded DD funding for services
• Allows us to identify people needing specific
  services and authorize services quickly as new or
  additional funding becomes available

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If you take only 1 messagefrom the PUNS part of
the session

• If someone has a developmental disability
  
• AND
• currently needs DD services or anticipates
  needing services within the next 5 years
• Getem to Enroll!

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Our Future Direction

• Continue to work with CMS to increase capacities
  of Adult and Children Waivers
• Continue to offer individuals who wish to move
  from SODCs the opportunity to do so
• Continue to offer more opportunity for
  self-direction of services
• Continue to pursue voluntary reduction in the
  census of private ICF/DD facilities
• Implement crisis intervention services

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Contact Info
Call 1-888-DDPLANS 1-866-447-6404 (TTY)
or 312-
814-8327 Email DHSBBP_at_dhs.state.il.us
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