Should Newborn Hearing Screening be the Standard of Care in the United States

1
Support for Implementation of Early Hearing
Detection and Intervention Programs
Les Schmeltz National Center for Hearing
Assessment and Management Utah State
University www.infanthearing.org
2
Efforts by the Federal Government toPromote
Early Identification of Hearing Loss

• Federal funding for research and program
  development
• NIH Consensus Development Conference in 1993
• Consortium for Universal Newborn Hearing
  Screening funded in 1993
• Marion Downs National Center for Infant Hearing
  Established in 1996
• National EHDI Technical Assistance System
  Established in 2000
• NIH and Dept of Educ Projects at Boys Town and
  University of North Carolina

3
Goal of the National EHDI Technical Assistance
System

• Every child born with a hearing loss will be
  identified before 3 months of age and provided
  with timely and appropriate early intervention
  before 6 months of age
• Every family of an infant with hearing loss will
  receive culturally competent family support as
  desired
• All newborns will have a medical home
• State will have tracking and data management
  systems which are linked to appropriate public
  health information systems

4
National EHDI Technical Assistance System

• EHDI Network members located in each of ten
  geographic regions

5
National EHDI Assistance Network
Region VIII (91 currently born in UNHS
hospitals) Terry Foust
Region II (16 currently born in UNHS
hospitals) Beth Prieve
Region V (26 currently born in UNHS
hospitals) Karen Munoz
I
Puerto Rico Virgin Islands
Region I (38 currently born in UNHS
hospitals) Antonia MaxonB
VIII
II
X
V
Region X (21 currently born in UNHS
hospitals) Curt Whitcomb
III
VII
Region III (49 currently born in UNHS
hospitals) Sean Kastetter
IX
IV
VI
-
Region IX (23 currently born in UNHS
hospitals) Randi Winston Yusnita Weirather
Guam, American Samoa, Marshall Islands,
Palau, No. Mariana Islands, Fed. Micronesia
Region IV (46 currently born in UNHS
hospitals) Faye McCollister
Region VI (38 currently born in UNHS
hospitals) Karen Ditty Patti Martin

Region VII (33 currently born in UNHS
hospitals) Les Schmeltz
indicates the locations of MCHB Regional
Offices
6
Examples of Network Activities

• Training of Trainers Workshop
• Individualized TA with state EHDI programs
• NECTAS Webcast for Part C Programs
• Regional workshops on Diagnostic ABR

7
National EHDI Technical Assistance System
(continued)

• EHDI Network members located in each of the MCHB
  regions
• Information dissemination and training

8
Support for Program Implementation

• Step-by-step Implementation Guide
• Distributed by MCHB to all birthing facilities in
  the US
• Down load from the web at www.infanthearing.org
• Linked to examples of materials from existing
  programs

9
Sound Ideas Newsletter

• Published Quarterly
• Topical articles, suggestions for program
  improvement
• Upcoming events
• Available online or mailed

10
National EHDI Technical Assistance System
(continued)

• EHDI Network members located in each of the MCHB
  regions
• Information dissemination and training
• Web site (www.infanthearing.org)

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12
National EHDI Technical Assistance System
(continued)

• EHDI Network members located in each of the MCHB
  regions
• Information dissemination and training
• Web site (www.infanthearing.org)
• Collaboration with other groups and agencies

13
National EHDI Technical Assistance System
(continued)
Collaboration with Other Groups and Agencies

• Groups actively promoting and assisting with EHDI
  activities
• AG Bell, NCHH, ASHA, AAA, JCIH, AAP, ASDC
• Relevant groups whose main focus is elsewhere
• MCHB Regional Staff, SKI-HI, NECTAS, Early Head
  Start, 0-3, Family Voices, NCCC, KidsNET, AMCHP,
  AHEC