Process and Benefits of Rare Disease Registry - PowerPoint PPT Presentation

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Process and Benefits of Rare Disease Registry


Finding a cure for a rare disease take time and it needs proper strategy and planning. Patients face consequences because of a lack of medication and lack of information regarding that disease. A rare disease registry is a system that allows collecting and sharing patient data with the researchers with the aim of finding the cure. It also helps patients in knowing more information about their disease and its cure. – PowerPoint PPT presentation

Number of Views:19
Date added: 17 February 2021
Slides: 6
Provided by: Rare-x


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