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    Process and Benefits of Rare Disease Registry PowerPoint PPT Presentation

Title: Process and Benefits of Rare Disease Registry - PowerPoint PPT Presentation

Description: Finding a cure for a rare disease take time and it needs proper strategy and planning. Patients face consequences because of a lack of medication and lack of information regarding that disease. A rare disease registry is a system that allows collecting and sharing patient data with the researchers with the aim of finding the cure. It also helps patients in knowing more information about their disease and its cure. – PowerPoint PPT presentation

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