Indiana Mental Health and Addiction Transformation Work Group

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Indiana Mental Health and AddictionTransformation
Work Group

• Consumer / Family Involvement
• Subcommittee Group

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Consumer / Family InvolvementSubcommittee
Members

• Kim Williams (Chair) Families Reaching for
  Rainbows, Inc.
• Rosie Carney (DMHA Lead Staff Member)
• Ruth Summers (ACES)
• Ronda Ames (KEY Consumer Organization)
• Gilberto Perez (Northeastern Center, Ligonier,
  IN)
• Kellie Meyer (NAMI)
• Bob Postlethwait (Rainbows/DMHA/NAMI)
• Susan Pieples (Indiana Autism Society/NAMI)
• Catherine Hardy Hansen
• Linda Driggs (STARR Parents/Member of Frankfort,
  IN Wraparound Board)
• Phyllis Metzelaar (FSSA Project Manager for
  Transformation Workgroup)
• Sue Lummus (DMHA)
• Ann McCranie (TWG Research Study)

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Indiana Mental Health and AddictionTransformation
Work GroupConsumer / Family Involvement
Subcommittee
Purpose The priority of this committee has been
to have an enhanced focus on specific statewide/lo
cal methods to ensure consumers/families are full
partners in planning for, delivering and
evaluating culturally, competent care.

• Subgroup Role
• In concert with DMHA, develop a multi-faceted
  initiative that will ultimately ensure that
  consumers/families are full partners in the
  development, delivery and evaluation of
  culturally competent services.
• Recommend strategies to the full Transformation
  Work Group (TWG) for approval.
• Develop ways to measure progress/success.

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Indiana Mental Health and AddictionTransformation
Work GroupConsumer / Family Involvement
Subcommittee
Subgroup Role 1 - In concert with DMHA, develop
a multi-faceted initiative that will ultimately
ensure that consumers/families are full partners
in the development, delivery and evaluation of
culturally competent services.
In March 2006, subcommittee members reviewed the
roles and purposes of the group and began to work
collectively on defining, from the groups
perspective, a working definition of full
partnership. This action is in concert with the
role of developing an initiative that will
ensure, or create the process of ensuring that
families and/or consumers are equal partners in
the development, delivery and evaluation of
culturally sensitive and competent services. In
this process, a draft was created to begin to
describe what the characteristics of this action
should represent.
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Characteristics of Full-Partnership of
Families/Consumers The following is a working
draft of what the subcommittee envisions true and
full partnerships will entail

• Have/create a measure of when the following
  standards have been addressed and completed
• Establish if all partners are treated equally
• Compensation is equal to compensation of time
  given
• All parties receive adequate time to review
  written materials in preparation for meetings
• Appropriate support for financial issues
  incurred, including missed wages, out-of-pocket
  expenses, such as transportation/mileage, hotel,
  meals, etc. Additionally many caregivers face the
  expense of childcare this hugely affects their
  ability to participate
• Tokenism Are there enough individuals
  representing consumers and families that
  individuals feel free to speak up? To feel safe
  in the group there must be more than one
  individual.
• Sustaining family involvement Once engaged, how
  to keep involved Is there a sprit of
  collaboration? Are there defined goals and is
  the group making real progress towards goals?

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Some suggestions of next steps

• Create a uniform policy of supporting needs
  identified by consumers/family
• members to support their ability to become
  actively involved in working
• as partners to the systems that are asking for
  their assistance.
• Make sure that the consumer understands the
  purpose of the group in
• which they are to participate represents and
  their mission or reason for the
• need of their involvement.
• Clearly define what expectations are from
  participating in collaborating in the group
• to the consumer that is being asked to
  participate.

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Some areas in which we recommend family partners
be included

• Full partners in the treatment planning process
  as service recipients (consumer and family driven
  treatment)
• Full partners in state and local policy and
  planning meetings
• Full partners in service delivery by way of using
  the consumer/family experiential expertise in
  providing peer to peer support services to all
  three populations- children with SED, adults with
  SMI and both with CA.  These should be
  opportunities to provide this support both in the
  hospitals and in the community ( and DOC).