Dental Care for Children and Youth with Special Health Care Needs

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Dental Care for Children and Youth with Special
Health Care Needs

• AAPD Conference
• Children and Adults with Special Health Care
  Needs
• November 17-18, 2006, Chicago

Betsy Anderson, Family Voices
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V
OICES
FAMILY

• National Network of Families Friendshttp//www.
  familyvoices.org
• Family to Family Health Information Centers (35!)
• Meetings and Workshops
• Research and Data
• Networking and Partnerships

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• Bright Futures Materials

Complements the Bright Futures Guidelines for
Health Supervision of Infants, Children and
Adolescents

• The Family Pocket Guide is a quick reference that
  contains
• How to choose and work with your health care
  provider
• What to expect as your child grows
• What will happen at health visits from birth to
  age 21
• Color-coded by age
• Various tip sheets in the appendix for all ages

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Dental Health Issues for Children
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Dental Health Issues for Children with Special
Healthcare Needs
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Family Roles and Partnerships
Families are their childrens first and best
advocates, providing and overseeing their
childrens health and development.
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Family Roles and Partnerships

• Obstacles

• Initially - no where to go but up families
• were not seen as partners or providers

• Successes

• Roles for families at many levels
• MCHB and other champions!
• Concept of family-centered, community- based,
  coordinated, culturally competent care
• Concepts now selling points
• Partnerships at many levels

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Care and Services
Raising children is important, hard work 24
hours a day.
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Care and Services

• Obstacles

• Few services, giant gaps in service
• Lack of parent presence
• From limited care to fragmented care
• Care in specialty settings primary care
• not comfortable or confident in their roles

• Successes

• Innovation, technology, techniques
• Success in education (IDEA) prompted changes
• Each specialty bloomed
• Family roles have become more diverse
• Family roles are recognized and supported

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Information and Data
Childrens health happens in many settings
home, school, community. Families are the links
between caregivers and settings.
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Information and Data

• Obstacles

• limited to non-existent
• not family friendly
• not matched to family roles

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Successes
Information and Data

• Tremendous progress
• Internet dissemination
• Oral Health Data
• - Natl Survey CSHCN (2001)
• - Natl Survey of Childrens Health (2003)
• - Family Voices provision of oral health info
  has doubled, 2005-2006
• MCHB Performance Measures National and State
  Measures

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Financing
Your childs health care providers want to help
you raise healthy children. Childrens regular
health and dental visits are excellent times to
get this help.
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Financing

• Obstacles

• Early on - seldom mentioned
• Soon after and ongoing - major health
• and economic consequence for the entire country

• Successes

• Katie Beckett waivers (1982) children assisted
  by technology
• SCHIP (1997 being reauthorized 07)
• Increase in understanding of issues
• Increase in advocates

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Recommendations Resources
There are lots of right and good ways to raise
healthy children.
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Maternal and Child Health Bureau

• 6 Critical Indicators of Progress
• Medical Home
• Insurance Coverage
• Screening
• Organization of Services
• Family Roles
• Transition to Adulthood
• Promoting the Oral Health of CSHCN
• In Support of the National Agenda

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Important Initiatives Advancing the Agenda

• National Maternal and Child
• Oral Health Resource Center
• ASTDD State forums and plans
• Childrens Dental Health Project
• AAP PROHD Project
• And others!

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Family-Centered Care

• Recommendations

• Be intentional extend FCC to oral health
  practitioners
• Recognize families as primary care providers and
  models for their children
• Involve families in program, policy, and practice
  areas work with families to define roles

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Care and Services

• Recommendations

• Create virtual teams to bring together those
  involved in a childs care
• Emphasize health and wellness for CSHCN
• Build on Dental/Medical Homes and Bright Futures
• Quality Care - define discuss with families

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Information and Data

• Recommendations

• Participate in and help shape national, state
  and local initiatives
• Provide more specific and accessible data on
• insured/uninsured
• co-pays
• out-of-pocket expenses for families

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Financing

• Recommendations

• Express and define financing needs that partners
  can support
• Put teeth and gums back into the child! Integrate
  health and dental health
• Work broadly for good health for all

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V
OICES
FAMILY

• Resources Initiatives

• Family-to-Family Health Information Centers
• FV topical call on oral health (June 07)
• Work w/partners to identify best oral health
  info for families (spring 07)
• Family Voices Health and Wellness Survey
  (current) http//go.tufts.edu/familymatters

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• Finally

• Build a community of champions for dental health
  
• Be advocates! Be out there! Be visible!
• Recent APHA Conference

If you find your lifes passion, youll never
work again.
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Health promotion works!Families matter!Raising
healthy children is everybodys business!