Disabled people families. Some preliminary results for the Basque Country from the Disabilities, Def

1
Disabled people families. Some preliminary
results for the Basque Country from the
Disabilities, Deficiencies and Health Survey of
1999

• Ainhoa Alustiza Galarza

2
The Basque Country
Basque Country (1/1/2004) 2.115.279 Araba
295.905 Bizkaia 1.132.861 Gipuzkoa 686.513
3
Population Trend

• Historical context that emphasizes the need of
  research on disability
• Increment of traffic accidents ant its
  consequences

• Historical context that emphasizes the need of
  research on disability
• Increment of traffic accidents ant its
  consequences
• Change on the requirement level of life quality
• Increased longevity without quality of life is
  an emplty prize
• Health exectancy is more important than life
  expectancy
• World Health Organization (WHO), 1997
• The World Health report 1997. Conquering
  suffering, enriching humanity.

• Historical context that emphasizes the need of
  research on disability
• Increment of traffic accidents ant its
  consequences
• Change on the requirement level of life quality
• Increase of survival and proportion of people
  aged 65 and more

4
Population Trend
Population aged 65 or more. Basque Country,
1900-2001(percentages and absolute values)
Source Spanish Statistical Institute Census,
different years.
5
Population Trend
Evolution of live expectancy at birth and at 65
years. Spain, 1950-2004
Source Eurostat and Eustat (Basque Statistics
Office).
6
Population Trend
Survival curves, by age. Spanish cohorts,
1856-1960
Cohort
Cohort born in 1956-1960
Survivors x 100 0 births
Cohort born in 1856-1860
Period
Source Cabré, A. (1989) Life-Tables.
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The Disabilities, Deficiencies and Health Survey
of 1999 (DDHS-99)
Main Objective and advantages Main
Objective Obtain information about the number
of people who perceive any disability, their main
characteristics so as their situation.
Main Objective and advantages Main
Objective Obtain information about the number
of people who perceive any disability, their main
characteristics so as their situation. Advantages
- The sample size (218.183 interviews in
70.500 dwellings in Spain and 10.705 interviews
in 3.527 basque dwellings)
Main Objective and advantages Main
Objective Obtain information about the number
of people who perceive any disability, their main
characteristics so as their situation. Advantages
- The sample size (218.183 interviews in
70.500 dwellings in Spain and 10.705 interviews
in 3.527 basque dwellings) - The reference
population (people living in familiar
dwellings)
Main Objective and advantages Main
Objective Obtain information about the number
of people who perceive any disability, their main
characteristics so as their situation. Advantages
- The sample size (218.183 interviews in
70.500 dwellings in Spain and 10.705 interviews
in 3.527 basque dwellings) - The reference
population (people living in familiar
dwellings) - The interviewed opinion
Main Objective and advantages Main
Objective Obtain information about the number
of people who perceive any disability, their main
characteristics so as their situation. Advantages
- The sample size (218.183 interviews in
70.500 dwellings in Spain and 10.705 interviews
in 3.527 basque dwellings) - The reference
population (people living in familiar
dwellings) - The interviewed opinion - Four
questionnaires 1. Disabilities and Impairments
Questionnaire (Persons aged 6 years and
over) 2. Limitations and Impairments
Questionnaire (Children aged under 6 years) 3.
Household Questionnaire 4. Health Questionnaire
Main Objective and advantages Main
Objective Obtain information about the number
of people who perceive any disability, their main
characteristics so as their situation. Advantages
- The sample size (218.183 interviews in
70.500 dwellings in Spain and 10.705 interviews
in 3.527 basque dwellings) - The reference
population (people living in familiar
dwellings) - The interviewed opinion - Four
questionnaires 1. Disabilities and Impairments
Questionnaire (Persons aged 6 years and
over) 2. Limitations and Impairments
Questionnaire (Children aged under 6 years) 3.
Household Questionnaire 4. Health
Questionnaire - Main concepts definitions (World
Health Organizations recommendations the
International Classification of Impairments,
Disabilities and Handicaps)
8
In this presentation
Objective Analyze the relationship between
disabled people and their immediate environment,
the family and household. The family environment
provides most of the support given to people
requiring special care.
Objective Analyze the relationship between
disabled people and their immediate environment,
the family and household. The family environment
provides most of the support given to people
requiring special care. Disability Every
major limitation caused by a deficiency that a
person suffers from at the present moment and
affects for a lasting/long period in a particular
activity of that person. They are the
consequences produced by a disease or a
deficiency on a persons function level.
Objective Analyze the relationship between
disabled people and their immediate environment,
the family and household. The family environment
provides most of the support given to people
requiring special care. Disability Every
major limitation caused by a deficiency that a
person suffers from at the present moment and
affects for a lasting/long period in a particular
activity of that person. They are the
consequences produced by a disease or a
deficiency on a persons function
level. Deficiency Any lost or anomaly
produced in an organ or on the own function of
that organ.
Objective Analyze the relationship between
disabled people and their immediate environment,
the family and household. The family environment
provides most of the support given to people
requiring special care. Disability Every
major limitation caused by a deficiency that a
person suffers from at the present moment and
affects for a lasting/long period in a particular
activity of that person. They are the
consequences produced by a disease or a
deficiency on a persons function
level. Deficiency Any lost or anomaly
produced in an organ or on the own function of
that organ. Dependency Any person who needs
personal care or another persons assistance to
carry out anyone of the Activities of the Daily
Living (ADL). There are different levels or
degrees of dependency depending on the severity
and the kind of those activities.
Objective Analyze the relationship between
disabled people and their immediate environment,
the family and household. The family environment
provides most of the support given to people
requiring special care. Disability Every
major limitation caused by a deficiency that a
person suffers from at the present moment and
affects for a lasting/long period in a particular
activity of that person. They are the
consequences produced by a disease or a
deficiency on a persons function
level. Deficiency Any lost or anomaly
produced in an organ or on the own function of
that organ. Dependency Any person who needs
personal care or another persons assistance to
carry out anyone of the Activities of the Daily
Living (ADL). There are different levels or
degrees of dependency depending on the severity
and the kind of those activities. Data
Population aged 6 or more
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Activities of the Daily Living, ADL
ACTIVITIES OF DAILY LIVING (ADL)
BASIC DAILY LIVING ACTIVITIES (BDLA)
INSTRUMENTAL DAILY LIVING ACTIVITIES (IDLA)
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ResultsCharacteristics of disabled people
Distribution of disabled population, by age and
sex. Basque C., 1999
Distribution of disabled people, by age, sex and
marital status. Basque C., 1999
Source DDHS-99
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ResultsCharacteristics of disabled people
Proportion of people with disability and with
dependence for Activities for Daily Living (ADL),
by age and sex. Basque C., 1999
Source DDHS-99
12
ResultsCharacteristics of disabled people
Proportion of people with or without dependence
for Activities for Daily Living (ADL), by age and
type of household. Basque C., 1999
Source DDHS-99 and estimated from Social
Services Statistics data (Eustat, Basque
Statistics Office)
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ResultsCharacteristics of the main caregivers
Distribution of the Main Caregivers, by age, sex
and marital status. Basque C., 1999
Source DDHS-99
14
ResultsCharacteristics of the main caregivers
Proportion of people who practice at each age as
Main Caregiver, by sex. Basque Country and
Spain, 1999
Source DDHS-99
15
ResultsCharacteristics of the main caregivers
Proportion of people who practice at each age as
Main Caregiver, by sex and economic activity
status. Basque Country and Spain, 1999
Source DDHS-99
16
ResultsCharacteristics of the main caregivers
Kinship tie between the Main Caregiver and the
care recipient. Basque Country, 1999
Source DDHS-99
17
ResultsWho cares for who?
Kinship tie between the Main Caregiver and the
care recipient. Basque Country, 1999
Source DDHS-99
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To take into account

• Every time more people living till very old ages
  
• Every time more nonagenarians/centenarians
• Every time more people whose old parents (even
  both) are alive

• Every time more people living till very old ages
  
• Every time more nonagenarians/centenarians
• Every time more people whose old parents (even
  both) are alive
• Positive correlation between age/disability and
  age/dependency
• The absolute number of people suffering from a
  disability and dependency is increasing

• Every time more people living till very old ages
  
• Every time more nonagenarians/centenarians
• Every time more people whose old parents (even
  both) are alive
• Positive correlation between age/disability and
  age/dependency
• The absolute number of people suffering from a
  disability and dependency is increasing
• Is postponing the emergence of disability?
  (Healthy active ageing)
• The compression of morbidity (J. Fires) vs.
  Expansion of morbidity (Gruenberg)

• Every time more people living till very old ages
  
• Every time more nonagenarians/centenarians
• Every time more people whose old parents (even
  both) are alive
• Positive correlation between age/disability and
  age/dependency
• The absolute number of people suffering from a
  disability and dependency is increasing
• Is postponing the emergence of disability?
  (Healthy active ageing)
• The compression of morbidity (J. Fires) vs.
  Expansion of morbidity (Gruenberg)
• Great importance of informal caregivers
  (specially, family members and women)
• Increasing activity rates of women (pressure on
  the bulk of the caregivers)

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To take into account
Activity rate, by age and sex. Basque Country,
several years
Source Population census, several years
(Eustat, Basque Statistics Office)
20
To take into account
Activity rate, by age and sex. Basque Country,
several years
Proportion of people who practice at each age as
Main Caregiver, by sex. Basque Country and Spain,
1999
Source Population census, several years
(Eustat, Basque Statistics Office)
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To take into account

• Every time more people living till very old ages
  
• Every time more nonagenarians/centenarians
• Every time more people whose old parents (even
  both) are alive
• Positive correlation between age/disability and
  age/dependency
• The absolute number of people suffering from a
  disability and dependency is increasing
• Is postponing the emergence of disability?
  (Healthy active ageing)
• The compression of morbidity (J. Fires) vs.
  Expansion of morbidity (Gruenberg)
• Great importance of informal caregivers
  (specially, family members and women)
• Increasing activity rates of women (pressure on
  the bulk of the caregivers)
• The high age average of the caregivers (34 are
  retired)

• Every time more people living till very old ages
  
• Every time more nonagenarians/centenarians
• Every time more people whose old parents (even
  both) are alive
• Positive correlation between age/disability and
  age/dependency
• The absolute number of people suffering from a
  disability and dependency is increasing
• Is postponing the emergence of disability?
  (Healthy active ageing)
• The compression of morbidity (J. Fires) vs.
  Expansion of morbidity (Gruenberg)
• Great importance of informal caregivers
  (specially, family members and women)
• Increasing activity rates of women (pressure on
  the bulk of the caregivers)
• The high age average of the caregivers (34 are
  retired)
• Changing the point of view of women about
  significance of care

• Every time more people living till very old ages
  
• Every time more nonagenarians/centenarians
• Every time more people whose old parents (even
  both) are alive
• Positive correlation between age/disability and
  age/dependency
• The absolute number of people suffering from a
  disability and dependency is increasing
• Is postponing the emergence of disability?
  (Healthy active ageing)
• The compression of morbidity (J. Fires) vs.
  Expansion of morbidity (Gruenberg)
• Great importance of informal caregivers
  (specially, family members and women)
• Increasing activity rates of women (pressure on
  the bulk of the caregivers)
• The high age average of the caregivers (34 are
  retired)
• Changing the point of view of women about
  significance of care
• Development of social services

22
Disabled people families. Some preliminary
results for the Basque Country from the
Disabilities, Deficiencies and Health Survey of
1999

• Ainhoa Alustiza Galarza
• aalustiza_at_gmail.com