Telemedicine Applications in Clinical Genetics - PowerPoint PPT Presentation

Loading...

PPT – Telemedicine Applications in Clinical Genetics PowerPoint presentation | free to download - id: 424a3b-ZGFhM



Loading


The Adobe Flash plugin is needed to view this content

Get the plugin now

View by Category
About This Presentation
Title:

Telemedicine Applications in Clinical Genetics

Description:

Telemedicine Applications in Clinical Genetics NBS-ANGELS 10 project deliverables: Guidelines/protocols monitored, assessed and modified Consultation for appropriate ... – PowerPoint PPT presentation

Number of Views:426
Avg rating:3.0/5.0
Slides: 40
Provided by: Brad1236
Category:

less

Write a Comment
User Comments (0)
Transcript and Presenter's Notes

Title: Telemedicine Applications in Clinical Genetics


1
Telemedicine Applications in Clinical Genetics
2
Definitions
  • Telemedicine is the use of telecommunications to
    provide medical information and services
  • It may be as simple as two health professionals
    discussing a patient over the telephone, or as
    sophisticated as using satellite technology to
    broadcast a consultation between providers at
    facilities in two countries, using
    videoconferencing equipment or robotic
    technology.
  • Telehealth is a broader term and includes
    telemedicine, electronic medical records, online
    drug pharmacies, and distance education (DE) for
    teaching and continuing education.
  • Telegenetics is the application of telemedicine
    to clinical genetic services

3
Current Uses of Telemedicine
  • In flight
  • Space flight
  • Ship to shore
  • Armed forces
  • Mount Everest, Antarctica
  • Disaster areas
  • 911 ambulance

4
Current Uses of Telemedicine
  • HomeCare Wellness
  • TeleMonitoring programs
  • RX Reminder
  • Electronic Medical Records (EMR)
  • TeleCase Management
  • GPS Tracking

5
With current technology, any activity that you
can do in person can be accomplished as a
tele-genetics service
  • B. Schaefer

6
Other Genetic Uses of TM
  • Family counseling
  • Multi-site (same info)
  • Monitoring therapy
  • Metabolic disorders
  • Support groups
  • coordination

7
Genetic Uses of TM Education
  • Degree program
  • Mid-America Genetic Education Consortium (MAGEC)
  • Team training
  • LEND
  • Continuing education
  • Patient education
  • Public education

8
Genetic Uses of TM Research
  • Multi-site studies
  • Clinical trials (CTSA)
  • Inclusion of minority and rural patients
  • Monitoring and compliance
  • Evaluation of TM
  • Patients with autism

9
Genetic Uses of TM Administration
  • Interview job applicants
  • Meetings
  • Board, Committee, SIG, Regional, State
  • Orientation and staff development
  • Compliance

10
Nebraska 1995 - 2008
11
Examples of Services we have Provided
  • Dysmorphology evaluations
  • Confirmed by on-site follow up
  • Genetic counseling
  • Especially good for following up results
  • Urgent NICU consultations
  • Cancer genetics sessions
  • Interdisciplinary team outreach
  • Procedure supervision
  • Participation in distant interdisciplinary team

12
1. Statewide Telehealth Services for Children
with SHCN
  • Multiple services can be provided through these
    links
  • It is understood that each community has its own
    unique needs and desires for services to be
    utilized through such a network
  • As such, a menu of services is available to
    chose from by the home communities. Below is a
    list of potential services that can be provided.
    This list is not comprehensive, but
    representative of possible applications

13
Statewide Telehealth Services for Children with
SHCN
  • 1) Participation in the IEP and IFSP processes
  • A) MMI staff could perform the entire
    evaluation. We suspect that this would be
    necessary only on a temporary basis during times
    of need or crisis (summer hiatus, temporary
    suspension of team activities, etc.)
  • B) MMI staff could participate in the IEP / IFSP
    processes with an existing team as a gap -
    filling member (e.g. an existing team is in place
    , but does not have a physical therapist)
  • 2) Direct (primary) patient assessments . These
    services could be provided for any of the MMI
    disciplines (clinical genetics, genetic
    counseling, physical therapy, occupational
    therapy, speech pathology, child psychology,
    developmental pediatrics, nutrition, nursing
    (case management), social work, recreational
    therapy, and diabetes / endocrinology).

14
Statewide Telehealth Services for Children with
SHCN
  • 3) Discipline specific consultative services on
    difficult cases (available for all MMI
    disciplines listed above)
  • 4) Continuing education / training. An ongoing
    series of special topics, issues in the care of
    CSHCN, and new updates would be provided. These
    activities would be open to a broader audience
    than those for direct patient services.
  • 5) Quality assurance monitoring of local teams.
    This would include help with Federal compliance
    reviews, ongoing team monitoring, and technical
    assistance in the development of local QA
    activities.
  • 6) Provision of quaternary interdisciplinary
    services only available in Nebraska metropolitan
    areas
  • Speciality services in complicated disorders may
    only be found in Omaha and sometimes Lincoln.
    Even if the primary discipline is available to
    the patient, complex cases may require quaternary
    services. Examples of such services would include
    the interdisciplinary teams as well as services
    in sleep disorders, eneuresis / encopresis,
    autism and the neurobehavioral team.

15
Outreach Clinics
.
.
Pierre
Rapid City
.
Winnebago
.
.
Scottsbluff
.
.
(Cerebral Palsy)
.
.
Omaha
North Platte
Grand Island
Kearney
(Craniofacial)
(Cerebral Palsy)
Funding Title V
150,000 Teratogen Project 110,000 Appropriatio
ns 35,000 Outreach Clinics
73,000 Total 183,000 South Dakota
57,000 IHS contract 8000 MHCP Clinics
16
(No Transcript)
17
2. EPDST Transition Project
  • Transition Consultation
  • Resource collection
  • Education of HHSS Service Coordinators
  • Physician Education (build capacity)
  • Faculty
  • Community docs
  • Evaluation

18
Transition Consultation
  • Interdisciplinary team
  • Consumer / Family Advocate
  • Nurse
  • Adult psychiatrist (dual diagnosis)
  • Pharmacist
  • Developmental Pediatrician
  • Med-Ped physician
  • Ancillary (Genetics, Dentistry)

19
Transition Consultation
  • YSCHN 15 17 years old (ideal)
  • 5 components
  • Initial visit (T1)
  • Information gathering
  • Concluding visit (T2)
  • Medical Transition Plan
  • Transition guidance / implementation

20
Health Care Transition Planning Process Health
Care Transition Clinic
a
a
a
a
a
a
a
a
Transition plan is developed around goals set
at 1st clinic visit
a
a
a
21
Resource Development
  • Physician resource notebook
  • Individual planning resources

Coming soon to a DVD near you
22
(No Transcript)
23
3. Flatlands Disability Network
24
(No Transcript)
25
4. Shriners Cooperative Agreement
26
5. Pediatric Behavioral Telehealth Services
27
6. Mid-America Genetics Education Consortium
28
7. Cosmic Services
29
(No Transcript)
30
(No Transcript)
31
Arkansas 2008 - Present
32
ANGELS
  • A joint venture between The University of
    Arkansas for Medical Sciences, the Arkansas
    Department of Health and Human Services and the
    Arkansas Medical Society.
  • ANGELS is an acronym for Antenatal and Neonatal
    Guidelines, Education, and Learning System.
  • ANGELS has been an enormously successful program.
  • ANGELS is designed to provide best practices in
    diagnosing and treating high-risk pregnancies,
    providing continuing medical education for
    Arkansas obstetricians and family practice
    physicians, and facilitating referrals of
    pregnant women with severe medical complications
    to UAMS for specialized care.

33
AR-Kids
34
NBS-ANGELS
  • 10 project deliverables
  • Guidelines/protocols monitored, assessed and
    modified
  • Consultation for appropriate health-care
    providers
  • Perform second tier screening components
  • Development, education, refinement and
    dissemination of the Newborn Screening Follow-up
    guidelines/protocols.
  • Develop database and reporting system
  • Examine Medicaid claims data cost analysis
  • Coordinate access to services
  • Perform an evaluation to compare outcomes
  • Develop the infrastructure and software to aid in
    identification and treatment and track case
    management of true-positive
  • Augment provision of metabolic formulas and foods

35
UAMS Telemedicine Services
  • Telemedicine to 27 sites, adding 7 more this year

36
Challenges
  • 7 deadly words of program development
  • Techno-phobia
  • Administrative inertia
  • Cost
  • Lack of adequate IT infrastructure
  • Lack of colleague buy in
  • Where to go for answers

37
Opportunities
  • Avoid land travel
  • Overcome barriers to access for underserved
    populations
  • Distance
  • Complicated transport
  • Save time and money
  • Expand services
  • Unexpected advantages
  • Have a lot fun

38
(No Transcript)
39
Telegenetics consults (demo)
About PowerShow.com