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Partnering Parents with Practices

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There is NO substitute for the Parent perspective ... Parent come with valuable skills. Change can either be top down or bottom up ... Why Do Parent's Get Involved? ... – PowerPoint PPT presentation

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Title: Partnering Parents with Practices


1
Partnering Parents with Practices
  • Christy S. Blakely
  • Family Voices Colorado

2
Parent Leadership and Advocacy
  • Parents are a catalyst for change
  • There is NO substitute for the Parent perspective
  • Parents today are working at the national, state,
    and local level to affect change
  • Parents need professionals to encourage their
    participation
  • Professionals need parents for their perspective
  • Parent come with valuable skills
  • Change can either be top down or bottom up
  • Zero to Three, November 2004

3
Why Do Parents Get Involved?
  • They believe the issue is important to them and
    their children/family.
  • They believe they have something to contribute.
  • They believe that they will be listened to and
    their contributions respected.
  • They believe their participation will make a
    difference.

4
Benefits to Parents/Practice When Families Serve
as Partners
  • Benefits for Families
  • Improves services
  • Meaningful change
  • Share w/other parents
  • Significant Contribution
  • Satisfaction giving back
  • Network
  • Expand knowledge, skill
  • Benefits for Practices
  • Improves planning
  • Helps address mission
  • Increases knowledge skill
  • Job performance
  • Fresh perspective
  • Added allies for CSHCN
  • empathy understanding

5
What makes you (parents/guardians) feel valued
by practice partners?
  • When thoughts and suggestions are appreciated.
  • When changes are made due to my input
  • When input is respected valued
  • When Im seen as an equal partner /expert
  • When my perspective knowledge helps team
    learning
  • When providers learn our language and help us
    learn theirs.

6
Colorados Model
Parent Partners
Practice
Practice
P 3
Lead Parent Convener
7
NICHQ Model
Parent Partners
Practice
Practice
Faculty includes a Parent Partner
8
Step by Step
  • 1. Set goals
  • 2. Regularly scheduled meetings with families
  • Meet with other parents to share ideas and work
  • Implemented Suggestions
  • Recommended time studies
  • Resource books in English and Spanish
  • Creating Care Plans Care Plan books
  • Completing Care Coordination Conferences
  • Tips and Tricks ( a document created)

9
Sharing the Successes
  • Parent Activities
  • Care Partnership Support Community
  • Disability specific events asthma, Down
    Syndrome, and others
  • Resource materials and notebooks
  • Care Plan Activities
  • Action plans for specific populations
  • Surveys
  • Culturally and linguistically appropriate
    materials
  • Support groups
  • Focus groups
  • Increased appointment time
  • Hotlines for providers
  • Decision Support-
  • Fax back forms for referrals
  • Building connection and relationships

10
Sharing the Successes, continued
  • Parent Activities
  • Health Systems
  • Planning and meeting
  • Building relationships within the office
  • Coding, billing and reimbursement activities
  • Identify parents for Medical Home Involvement
  • Bulletin Board system
  • Involve Parents in practice planning
  • Questionnaires
  • Delivery System Design
  • Brochures and Posters
  • Transition planning
  • Disability specific action plans
  • Track referrals
  • Reduce Emergency Room visits

11
Finding Savvy Parent Partners
  • Look for the parent who…..
  • Initiatives record keeping and charting
  • Brings educational materials to the visit
  • Asks about their childs diagnosis/disability
  • Is proactive about care
  • Follows through with recommendations Look for
    parents who have the ability to see the greater
    good for ALL children

12
Barriers Impacting Parent Involvement
  • Lack of a provider champion in the office
  • Staffing changes
  • Time Restraints
  • No consistent meeting time (inflexible)
  • Lack of communication
  • Lack of understanding of the goal
  • Lack of clear direction for project
  • Lack of specific tasks for families to engage
  • Funding for parents (childcare, travel, etc.)

13
Encourage the Practice to Ask These Questions
  • What would the practice team like to accomplish?
  • How are we doing from the consumer point of view?
  • What are the goals for the practice?
  • What activities are the parent partners
    interested in doing?
  • Do you feel engage? If not, why?

14
Providers Report Problems
  • Identifying parents
  • Asking parents
  • Finding willing parents
  • Knowing how to engage them
  • Knowing what to ask them to

15
Providers Report Problems
  • Identifying parents
  • Asking parents
  • Finding willing parents
  • Knowing how to engage them
  • Knowing what to ask them to
  • Parents Report…..
  • Parents are thrilled to be ask!
  • Honored to be involved
  • Have suggestions ready
  • WANT to give back

16
What Does It Take To Be a Parent Partner?
Individual Self-Advocacy
  • Knowledge
  • Rights of self and of children
  • Processes to secure those rights
  • Parents role in the system (education, health,
    human services, etc.)
  • Skills
  • Fact-finding
  • Documentation
  • Fact-organizing
  • Effective Communication (written and verbal)
  • Research/how to seek out essential information
    and resources
  • Analyze facts against laws/rights

17
What Does It Take To Be a Parent Partner? Peer
Advocacy
  • Knowledge
  • Rights of others
  • Processes to secure those
  • Skills
  • Listening skills
  • Capacity to provide support to others
  • Not substitute own judgment for judgment of
    peers
  • Empathy
  • Collaboration

18
Parents like a power strip, are only useful if
plugged in…
Just PLUG them in….
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