The Peninsula Stroke LRN and the PCRN a work in progress

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The Peninsula Stroke LRN and the PCRN a work
in progress!

• Dr Martin James
• Consultant Stroke Physician/ Clinical Senior
  Lecturer
• Royal Devon Exeter Hospital/Peninsula Medical
  School
• Clinical Lead, Peninsula Stroke LRN

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UK Clinical Research Network
Comprehensive Research Networks Under
development South West in two areas Peninsula Wes
tern
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Stroke Research Networks
England Peninsula 2.0M South East 3.3M
Thames 4.0M West Midlands 5.2M Trent 5.4M
North West 6.8M Yorkshire 2.7M North East
2.5M Total 31.9M Scottish Stroke
Network 5.8M
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Clinical Study Groups

• 8 research themes within SRN, each led by an SRN
  Associate Director, who chairs the related CSG
• 8 CSGs established
• Acute
• Rehabilitation
• Prevention
• Primary Care Chairman Jonathan Mant, Birmingham
• Translational Research
• Service Development and Training
• Biostatistics
• Patient Carer Involvement CSG

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The Peninsula Stroke LRN

• Covers SW Somerset, Devon and Cornwall
• Popn. Approx 2.1 million
• 7 Acute Trusts, PMS, and 14 PCTs now 5
• Lead Clinician Martin James
• Network Manager Jacqueline Briggs
• 400K annual budget

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The Peninsula Stroke LRN
Taunton Somerset Hospital NHS Trust770 bed
district hospital 350 acute strokes/yr Dr Mary
Evans, Consultant Physician for the
Elderly Clinical Trials Unit
Northern Devon Healthcare NHS Trust 350 bed
district hospital 200 acute strokes/yr Dr Mervyn
Dent, Consultant Physician for the
Elderly Clinical Trials Office
East Somerset NHS Foundation Trust 325 bed
district hospital 200 acute strokes/yr Dr Khalid
Rashed, Consultant Physician for the
Elderly Clinical Trials Office
Royal Devon Exeter NHS Foundation Trust 850 bed
teaching hospital 450 acute strokes/yr Dr Martin
James, Consultant Stroke Physician Clinical
Research Facility
Cornwall and IoS PCT 29 beds in Community Stroke
Units 250 rehab strokes/yr Mrs Maggie Scott,
Consultant Nurse for Stroke
Peninsula Medical School (Exeter and
Plymouth) Prof. John Zajicek, Professor of
Neuroscience Prof. John Campbell, Professor of
General Practice Primary Care
Devon PCT Community stroke Units, Newton Abbot
Hospital, Budleigh and Crediton Mrs Rhoda
Allison, Consultant Therapist Mr T
Ayers Consultant Nurse
Royal Cornwall Hospital NHS Trust 840 bed
teaching hospital 450 acute strokes/yr Dr Frances
Harrington, Consultant Physician for the Elderly
Clinical Trials Unit
Torbay Hospital NHS Trust 500 bed district
hospital 400 acute strokes/yr Dr Peter Sleight/Dr
Deborah Kelly Consultant/Associate Specialist,
Stroke Medicine Clinical Trials Unit
Somerset PCT Community Stroke Units Williton an
dShepton Mallet Mrs Ian Evans Consultant Nurse
Plymouth Hospitals NHS Trust 975 bed teaching
hospital 650 acute strokes/yr Dr Steve Allder,
Consultant Neurologist Clinical Trials Unit
Plymouth Teaching PCT 24 bed Stroke Rehab Unit,
Mount Gould Hospital 250 rehab strokes/yr Professo
r Magid Bakheit, PMS Professor of Rehabilitation
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Current Stroke Studies
Northern Devon Healthcare NHS Trust Inc. in
service development.
East Somerset NHS Trust, Yeovil District Current
ENOS, COSSACS, CLOTS IST 3 In set up VItatops,
DNA lacunar, PERFORM, NG Loop study
Royal Devon Exeter NHS Foundation
Trust Current/FU COSSACS, CHHIPS, PERFORM,
REACH, PROFESS, DNA LACUNAR In Set up /
plannedVitatops,ENOS, IST3, CLOTS, BSWISS, ACES
Taunton Somerset Hospital NHS Trust, Musgrove
Park Hospital In set up/ being reviewed COSSACS,
ENOS, VITATOPS, DNA lacunar
Peninsula Medical School (Exeter and Plymouth)
Royal Cornwall Hospital NHS Trust CurrentCOSSACS
/ GALA In set up ENOS, PERFORM, DNA LACUNAR,
CADISS, VITATOPS
Torbay Hospital NHS Trust Current PERFORM, ENOS,
VITATOPS,IST 3, In set up CLOTS, CADISS
Plymouth Hospitals NHS Trust IST 3, CADISS,
ARUBA, TEAM,ACES
Plymouth Teaching PCT 24 bed Stroke Rehab Unit,
Key at present is to increase recruitment
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The Peninsula Stroke LRN
Our Research Strategy

• Increasing Recruitment into Research
• Broadening the base of Research
• Developing Research-Active Clinicians
• Fostering Collaboration
• Bridging the Gap from Bench to Bedside

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The State of Stroke Services in the UK

• The NAO (National Audit Office) argues that the
  NHS lacks sufficient emergency responses to
  stroke and effective acute care, provides too few
  services for rehabilitation and support after
  discharge from hospital for both patients and
  carers and does too little to prevent stroke
• BMJ editorial 11/02/06

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Working with the PCRN

• Joint appointment of Primary Care Lead (out to
  advert) for the Stroke LRN
• Ensuring teams are appointed with joint remit
  across acute and community
• Engaging community Stroke Units in PCT based
  studies e.g. TRACS
• Linking with national primary care CSG and
  ensuring we are able to support primary care
  based studies in the future
• Working with PCRN manager within a number of
  areas including Patient, Carer and Public
  Involvement and the Joint Network Managers Group
• Stroke LRN Management Group includes a number of
  representatives from our community stroke units
  which ensures the group is balanced
• PCRN have sent out questionnaire to identify
  practices with a current Stroke interest

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A cluster randomised controlled trial of a
structured training programme for caregivers
after stroke
Training Caregivers after Stroke (TraCS)
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Evaluating the effect of a training programme
for caregivers
TRAINING PROGRAMME Stroke unit setting Structured,
competency based, with assessment of carer skills
USUAL CARE Stroke unit setting Information and
advice available from MDT
V
Vs.
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TRACS centres in the Peninsula

• Mount Gould, Plymouth
• Crediton
• Budleigh Salterton
• Newton Abbot
• Camborne and Redruth, Cornwall
• Taunton / Williton
• Shepton Mallet
• (Weston Super Mare will link with us as part of
  the South West cluster)

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Primary Care Lead for the Local Peninsula Stroke
Research Network

• We are looking for an enthusiastic GP to be
  Primary care lead for the Stroke Research Network
• Advert circulated to practices and information
  available on http//www.jobs.nhs.uk/employers.
• Closing date for applications end of September
• Key area of involvement contribute to the
  development of potential research
  proposals/recruitment strategies and to advise
  specialist colleagues about the likely
  implications of these developments for Primary
  Care
• Leads would also work closely with the Peninsula
  Medical School and with local practices in
  Somerset, Devon and Cornwall
• Initially one session a fortnight for 12 months
  with review, funding is available until March
  2010 in the in the first instance

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Summary

• Important to build an integrated approach with
  PCRN and all other research networks
• Primary Care Research in Stroke is a work in
  progress
• Primary Care Lead Clinician will be a key link
• Network is being set up with the whole patient
  pathway in mind to ensure future flexibility