Experience with the healthcare system for caregivers of dementia patients – Tutors India

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Experience with the healthcare system for
caregivers of dementia patients
An Academic presentation by Dr. Nancy Agnes,
Head, Technical Operations, Tutors India Group
www.tutorsindia.com Email info_at_tutorsindia.com
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Today's Discussion
In Brief Introduction Preparing for visit PWD
cognitive and behavioral limitations Visit-related
time and travel PWD and caregiver physical
limitations Perceived benefits to PWD and
caregivers Conclusion
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In Brief
Dementia patients are typically elderly and have
several chronic diseases, demanding multiple
healthcare visits yearly.
Most live in the community and are assisted by
unpaid family carers who frequently help with
healthcare management. However, little is known
about how caregivers and people with dementia
interact with the healthcare system, which may be
more challenging in the presence of cognitive
disorders like memory loss.
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Introduction
More than 16 million Americans provide daily help
to people with dementia (PWD). Caring for people
with disabilities differs from being a family
caregiver for several reasons. First, as their
physical, cognitive, and emotional abilities
deteriorate, PWD requires more caregiver
monitoring, dementia support with instrumental
activities such as money management or driving,
and self-care duties like washing and
clothing. Second, PWD behavioural changes and
communication challenges may increase caregiving
demands and caregiver stress in later phases,
leading to losses in caregivers' mental and
physical health. contd...
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PWD frequently deal with various chronic diseases
and age-related changes, such as diminishing
vision and hearing, because age is a critical
risk factor for dementia patients. Therefore, a
multidisciplinary team must provide continuous,
comprehensive, and coordinated treatment for this
complex network of functional impairments. Given
PWDs' increasing difficulties with memory and
understanding, carers are critical advocates for
PWD healthcare to help people with dementia
inside and outside clinic visits.
contd...
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The limited data elucidates the actions that
carers conduct related to PWD healthcare
management, such as arranging visits,
transporting PWD to appointments, giving history
to clinicians, and executing care team
recommendations.PWD, for example, may forget to
take medicine or make home safety improvements,
putting caregivers in charge. Three categories
related to the experience of the healthcare
system were identified Preparing for a visit,
PWD cognitive and behavioural limitations,
Visit-related time and travel, PWD and caregiver
physical limitations, Perceived benefits to PWD
and caregivers
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Preparing for visit
The process of mentally and emotionally preparing
PWD for a medical appointment is referred to as
"preparing for the visit." The restrictions
reported in this group's caregiver responses were
classified as PWD cognitive and behavioural
impairments. There was no recognized
sub-category for facilitators. The caregivers'
explanations of perceived difficulties are
included below, along with, when applicable,
facilitation techniques for removing obstacles
and caring for people with dementia.
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PWD cognitive and behavioural limitations
Physically getting PWD ready (such as bathing and
clothing) was often difficult, according to
caregivers. The procedure was described as "a
tremendous production" and "a lot." The approach
was complicated by PWD's old age and
comorbidities, necessitating alterations to the
morning schedule on the day of the visit.
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Visit-related time and travel
The caregiver's and the PWD's travel
arrangements, journeys to and from the visit, and
experiences at the healthcare institution are
referred to as visit-related time and travel PWD
and caregiver physical limitations For PWD and
carers, physical limitations and declining
mobility were obstacles to visit-related time
and travel. contd...
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The difficulty comes from thesis writing help
attempting to get the PWD inside the offices,
according to caregivers who recounted helping
him with wheelchairs and walkers. This
occasionally happened due to PWD weariness, which
made travelling even short distances
challenging. Perceived benefits to PWD and
caregivers On the positive side, several
caregivers found that attending medical
appointments allowed them to socialize. contd...
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Attending a visit was "an outing, and maybe we'd
stop for lunch on the way home" because dyads
"don't go out much at all." Some PWD considered
the journey to the visit to be "pleasant because
we got to drive through his old house." A
caregiver remarked that his father "chit-chats"
with whoever is sitting on the bench and that he
enjoys observing his father "happy and being
healthy" due to this interaction.
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Conclusion

• The need for dementia-capable care that considers
  the
• complexity of the condition for patients with
  dementia (PWD) and their carers is expanding.
• From the perspective of family caregivers of PWD,
  this study highlighted three elements of
  interacting with the healthcare system, both
  during and after the visit, outlining possible
  barriers and facilitators.
• Despite obstacles brought on by PWDs' physical
  and cognitive limitations, research findings
  point to viable care-optimization

solutions.
contd...
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For example, attending medical appointments has
additional benefits. The report also brings up
issues with payment and their effects on
family-centred dementia treatment. Additionally,
we assist you with writing dissertations,
proposals, manuscript editing and writing, data
collection, research methodology,
cross-sectional studies, retrospective studies,
case studies, critical reviews, and literature
reviews. Masters dissertations help you with
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considering confounding effects, developing
cutoffs, and General Linear Models (GLM), among
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and recommendations.
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