Child Death Review Reporting

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Child Death Review Reporting

• From Case Review to Data to Prevention

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Purpose of CDR Case Reporting

• To systematically collect, analyze and report on
• Child, family, supervisor and perpetrator
  information
• Investigation actions
• Services needed, provided or referred
• Risk factors by cause of death
• Recommendations and actions taken to prevent
  deaths
• Factors affecting the quality of your case review

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How Do Teams Use Their CDR Data?

• Local teams present annual findings to community
  groups to push for local interventions
• Teams use data as a quality assurance tool for
  their reviews
• State teams review local findings to identify
  trends, major risk factors and to develop
  recommendations

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How Do Teams Use Their CDR Data?

• State teams use findings to develop action plans
  based on their recommendations
• Local teams and states use their reports to keep
  or increase CDR funding
• National groups use state and local CDR findings
  to advocate for national policy and practice
  changes

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Some National Groups showing interest in Child
Death Review Data

• Consumer Product Safety Commission
• CDC
• Healthy People 2010
• Child Maltreatment Surveillance/Neglect
  Definitions
• National Violent Death Reporting System
• National Guidelines for Infant Death
  Investigations
• National SAFE KIDS
• National Council of State Legislators
• American Prosecutors Research Institute
• American Academy of Pediatrics
• Department of Defense
• Manufacturers, e.g. Door and Window Mfg, National
  Pool Safety Council, National Waste Management

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Examples of Data Uses at a National Level
Safe Sleep
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State of the States

• 44 states have a case report tool
• 39 states publish an annual report with findings
  and recommendations
• 18 states have legislation that requires a report
  on child death
• However, there is no consistency among any state
  case report tools or state reports

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A New Case Report System

• Funded by Maternal and Child Health Bureau, HRSA,
  HHS
• A 30 person workgroup of 18 states over two
  years, analyzed 32 existing state case report
  forms
• Developed standard data elements, data dictionary
  and 31 standardized reports

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Using the National MCH Center System
Considering
Participating
In Process
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The Child Death Review Case Reporting System
From Case Review to Data to Action
Step 1 Complete case review of child death.
Step 2 Complete CDR Case Report Online at
www.cdrdata.org.
Step 3 Send Report through Web, to servers at
MPHI
Step 4 Servers sort and store data and permit
access according to state requirements.
Step 5 State and local teams and national CDR
download standardized reports and/or download
data to create custom reports.
Step 6 Reports and data are used to advocate for
actions to prevent child deaths and to keep
children healthy, safe and protected.
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Standardized Reports National Center Level
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Standardized Reports State and Local Level

• Demographics (Ethnicity/Race and Age Group by
  Sex)
• Infant Death Information
• Manner and Cause of Death by Age Group
• Investigation Information
• Motor Vehicle and Other Transport Death
  Demographics
• Vehicle Type Involved in Incident and Position of
  Child
• Risk Factors of Young Drivers (Ages 14-21)
  Involved in the Crash
• Motor Vehicle Protective Measures
• Fire Death Demographics
• Factors Involved in Fire Deaths
• Drowning Death Demographics
• Factors Involved in Drowning Deaths
• Suffocation or Strangulation Death Demographics
• Weapon Death Demographics
• Safety Features and Storage of Firearms Used in
  Incident
• Owner and Use of Weapon at Time of Incident
• Poisoning Death Demographics
• Factors Involved in Poisoning Deaths

• Sleep-Related Death Demographics
• Sleep-Related Deaths by Cause
• Circumstances Involved in Sleep-Related Deaths
• Factors Involved in Sleep-Related Deaths
• Sleep-Related Deaths by Acts that Caused or
  Contributed to Death
• Acts of Omission/Commission Demographics
• Acts of Omission/Commission Child Abuse
  Information
• Acts of Omission/Commission Child Neglect
  Information
• Acts of Omission/Commission Assault Information
  (Not Child Abuse)
• Acts of Omission/Commission Suicide Information
• Deaths by Manner and Cause by Preventability
• Team Prevention Recommendations
• Review Team Process