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Public Health, Secondary Use of Health Data and PHRs

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health info seeking patterns. From systems to citizens alerting and. intervening within networks ... Adds larger retail dimension to public health business model ... – PowerPoint PPT presentation

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Title: Public Health, Secondary Use of Health Data and PHRs


1
Public Health, Secondary Use of Health Data and
PHRs
  • AHIC Consumer Empowerment Workgroup
  • 11 July 2007

Jason BonanderDirector Division of Knowledge
ManagementCDC National Center for Public
Health Informatics
2
Agenda
  • Empowered citizens and data sharing ecologies
  • Current public health data collection
  • Public health and PHRs
  • Summary

3
Empowered citizen-centric health data sharing
ecologies
Economy of personal health dataexchange
Adds to how public healthdevelops and delivers
interventions
Trading personal health Information for
knowledge
of .
Virtual / Micro Health Communities
Effectivenessmeasurements
Intervention / evaluation cyclequickens due to
data availability
Smart interventions
Sentinel / Vector Citizens
Self-assemblingbased on data sharing/health
info seeking patterns
From systems to citizens alerting andintervening
within networks
4
Public Health Data Collection
  • Public Health Service Act 42 USC 301 319
  • Spectrum of de-identified health data already
    available to/collected by public health
  • Nationally Notifiable Diseases (e.g. TB,
    Influenza, Hepatitus)
  • Biosurveillance (e.g. hospital discharge, chief
    complaint)
  • Surveys (e.g. Behavioral Risk Factor Surveillance
    System, National Health Interview Survey,
    National Health and Nutrition Examination Survey)

5
Public Healths Interest
  • PHRs are unique for public health
  • Some data to populate PHRs already available to
    public health in de-identified form through other
    means
  • Adds larger retail dimension to public health
    business model
  • To date, PHR-resident data largely clinical in
    nature
  • Opportunities
  • Leverage PHR-resident health data to promote
    health and wellness
  • Augment health monitoring and survey activities

6
PHR Data Use for Public Health
  • Leveraging PHR-resident health data to deliver
    context sensitive, credible, science-based health
    information
  • Health benchmarking using national representative
    public health data
  • Public health guidelines and recommendations
    contextually tied to PHR-resident data

7
PHR Data Model for Public Health
  • PHR-resident data largely focused on clinical and
    administrative and insurance claims data
  • Health monitoring/surveys and PHRs
  • Social/behavioral health monitoring modules
  • Augment/supplant existing health monitoring and
    survey methods/systems
  • Increases ability to tailor health promotion
    messages and increases data for research
  • Challenges
  • Representativeness
  • Sample size

8
In Summary
  • More ground to cover for what health data
    availability means to empower consumers
  • For public health
  • Important to consider structured, standards-based
    health monitoring/survey modules as part of PHR
    functionality
  • HL7 PHR functional model development activities
  • Research at CDCs Public Health Informatics
    Centers of Excellence
  • Important to consider public health interests as
    secondary health data use policy is developed
  • Collaborations with stable PHR vendors/providers
    to include health monitoring/survey modules as
    they are validated

9
Thank You
Jason BonanderDirector Division of Knowledge
ManagementCDC National Center for Public
Health Informatics
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