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National CIL Meeting


Nicole Meacle. National Advisory Group. DFI. Toni Gleeson. National Advisory Group. DPOC ... Derval Sheridan Communications Officer CIL, Carmichael House ... – PowerPoint PPT presentation

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Title: National CIL Meeting

National CIL Meeting
  • Saturday 23rd October 2004
  • Chief ONeills Hotel, Smithfield, Dublin 7.

Please Turn Off Your Mobile Phone!!
Profile of Presenters
Items for Progression
  • Training for Managers
  • Communications
  • Governance
  • The Independent Living Movement
  • National Advisory Group
  • Leader Forum

1. Training for Managers
Training for Managers
  • National CIL Meetings emphasised that
  • Leaders shoulder a lot of responsibility and very
    often feel isolated.
  • The practice of Independent Living is not as
    widespread as once believed.
  • There is an obvious need for us all to have
    specific training on the practice and development
    of Independent Living.

Certificate in Disability Studies
  • Run as part of the National University of Ireland
    Maynooths Outreach Program.
  • Academically oriented course, which addresses
    real Independent Living issues.
  • Course Content
  • Module 1 Integrated Study Skills and Students
  • Module 2 Models of Disability
  • Module 3 Equality and Advocacy
  • Module 4 Social Analysis and Environment

Training Sessions
  • First Session
  • June 22nd 24th , Kiltegan, Co. Wicklow
  • Topics Covered Independent Living in todays
    Ireland, local government structures, and
  • Second Session
  • October 5th 7th Kilcuan, Clarinbridge, Co.
  • Topics Covered Models of Disability
  • Session on Change Management included and

Training for Managers The Future
  • 14 Managers registered to complete the
  • Session 3 Kilcuan, Clarinbridge, 16th 18th
  • Two additional sessions will complete the course
    by early 2005.

2. Communications
  • New CIL website
  • Contains information on all CIL activities not
    just CIL Carmichael House.
  • Dedicated pages to the services provided by each
    individual CIL.
  • Manager only section
  • Allows for confidential communications between
    all registered CIL Managers.

CIL Website
  • Advocacy Service
  • On-site campaign facilities allow all CIL
    supporters to work together on various online
  • Through the use of an electronic mail users can
    automatically lobby their political
    representatives on current campaign issues.
  • E-Letter
  • Allows for rapid communication of CIL activity
    news to the wider disability sector.

Video Assisted Networking Project
  • Video-Assisted Networking Project for People with
    Significant Physical and Sensory Disabilities.
  • Conducted by CIL Carmichael House in partnership
    with Disability Federation of Ireland (DFI),
    Central Remedial Clinic (CRC), Comhairle, and
  • Purpose
  • To improve the ability of a group of people with
    significant physical and sensory disabilities to
    access useful information, services, advice, and
    social connections and to facilitate
    participation in their local communities through
    learning to use video networking technologies.

Video-Assisted Networking
  • Main outcomes for people with significant
  • Participation in Board and Committee meetings via
  • Increased access to information relating to
    events in their local community.
  • Increased opportunity to learn about technology
    and the significant positive impacts it can have
    on their lives.

Project Deliverables
  • 20 month project, incorporating 5 key stages.
  • Stage 1 Planning
  • Identification of suitable participants by
    Steering Group. Focus on Dublin, Donegal and
  • Stage 2 Placement and Testing of Equipment and
  • Buying and installing technology in homes of
    participants and CIL/CRC offices.
  • Stage 3 Networking Initial Trial.
  • Training sessions organised.

Project Deliverables
  • Stage 4 Networking Pilot
  • Proposal of programme and events distributed to
  • Stage 5 Evaluation and Review
  • Where do we go from here?

3. Governance
  • Independence a much valued concept by all CILs.
  • However all governing boards are expected to
    represent the public trust and ensure that the
    organisation carries out the purposes for which
    it was established in a responsible and
    accountable fashion.
  • Many individual board members may require support
    and guidance to ensure they are carrying out
    their duties in an appropriate fashion.

Roles and Responsibilities
  • Role of the Board
  • Set direction of organisation.
  • Support organisation activities.
  • Maintain organisation oversight.
  • Responsibilities of Individual Members
  • Duty of Care
  • Duty of Loyalty
  • Duty of Obedience

Governance Training Initiatives
  • Aiming to develop a partnership with Comhairle
    and the Health Board to run training programmes
    on the importance and implementation of good
    governance practices.
  • Target groups for these sessions will include
    members, Board of Directors, and Managers.
  • Timeframe
  • Workshops will run in December January in each
    region of Ireland.

4. Independent Living Movement
The Movement
  • 2003
  • Strasbourg Freedom Drive
  • EU Campaigns
  • Dail Eireann Campaign
  • Solidarity Rally
  • 2004
  • EU and Local Election Campaigns
  • Launch of Inside Im Dancing
  • Focus now on 2005
  • Pride Day celebration of all we have achieved.
    Will take place in the early half of 2005.
  • Strasbourg Mark 2

Strasbourg Mark 2
  • 2003 thirty-two Irish people made the long
    journey to Strasbourg in support of our
    Strasbourg Demands
  • 2005 Strasbourg Demands revisited and brought
    back to our political representatives.
  • Strasbourg reunion will take place on the 3rd of
    December with an agenda developed to support our
    new campaign.
  • Outcomes from this meeting will be brought back
    to all CILs, in the New Year, for further

5. National Advisory Group (NAG)
Second National CIL Meeting
  • Points Raised by CIL Representatives
  • We need terms of reference
  • Comprising? Health boards, Comhairle, DFI, ADM,
    PwDI, NDA it will need some binding agent
  • Positively This offers the opportunity to share
    the independent living philosophy with agencies
    and organisations
  • Personnel involved should be at a senior level,
    relevant to the work of CILs and be able to
    achieve a balance possibly at least
    mid-management level.
  • The CILs would advise as to need from committee
    members to relay to their organisations or
  • We need CIL friendly nominees who would be
  • Power balance focus on the needs of CIL and the
    independent living philosophy

Second National CIL Meeting contd.
  • Points Raised
  • How to communicate
  • Check back with the broader CIL community
  • How do CILs feed in?
  • Structures are necessary
  • Why are there only 3 CILs represented? How many
    members are appropriate for the committee?
  • There seems to be a bit of a Big Brother aspect
    to the committee
  • Are there different philosophies among the
    different CILs?
  • Is there really a need for this committee or will
    it be only a talking shop?

What Has Been Done to Date?
  • Originally
  • Saturday, February 7th 2004, Tullamore Court
  • 17th April 2004, Horse and Jockey, Tipperary
  • Followed by
  • National Advisory Group (NAG) Meeting, 19th
    August 2004
  • National Advisory Committee 30th September 2004
  • Terms of reference
  • This following is a synopsis of a draft document
    written as a result of the two meetings held on
    August 19th and September 30th, 2004. The
    document is unfinished and is currently awaiting
    input from you the stakeholders today.

Vision Statement
  • The Independent Living philosophy is a central
    NAG value, and will be central to our strategic
  • The ultimate purpose of the National Advisory
    Group (NAG) is to ensure that the support and
    resource needs of people with disabilities are

Purpose of the Group
  • To bring relevant people and organisations
    together in a co-ordinated and cohesive way to
    develop ideas and avoid replication of
  • To write a strategic plan.
  • To provide a forum for people with disabilities
    to highlight and share skills, experience and
    knowledge with other relevant groups and
  • To promote a shared understanding of CILs and the
    philosophy and ethos of Independent Living.
  • To develop a communications strategy around the
    work of the Group and the development of the
    strategic plan.
  • To champion the strategic plan to ensure it
    becomes operational.

Current Members of Interim Group
  • Ann Hegarty Meitheal
  • Susan Flynn CIL, Carmichael House
  • Michael Nestor CIL Offaly
  • Toni Gleeson DFI RSO Mid West region
  • Helen LaHert Comhairle, Social Policy Manager
  • Martin Naughton DFI RSO
  • Don Bailey Treasurer, CIL, Carmichael House
  • Kathleen McCann Action Research Development,
    Carmichael House
  • Derval Sheridan Communications Officer CIL,
    Carmichael House
  • Ann Marie Flanagan Disabled People of Clare
  • Michael Ryan Development Manager CIL Dublin 7,
    Blanchardstown Balbriggan) Shared membership
    between Michael Ryan and Melanie Plesker (Sligo
  • Interested Nicola Meacle Cork CIL and Alice
    Griffin DESSA
  • NOTE Meitheal has been contracted to work with
    the NAG group for the duration of the planning
    process. Ann Hegarty will write up the Strategic
    plan for the group.

  • Now that the progress of this group is presented
    to you here today, anyone wishing to join the
    group will be very welcome.
  • In order to keep numbers to a manageable level
    for our facilitator however, if more than one or
    two more people are interested, they will have to
    decide amongst themselves as to who will join the

Duration of Membership
  • At present it is envisaged that membership of the
    current group will last until February 26th,
    2005, when a final draft of the Strategic Plan is
    scheduled to be completed.
  • It is planned that on completion of the strategic
    plan, any sitting group member may come off the
    group and a new NAG group will be formed in order
    to implement the strategic plan.

  • Finally, following the completion of the
    strategic plan next February 26th 2005, when the
    purpose of this particular group is fulfilled,
    each group member going forward must ensure that
    they support the work of the strategic plan. Each
    must champion the plan and ensure that it becomes

  • All group members communicate with each other via
    an Email distribution list
  • Feedback mechanisms for CILs
  • Michael Ryan will circulate a synopsis of each
    meeting to the CIL managers. He will also give
    the group any manager feedback.
  • Derval Sheridan will electronically communicate
    information from the National CIL meeting on
    October 23rd, in order to ensure that any CILs
    not present, as well as any other interested
    parties will be fully informed. This will appear
    in the News section of the CIL website for the
    moment until the information becomes part of a
    process or structure. Derval will also look at
    linking into existing relevant parties by
    contributing to websites and/or newsletters of
    organisations such as FAS, Health Boards etc.
  • Michael Nestor will communicate the progress of
    the group to the chairs of all CILs. Due to
    commitments, Don Bailey sat in for Michael on the
    meeting of 30 Sept.

Where to From Here?
  • 5 6 November (two full days) 9 December (half
    day) January 21 22 (two full days) February
    10 (half day) Development of the Strategic Plan
  • 26 February, 2005 Final Draft
  • Go back to the stakeholders for ratification and
  • Redraft if necessary and move forward with plan.

Discussion Points
  • Does this feedback allay you fears?
  • Do you have any questions?
  • Would anyone here like to get involved in the
    interim process?

6. Leader Forum (N.L.F.)
A National Leader Forum
  • A National Leader Forum is vital to the progress
    of Independent Living for all Leaders throughout
    Ireland, working to give a voice to Leaders
    thinking around the country, to ensure each user
    of PA services has a say in the delivery of and
    quality of service provision, to develop a solid
    lobby group and ensure the barriers of isolation
    faced by individual users are broken down

Desired Features, Activities, and Roles of N.L.F.
  • Promoting the philosophy of Independent Living.
  • Communications
  • Standards and Guidelines
  • Education, training, development and support.
  • Equality
  • Co-ordination
  • Campaigning
  • Lobbying
  • Ownership
  • Accountability
  • Resources

Promoting the Philosophy of Independent Living
  • Provides a powerful, united national voice.
  • Voice of Independent Living inputs into service.
  • Raise public awareness.
  • Develops the philosophy of Independent Living.
  • Provides an opportunity for leaders to think out
    the relationship between recommendations made and
    the demand for direct payments option.

  • Establish good communication methods.
  • Provides a listening forum.
  • Provides an opportunity for networking.
  • Utilises numerous communication channels.
  • Provides for a buddy system.
  • Improves communications between service providers
    and service users.

Standards and Guidelines
  • Sets out standards, strategies and structures for
    nationwide PA services.
  • Provides templates, models, and codes of
  • Creates framework document for leader services.
  • Increases Leader role in monitoring and
  • Draws up job descriptions.
  • Provides tips on accessing services and
  • Provides guidance on the industrial relations
    implications of managerial responsibility.

Education, Training, Development, and Support
  • Identifies and addresses barriers to
    participation for Leaders.
  • Develops ongoing training for Leaders.
  • Provides for peer monitoring and development.
  • Identifies need for Leader involvement in PA
  • Focuses on sharing knowledge, skills, and
  • Tailors training to individual needs.
  • Recognises need for Leaders to have access to
  • Focuses on building confidence and developing

  • Recognises and embraces diversity among people
    with disabilities.
  • Equality-proofing
  • Recognises that the NLF needs to include Leaders
    outside of the usual participants.

  • Forum for information sharing.
  • Possible role for National Co-ordinator
  • Requires NLF to participate in agenda setting for
    Leaders and wider disability sector.
  • Identifies and articulates needs.
  • Requires a National Co-ordinator in each CIL.
  • Advocates setting up both local and regional
  • Peer support networks.

Campaigning and Lobbying
  • Lobby for a rights based approach and the
    provision of a mainstreamed PA service throughout
    the country.
  • Recognises constraints placed upon the service by
  • Highlights the fact that the first point in
    service provision should be the quality of life.

Ownership and Accountability
  • Need to be accountable and independent from
    service providers.
  • Must be given a mandate from Leaders and
    Independent Living Movement.
  • Need for appropriate ownership and control.

  • Must have adequate administrative and financial
  • Needs the support of a community development
  • Requires the support of all Leaders and the wider
    Independent Living Movement.

Discussion Points
  • Commitment from Leaders.
  • Dual Mandate issue.
  • Ownership.
  • Top-down or Bottom-up?
  • Membership and Structure.
  • NLF and the National Advisory Group.

  • Evaluation Survey
  • Survey will be distributed to your for the
    purposes of evaluating the progress made to date
    on ILCS reintegration.
  • Will take the form of a postal questionnaire.
  • Aim to discover how you, the stakeholders, feel
    the process has progressed and how it can be
    developed in 2005.

  • Requests for information
  • Derval Sheridan (
  • Contact details
  • Center for Independent Living,
  • Carmichael House,
  • North Brunswick Street,
  • Dublin 7.
  • Phone 01 8730455/8730986
  • Fax 01 8730998