fear, greed, consequences

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fear, greed, consequencesand our privacy
mark frissesacramento, 2008
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current status
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federal government spent out
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(No Transcript)
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california spent out
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3-5 billion deficit
http//pubsys.sacbee.com/111/story/1296158.html
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15 billion to 18 billion budget shortfall
through June 2010
http//pubsys.sacbee.com/111/story/1296158.html
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1.1 b less in 1Q revenue
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5b bond sale forestalled that government bail-out
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sacramento bee spent out
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how? why? fear and greed?
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maybe we just bought too much
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maybe no one was paying attention
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maybe weve lost faith in one another
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you and me spent out
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salary from 25,740 to 30,702
2000 - 2007
19.3 increase
http//www.sacbee.com/latest/story/1316640.html
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2000-2007 family premiums 6,227 to 12,194
2000 - 2007
95.8 increase
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salaries 19.3
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premiums 95.8
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more than 6 million uninsured
http//www.healthpolicy.ucla.edu/pubs/publication.
asp?pubID64
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more than half more than a year
http//www.healthpolicy.ucla.edu/pubs/publication.
asp?pubID64
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summarizing part 1.
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part 2 its all about me
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who am I anyway?
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i am my emails
mark.frisse_at_vanderbilt.edu
mark.frisse_at_gmail.com
mfrisse_at_yahoo.com
mark.frisse_at_aol.com
mark_at_mark.frisse.com
mark_at_mfrisse.com
are.you_at_reallyreadingthis.com?
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i am my addresses
Highland, IL
Clayton, MO
St. Louis, MO
South Bend, IN
Nashville, TN
Los Altos, CA
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i am my schools
St. Pauls
Washington U
Washington U
Notre Dame
Washington U
Stanford
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i am my employers
Freight Salvage
Washington U
Kayser Drugs
Highland Machine
Express Scripts
First Consulting
Vanderbilt U
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i am my social networks
markfrisse.com
mySpace
FaceBook
Plaxo
picasa
LinkedIn
.mac
eGroups
willow mail
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i am my web hits
vanderbilt.edu
blogspot.com
cacm.org
governmenthealthIT.com
ahima.org
markfrisse.com/policy
amia.org
tennessean.com
lotsofbloggers
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i am my credit reports
equifax.com
creditcheck.com
bankcheck.com
private-eye.com
ratings.com
Madeitup.com
thisonetoo.com
creditratings.com
louse.org
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i am my diagnostic codes
96150
90801
992112
g8446
99202
90808
g0108
99242
90805
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my identity the sum of the above
ahima.org
creditcheck.com
96150
equifax.com
St. Pauls
90801
markfrisse.com
bankcheck.com
Madeitup.com
Washington U
Highland, IL
992112
mySpace
Washington U
Clayton, MO
vanderbilt.edu
mark.frisse_at_vanderbilt.edu
ratings.com
Notre Dame
St. Louis, MO
private-eye.com
99202
mark.frisse_at_gmail.com
blogspot.com
Plaxo
cacm.org
mfrisse_at_yahoo.com
South Bend, IN
picasa
Nashville, TN
FaceBook
g8446
governmenthealthIT.com
creditratings.com
Washington U
g0108
Los Altos, CA
Stanford
LinkedIn
90808
thisonetoo.com
99242
mark_at_mark.frisse.com
mark_at_mfrisse.com
.mac
eGroups
90805
louse.org
tennessean.com
markfrisse.com/policy
amia.org
willow mail
mark.frisse_at_aol.com
are.you_at_reallyreadingthis.com?
lotsofbloggers
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but they claim to de-identify me
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at least paper is secure
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even those in need cant find it..
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if you copy it, i may never know
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the digital world is different
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infinite perfect replicas are possible
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infinite is a scary word
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and you can send them anywhere
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mortgage-backed securities
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http//www.answers.com/topic/mortgage-backed-secur
ity
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de-identified data sustainability
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http//www.research.ibm.com/journal/sj/461/gold3.j
pg
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de-identified data banks?? mortgage-backed
securities
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so whats my point?
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my anonymity is context-sensitive
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my de-identified data are for sale
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I have little privacy
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i cannot get off the grid
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part 3 -
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what does this mean for you?
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policy do you have the time?
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enforcement are you capable?
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employment will you have your job?
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so, forgive me, but..
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talk away, but is the game over?
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of course not!
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we need to go back to foundations
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part 3
part 4V
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why is our privacy such a big thing?
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can we preserve our own privacy?
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can we preserve our collective privacy?
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losing our privacy can diminishes us
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losing our privacy may destroy us
but..
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retaining our privacy may kill us
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we cannot anticipate ever situation
and..
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complexity often make things worse
so..
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i would like to propose some rules.
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a rule
everyone plays by the same rules
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a rule
encrypt everything
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a rule
treat medical information like media
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a rule
everyone must understand consent
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a rule
simplify legislation
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a rule
do not allow what you dont understand
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a rule
be totally and absolutely transparent
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a rule
make audits really useful
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a rule
prove you can enforce laws you make
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a rule
re-think covered entity
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a rule
certify functions, not PHRs, RHIOs
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finally.some conclusions
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fear, greed, consequenceswhat we do to one
another
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fear, greed, consequenceshas no place in my
health record
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fear, greed, consequencesall good solutions
require trust
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its time to restore trust to our lives
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lets talk about it
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lets make it better