Educating Health Professionals About Disability and Prevention Issues from the Perspective of Indivi

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Educating Health Professionals About Disability
and Prevention Issues from the Perspective of
Individuals with Spinal Cord Injury The
Consumer-Professional Partnership Program (CPPP)

• Thilo Kroll, PhD 1
• Brenda Gilmore, BFA 1
• Suzanne L. Groah, MD MSPH 2
• Matthew Elrod, PT, MEd 2
• Melinda T. Neri, BA 1
• Steve Towle 3
• 1 NRH Center for Health Disability Research,
  Washington, DC
• 2 National Rehabilitation Hospital, Washington,
  DC
• 3 SCI Network, Rockville, MD

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Building the rationale for consumer involvement
in practitioner education
Scientific literature
Consumer-Professional Partnership Program CPPP
Consumer preference
Clinical experience
Similar programs
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RRTC on SCI funded by the U.S. Department of
Education, NIDRR, H133B031114
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• I think that within the medical educationand of
  course, physicians are required to have CMEs all
  the time. You can not renew your license without
  CMEs. RNs are required to have CMEs. There
  needs to be an educational component, and I
  really believe that disabled people need to go in
  and teach the healthcare people what they simply
  do not know. They dont know, and they are so
  busy and so rushed that they wont stop and learn
  it. It needs to be part of their educational
  component, somewhere in there.

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• Wouldnt you say its the patients
  responsibility to call the doctor and check to
  see if that doctor can make those accommodations,
  and to make him aware of the issues the patient
  has? Youre a patient youre a consumer of the
  doctors services. I see it as being the
  patients responsibility to be sure that the
  doctor has information on my disability and my
  issues.

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Overall Goal of the Program

• To promote consumer influence in the education of
  health care professionals

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Specific Goals

• To enhance disability-and SCI-specific knowledge
  among health care professionals
• To provide opportunities for consumers with SCI
  to impact the education and training of health
  care professionals
• To raise awareness for consumer-defined
  strategies in the prevention of secondary
  conditions and health promotion

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Implementation of the CPPP for Health
Professionals in SCI

• Phase 1 Development and pilot-testing
• testing during a pilot-phase as part of NRHs
  residency program in Physical Medicine and
  Rehabilitation one consumer-driven education
  session included in the PMR Residency training
  program at NRH. Feedback from residents
• Phase 2 In-house staff training, Implementation
  at local area medical and physical therapy CE
  programs

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Implementation (continued)

• Phase 3 Curriculum expansion
• threefold extension (a) to local area
  universities and colleges will begin during year
  2/3. 2 to 3 hour time slot. Howard University,
  Georgetown University, Marymount University, and
  George Washington University other colleges, (b)
  to other medical and allied health science
  disciplines, and (c) to include additional topics
  that could be covered over more than 2 or 3 hours
• Phase 4 Development of the Virtual CPPP
• web videos of teaching sessions, videotaped
  training materials, PowerPoint self-education
  programs, and a whiteboard, QA and chat
  infrastructure to communicate with educators and
  trainers of the local CPPP. Education materials
  will also be available from this web site. The
  virtual CPPP will bring the curriculum to
  educators, health care providers, consumers, and
  other interested parties

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SCI Life Educator Concept

• Individual with SCI
• Human link among educators, students, clinicians,
  consumers, and researchers
• Specifically trained and experienced in the role
  as co- and principal educator of health care
  professionals

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CPPP Education 4 Modules

• Module 1 Disability Awareness and Communication
• Module 2 Prevention of Secondary Conditions
• Module 3 Physical Activity and Exercise
• Module 4 Presentation Skills

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Module 1 Disability awareness and communication
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Module 1 Disability awareness and communication
(cont.)

• Introduction of the social model of disability or
  looking beyond the body
• General barriers for people with disability in
  society
• Particular challenges in the provider office
  (separate information for different settings
  i.e. hospital, specialty physician, physical
  therapist, other)
• Communication issues

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Module 2 Prevention of Secondary Conditions

• SCI quick facts What is SCI? Rehabilitation
  issues
• Common medical complications and secondary
  conditions after SCI
• Prevention strategies peer-modelled
  demonstrations of prevention techniques
• Use of checklists

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Module 3 Physical Activity and Exercise

• The benefits of an active life style and exercise
• What to do and what not to do?
• Development of exercise plans (Planning tools)
• Demonstration of exercises
• Resources

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Module 4 Presentation skills

• Successful presenting
• Follow-up
• Examples
• QA elements
• Practical demonstrations
• Use of audiovisual material and equipment

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CPPP Evaluation Preliminary results Who and Why?
Reason for attendance (in )
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Modules taught (n60 in )
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CPPP Lecture Evaluation (n60 in in )
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How much do you think you have learned in this
lecture compared with other lectures you have
taken this year (n33 in )
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How well has this lecture met your expectations
(n33 in )
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Strongest features

• Real life examples
• Hearing about first hand consumer experiences
• Ability to obtain feedback from a consumer with
  SCI

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Future Expansion of the CPPP

• Settings (e.g. primary education, continuing
  education, workshops)
• Professions (e.g. family practitioners,
  vocational rehabilitation counselors)
• Medical Conditions (e.g. cancer, stroke)
• Content modules (e.g. employment)
• Medium (e.g. Internet-based)

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Virtual CPPP

• Future development of Internet-based Training
  modules for health care professionals and
  consumers focused on disability awareness and
  communication, prevention of secondary
  conditions, physical activity and exercise
• Resource library
• Multimedia content

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Resources Internet

• Find more CPPP information and training resources
  and continuous updates at our website
• www.sci-health.org/cppp