National Dementia Strategy

1
National Dementia Strategy

• Listening and Learning
• Event
• Date

2
Policy Commitment

• To develop a national dementia strategy and
  implementation plan by October 2008 with the
  following themes
• Improving awareness
• Early diagnosis and intervention
• Improving the quality of care for people with
  dementia

3
Rationale

• Dementia is one of the main causes of disability
• It affects adults of all ages and includes people
  with learning disabilities
• There will be 750,000 people with dementia by
  2020
• Annual overall economic cost is c14.3b
• Hidden economic contribution of unpaid carers is
  c5.2b
• A third of people with dementia have no formal
  diagnosis

4
Dementia UK Results
The consensus estimates of the population
prevalence () of late onset dementia
5
Dementia UK Results
The consensus estimates of the population
prevalence () of late onset dementia
6
Dementia UK Results
Numbers of people with late onset dementia by age
group
700,000 people now
700,000 families
1 million by 2025
7
Dementia UK Results
3
2
2
4
10
62
17
8
Dementia UK Results
Where are people with dementia?
424k in the community (64) 244k in care homes
(36) Proportion in care rises with age
9
Dementia UK
37k
31k
26k
17k
10
Dementia UK
Total cost of dementia in the UK 17 billion
per annum 25,000 per person with dementia
11
Dementia UK Results
Proportion of estimated number of people with AD
in Europe treated with anti-dementia drugs 2004
12
Dementia UK Results
Variation in services for people with dementia
a case study of prescriptions per year per person
with dementia 2005-6
13
Improving awareness

• Will focus on
• Developing better understanding about dementia by
  the public and professionals
• Providing better information on the condition and
  how to get help
• Tackling the stigma and misunderstandings about
  dementia

14
Early diagnosis and intervention

• Will focus on
• ensuring effective early assessment and diagnosis
  services are available nationwide
• addressing whether diagnosis is made in primary
  or secondary care

15
Improving the quality of dementia care (1)

• Will focus on a whole systems approach to
  improving care pathways by
• Improving emergency care so that people with
  dementia are not admitted to hospital
  unnecessarily because of a lack of alternative
  appropriate services
• Improving acute hospital care so that people with
  dementia receive appropriate care and treatment
• Improving discharge planning so that people with
  dementia have access to intermediate care and
  other appropriate services to enable early
  discharge from hospital

16
Improving the quality of dementia care (2)

• Improving knowledge and skills in the workforce
• Improving the quality and flexibility of home
  support services to give people with dementia
  real alternatives to residential care
• Improving the quality of residential care for
  those people who really need it

17
Whats happened so far?

• Department of Health working group overseeing the
  project, reporting to a Programme Board
• External reference group chaired by Neil Hunt
  with three themed groups
• NHS Chief Executive gave evidence to the Public
  Accounts Committee on the NAO report on dementia
• Toolkit on strengthening user involvement
  published
• Engagement and listening events currently taking
  place
• Formal consultation planned for the summer

18
What do we want from you?

• Your ideas about what needs to be in the strategy
  in the three themes
• Your commitment to helping to implement the
  strategy when it is published next year
• Your ideas about what needs to happen in your
  area to improve dementia care

19
Some questions

• Who/which organisations need to show leadership?
• Which organisations need to be involved for each
  theme?

20

• What are the early wins for each theme?
• What are the key outcomes for each theme?

21

• What needs to happen in this region to achieve
  these outcomes?
• How do we make a start?

22
What happens next?

• We will put together all the information from
  today and send it to the DH working group so they
  can include it in the draft strategy
• We will keep in touch to let you know what is
  happening
• There will be formal consultation events when the
  draft strategy is published in the summer

23
Contact details

• Regional CSIP lead e-mail
• Mobile number
• Local Alzheimers Society contact
• Jane.gilliard_at_alzheimers.org.uk
• (secretariat for ERG)