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Session 4 What is Social Informatics and why does it matter? I

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The government of Iceland agreed to create a national database containing DNA ... Tapping Iceland's Genetic Jackpot' The Sunday Star-Ledger. December 17, 2000, pp. 1 ... – PowerPoint PPT presentation

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Title: Session 4 What is Social Informatics and why does it matter? I


1
Session 4What is Social Informatics and why does
it matter? I
  • I cant understand why people are frightened of
    new ideas. Im frightened of the old ones
  • John Cage, US Composer, 1912-1995

2
Cognitive Authority
Church vs State Death vs Life Plants vs
Animals Parts vs Persons Julius Lekics vs ITI103
class
Nature vs Nurture God vs Scientists Genes vs
Environment Technically Mastered Humans vs Nature
3
Review of Learning
  • Technological Determinism vs Social Construction
    of Technology
  • A kind of invisible hand guides technology ever
    onward and upward, using individuals and
    organizations as vessels for its purposes but
    guided by a sort of divine plan for bringing the
    greatest good to the greatest number. Purcell,
    Carroll (1994) White Heat. London BBC, p. p. 38
  • Interaction between society and technology is
    primarily seen as one in which social conditions
    are the primary impetus for the convergence of
    existing technologies and their use.

4
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5
  • Session Objectives
  • To examine a case study of genetics research
    using IT, and to identify human issues involved
  • To begin to understand the nature of the field of
    study labeled Social Informatics
  • To identify key areas of the social impacts of
    Information Technology

6
ControversyKari Stefansson and the Genetic
Database Controversy
  • http//www.mannvernd.is/english/articles/kmp_starl
    edger.html

7
  • Icelandic company focused on genetic research,
    disease and drug development
  • Founded by neurologist Kari Stefansson
  • Went public in July 2000
  • Has a pledge for up to 200 million from
    Hoffmann-LaRoche
  • Genetic tracking of 25 specific diseases

8
deCODE geneticshttp//www.decode.com/
  • Their mission is
  • to perform genetic and medical research to
    identify disease genes, and drug and diagnostic
    targets
  • to use modern informatics technology to discover
    facts about health and disease through
    data-mining
  • to use this knowledge to develop and sell
    products and services for the international
    healthcare industry

9
Kari Stefansson, M.D.
  • Stefansson has a
  • grand vision for Iceland and the people of
    Iceland.
  • He plans to crack the genetic mysteries of
    common diseases, from cancer to hypertension.

10
Kari Stefansson On deCODE Genetics, Inc.
  • I look at this company first and foremost as
    company of Icelanders for
    Icelanders. And the company benefit by having an
    opportunity to do extremely good science and
    contributing to curing diseases
  • Economically we will benefit by contracting with
    large pharmaceutical companies that are
    eventually going to develop the medications for
    the treatment that will be derived from the
    discovery of these genes.

11
The Project The Deal
  • The government of Iceland agreed to create a
    national database containing DNA samples,
    genealogical histories, and medical records of
    all Icelanders to be operated by a private
    company.
  • deCODE Genetics, Inc. will pay the government of
    Iceland 12 million per year for 12 years for
    exclusive rights to the database.

12
The Population Why Iceland?
  • Geographically isolated, 100 literacy
  • Relatively homogeneous population genetically
  • Availability of large genealogical database
  • National health care and healthy population
  • Pro-government and pro-technology population

13
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14
Iceland Facts
  • Area 39, 769 square miles
  • Capital Reykjavik (population 164,000)
  • Religion Evangelical Lutheran 95, Other
    Protestant denomination 3, Roman Catholic 1 and
    some followers of Asatru, ancient Norse religion
  • Government Democratic Republic
  • Ethnic Composition Homogeneous mixture of
    descendents of Norwegians and Celts
  • Major Industries Fishing, aquaculture, aluminum
    smelting geothermal power

15
The Problem
  • deCODE Genetics, Inc. sells genetic information
    to insurance companies and offers DNA supplies to
    drug companies in exchange for partnerships.

16
The Issues
  • POSITIVE
  • Possibility of helping humanity to conquer
    disease
  • Development of high-level bio-technology jobs in
    a weak economy
  • NEGATIVE
  • Government selling the privacy of its citizens
  • Presumed rather than informed consent
  • Possibility of genetic discrimination

17
The Opposition
Einar Arnason,Population Geneticist Questions
the genetic homogeneity of Icelanders. They
could just as well do their stuff in Switzerland
or New Jersey
  • Skuli Sigurdson, Historian of Science
  • Im not against healing the world. Im against
    unregulated research, against megalomania.

18
Back to the future with Bill Joy
  • Limit development of technologies that are too
    dangerous by limiting our pursuit of certain
    kinds of knowledge
  • Immortality is certainly not the only possible
    utopian dream

19
QUESTIONS
  • How do we weigh the right to individual privacy
    vs. the possibility of improving life for all
    people?
  • Do insurance companies have an obligation / right
    to discriminate against those who probably carry
    genetic defects?
  • MacPherson, Kitta. Tapping Icelands Genetic
    Jackpot The Sunday Star-Ledger
  • December 17, 2000, pp. 1

20
INFORMATICS
  • The study of the properties of information, as
    well as the application of technology to the
    organization, storage, retrieval and
    dissemination of information
  • The structure of knowledge and its embodiment in
    information-handling systems

21
SOCIAL INFORMATICS
  • Identifies a body of research that examines the
    social aspects of computerization.
  • The interdisciplinary study of the design, uses
    and consequences of information technologies that
    takes into account their interaction with
    institutional and cultural contexts." (Kling)

22
SOCIAL INFORMATICS
  • Emerged 1996 scholars meeting at UCLA examining
    social aspects of digital libraries
  • Diffuse across many fields of study
  • Multiplicity of specialist languages
  • Major concern rhetoric, over-simplification,
    anecdotal claims of impact of technology on
    social productivity and development
  • Research orientation

23
Rhetoric or Reality
24
Apple computers From the days when paper
replaced slates in schools, our children have
been flag bearers in the onward march of
technology. Today theyre at the forefront of
the computer revolution and taking it all in
their stride
  • Apple Computers

25
Sony
  • "The Internet is a kind of power shift. Now the
    consumer has more power than the company"
  • Nobuyuki Idei, Chief Executive

26
SHAPING THE INTERNET AGE
BILL GATES
  • Today, the Internet is far from obscure--it's the
    center of attention for businesses, governments
    and individuals around the world. It has spawned
    entirely new industries, transformed existing
    ones, and become a global cultural phenomenon.
    We are only at the dawn of the Internet Age.

Bill Gates
27
Millions log off internet to join the real
worldVirtual Society (Oxford University)
  • Internet might not be as persuasive and
    influential as previously predicted
  • Many of social claims associated with the
    Internet were exaggerated by industry to promote
    their products
  • Many teenagers using Internet less now than
    previously

28
Some research evidence Kiesler et al 1999
  • Internet is too hard for ordinary people
  • Evidence
  • High help desk call rates
  • Difficulties with installations
  • Software configurations
  • Faulty software
  • Inexperience with navigation
  • Children becoming critical on-site technical
    consultants for their parents

29
New Kids on the Box(Todd McNicholas, 1996)
  • School students
  • Difficulty in defining search terms, creating
    search strings
  • Difficulty in interrogating WWW and effectively
    using search engines
  • Difficulty in establishing quality, authority of
    information
  • Productivity issues time, cost, constructing
    answers

30
Are computers stealing our brains?
  • Computer-mad generation has a memory crash
  • Cherry Norton and Adam Nathan

31
Computer-mad generation has a memory crash
  • Japanese study of 20-30yr olds suffering memory
    loss because of reliance on computer technology
  • diminished use of the brain to work out problems
    and inflict "information overload" that makes it
    difficult to distinguish between important and
    unimportant facts
  • "Young people today are becoming stupid."

32
  • Research Vs Rhetoric
  • in the Work Place

33
Research Vs Rhetoric in the Work Place
  • Paperless office is as much an utopian ideal as
    ever paper consumption 4 times its level of 10
    years ago
  • Email not supplanting but adding to communication
    overload
  • Reduction of productivity gains that some would
    expect to routinely result from computerization
  • Email has increased rather than reduced the
    number of face-to-face meetings since meetings
    are now held to resolve disputes emerging from
    electronic communication

34
Research Vs Rhetoric in the Work Place
  • Many forms of ICTs, such as groupware,
    instructional computing, and manufacturing
    control systems, are often abandoned or reshaped
    to be used in new ways
  • Consequences of ICT use can appear
    contradictory because they can differ across
    the various situations in which the ICTs are
    deployed
  • Many business firms using WWW sites to enhance
    markets and increase sales are losing significant
    amounts of money on their efforts at electronic
    commerce
  • http//virtualsociety.sbs.ox.ac.uk/intro.htm

35
Rhetoric or Reality
36
Misguided Assumptions
  • ICTs have direct effects upon organizations and
    social life
  • these effects depend primarily upon the ICT's
    information processing features and
  • the information processing features of new ICTs
    are so powerful relative to preexisting
    technologies that they effectively determine how
    people will use them and with what consequences.

37
Failed Predictions
  • One reason that many predictions about the social
    effects of specific ICT consequences have proven
    inaccurate is that they are based on
    oversimplified conceptual models of specific
    kinds of ICTs or of the nature of the
    relationship between technology and social change

38
Direct Effects Theories
  • theory of the causal powers that computerized
    systems can exert upon individuals, groups,
    organizations, institutions, social networks,
    social worlds, and other social entities
  • Eg use of computer-assisted information
    processing and communication technologies would
    lead to elimination of human nodes in the
    information processing network.

39
The Productivity Paradox
  • current strategies of computerization do not
    readily produce expected economic and social
    benefits in a vast number of cases. In
    particular, technology alone, even good
    technology alone, is not sufficient to create
    social or economic value.
  • Studies and theorizes about the ways that
    effective computerization depends upon close
    attention to workplace organization and
    practices. (Kling)

40
The Productivity Paradox
  • Many organizations develop systems in ways that
    lead to a large fraction of implementation
    failures
  • Few organizations design systems that effectively
    facilitate peoples work
  • We significantly underestimate how much skilled
    work is required to extract value from
    computerized systems
  • Taken together, these observations suggest that
    many organizations lose potential value from the
    ways that they computerize. (Kling)

41
The Question of Access
  • Technological Access
  • Physical availability of computers, software and
    cable
  • Assumption of ease of access and ease of use
  • Add it on
  • Social Access
  • Human know-how
  • Technical skills
  • Understand how it enhances professional practice
    and social access
  • Ability of people to actually use

42
  • The Technological Determinists say
  • The Web means that the public will get better
    information than ever before.
  • The Social Informaticists ask
  • When will the Web enable the public to locate
    better information? Under what conditions? Who?
    For what?
  • For example Are people seeking information to
    help them make a better choice of doctors, and
    then placing more trust in that doctor. Or are
    people seeking alternatives to doctor-mediated
    medical care?

43
Social Informatics ResearchThree Orientations
  • Normative explicit goal of influencing practice
    by providing empirical evidence illustrating the
    varied outcomes that occur as people work with
    ICTs in a wide range of organizational and social
    contexts
  • Analytical develops concepts and theories to
    help generalize from understanding of ICT use in
    a few particular settings to other ICT uses in
    other settings
  • Critical examining ICTs from perspectives that
    do not automatically and uncritically accept the
    goals and beliefs of the groups that commission,
    design, or implement specific ICTs.

44
SOCIAL INFORMATICS
  • Research is empirically focused
  • Problem focused
  • Analytical and interpretive
  • Contextual

45
SOCIAL
CONTEXT OF

INFORMATION
TECHNOLOGY
46
  • social context of information technology
    development and use plays significant role in
    influencing ways that people use information
    technologies, and thus influences their
    consequences for work, organizations, and other
    social relationships.
  • Social context does not refer to some abstracted
    cloud that hovers above people and information
    technology it refers to a specific matrix of
    social relationships

47
Context
  • ICTs do not exist in social or technological
    isolation. Their cultural and institutional
    contexts influence the ways in which they are
    developed, the kinds of workable configurations
    that are proposed, how they are implemented and
    used, and the range of consequences that occur
    for organizations and other social groupings.

48
Social Context informed by
  • Human-Computer Interaction
  • Information Seeking Behavior
  • Communication Processes
  • Human Information Processing
  • Attitudes, Values, Beliefs
  • Attitudes to Technology
  • Organizational Behavior

49
Goal of Social Informatics
  • To understand how peoples behavior,
    interactions, relationships, values and attitudes
    interact with IT.
  • To develop empirically-grounded concepts that
    help us to predict (or at least understand)
    variations in the ways that people and groups use
    information technologies.

50
Social Context
  • Not to treat all or most social behavior as
    separable from the technologies.
  • The concept of computerized information systems
    as social technical systems

51
Socio-Technical Systems
  • Complex interdependent systems comprised of
  •   people in various roles and relationships with
    each other and with other system elements
  • hardware (computer mainframes, workstations,
    peripherals, telecommunications equipment)
  • software (operating systems, utilities and
    application programs)

52
Socio-Technical Systems
  •   techniques (e.g. management approaches, voting
    schemes)
  • support resources (training/support/help)
  •   information structures (content and content
    providers, rules/norms/regulations, such as those
    that authorize people to use systems and
    information in specific ways, access controls

53
What does this mean for professional practice?
  • Working in a design studio far away from the
    people who will use a specific system VS
    understanding which features / tradeoffs most
    appeal to the people who are most likely to use
    the system
  • Focus groups, user participation in design teams
  • Understanding the contextual richness of work
    environment and culture of workplace, and how
    technology might empower this

54
Social design of ICT
  • Shadowing managers and workers to determine
    likely uses of the planned system
  • Participating in system design efforts to ensure
    the system fits the organizational structure and
    culture
  • Facilitating user participation in the design
    activity
  • Assessing current work practices / creating new
    ones
  • Planning implementation, including education and
    training
  • Observing system in use and making appropriate
    changes.

55
Why Social Informatics Matters
  • Develop reliable knowledge about IT and social
    change based on systematic empirical research
  • Inform public policy debates, design, use,
    configuration, education and training
  • Intelligently address misplaced hopes about IT
  • Understand social relations eg. trust, power,
    transformation, etc
  • Adds value performance / outcomes of work place

56
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57
THINK and DISCUSS
  • Social Informatics examines the social aspects of
    computerization. Some social commentators claim
    that the Internet is enabling a great status
    upheaval and a subversion of all manner of social
    norms. What is your view on this claim? This
    view comes across in a story published in The New
    York Times Magazine on July 15th, 2001, titled
    Faking it about a teenage boy named Marcus
    Arnold who posed as a legal expert on the web
    site AskMe, and who was rated as the No. 1
    legal expert on that website. Read and comment!!

58
READ for next class
  • Read Andrew Feenbergs paper From Essentialism
    to Constructivism Philosophy of Technology at
    the Crossroads
  • http//www-rohan.sdsu.edu/faculty/feenberg/talk4.h
    tml
  •  
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