Title: Mid Trent Cancer Network Information Prescriptions the story so far
1Mid Trent Cancer NetworkInformation
Prescriptions the story so far
- Elaine Wilson Nurse Director/Project Lead
- Sheila Williamson Project Manager
2Why are we here?
- Mid Trent Cancer Network Information
Prescriptions Pilot - To share with you the work that we are doing
- To get your views
- To explore opportunities for developing
Information Prescriptions in primary care
3Origins of the pilot
- Our health, our care, our say (DH, 2006) outlined
a vision that by December 2008 - Everyone with a long term condition or social
care need and their carers would be given an
information prescription - Information prescriptions will become a routine
part of care, just like prescriptions for
medicine
4Information Prescriptions Pilot
- Department of Health IP pilots
- 20 pilot sites nationally covering
- Cancer
- Mental Health
- Long term conditions (asthma, diabetes, COPD)
- Arthritis,
- Parkinsons Disease
- Cystic Fibrosis
- Sight loss
- Deaf and hard of hearing
- Development started in March 2007 and the first
prescriptions issued in July2007
5Where we started from
- With a blank sheet of
- paper and a lot of questions!
- What is an information prescription?
- How is it different to what we do already?
- Why is it called a prescription?
- Is this just another DH must do?
- How can this make a difference?
- How will we ever get clinicians on board with
this?
6What is an information prescription (IP)?
- Cancerbackup definition
- A source of personalised information that lays
out clearly - and simply the salient points about an
individuals - consultation with a healthcare professional about
their - diagnosis, treatment and/or care plan and points
the way - to other relevant sources of high quality
information and - support. It is designed to improve the dialogue
between - patients and health professionals and enhance the
valuable - face-to-face time within consultations.
7How we choose the clinical areas for the pilot?
- Previous work carried out in developing
information pathways for 3 clinical conditions - Head and neck cancers
- Lung cancers
- Gynaecological cancers
8The approach?
- Engagement - a key feature
- Steering group chaired
- by a carer and with patient
- members
- Stakeholder event
- 10 guiding messages
- Gaining ownership
- Involvement of clinical teams
9The approach?
- Involvement of voluntary sector
- Information centres
- Cancerbackup
- Macmillan Cancer Support
- Marie Curie Cancer Care
- Continuous improvement approach
- Lets have a go!
- We wont get it right first time!
- Small step changes
- What we end up with may be
- different from what we start with
10The Process for Delivering IPs?
11What progress hasbeen made?
- There is clear ownership of project within health
communities and the clinical teams - The template and operational policy have been
developed and agreed across - 3 health communities
- 3 clinical pathways
- 3 Acute Hospital Trusts covering 7 hospital sites
12What progress has been made?
- 99 IPs issued to date
- IPs being issued at all points on the pathways
- IP template close to final format
- 15 out of 18 CNSs now issuing IPs
- Some medical consultants now involved in issuing
IPs - Interest from other cancer pathways
- Interest from SHA Long Term Conditions group
13Evaluation at two levels
- Local evaluation
- Focus groups with CNSs
- Discovery interviews with patients and carers
- National evaluation
- GfKNoP questionnaires to patients/carers and
people issuing IPs - Economic analysis York University
14Benefits of IPs for patients and carers - 1
- Anecdotal data
- CNSs are seeing people bringing
- the IP back for follow up consultations
- It provides a plan
- Avoids duplication or repetition of information
- Brings all the pieces of information together
15Benefits of IPs for patients and carers - 2
- People like
- having the diagnosis written down in a way in
which they understand what it means - having a diagram/picture to help explain
- having a point of contact written down
16Benefits of IPs for Health Care Professionals - 1
- Focus group feedback
- IPs are providing
- a record of the patients consultation
- record of what information has been offered and
given to patients avoiding duplication - a focus on patient information needs and how
these are met - The IP pilot and process is improving the quality
of information provided
17Benefits of IPs for Health Care Professionals - 2
- Focus group feedback from CNSs
- Facilitating team working
- Facilitating CNS access to pre - diagnosis part
of the patient pathway - Consultants are becoming more involved in
information giving - There is transferability of the template and
process to patients with non-cancer diagnosis
18Could this work in Primary Care ?
- Currently the pilot IP does not cover the
pre-diagnosis stage - Are there information gaps between GP referral
and attending clinics? - Could an IP improve these?
- Could an IP help with communication between
primary and secondary care? - Are there any other areas in the cancer pathways
where IPs could improve care? - Are there other conditions managed predominantly
in primary care where the IP would benefit
patients and carers?