Mid Trent Cancer Network Information Prescriptions the story so far

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Mid Trent Cancer NetworkInformation
Prescriptions the story so far

• Elaine Wilson Nurse Director/Project Lead
• Sheila Williamson Project Manager

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Which conditions are we focusing on?

• Lung cancers
• Head and Neck cancers
• Gynaecological cancers
• Each of these conditions
• has a supporting
• Information Pathway

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How have we approached the pilot and who have we
involved?

• Engagement - a key feature
• Steering group chaired
• by a carer and with patient
• members
• Stakeholder event
• 10 guiding messages
• Regular meetings with CNSs across all 3 pathways
• Gaining ownership

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How have we approached the pilot and who have we
involved?

• Involvement of voluntary sector
• Information centres
• Cancerbackup
• Macmillan Cancer Support
• Marie Curie Cancer Care
• Continuous improvement approach
• Lets have a go!
• We wont get it right first time!
• Small step changes
• What we have now may look different
• to what we end up with

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How are we delivering IPs?
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What progress have we made?

• There is clear ownership of project in the
  Network within health communities and the
  clinical teams
• The template and operational policy has been
  developed and agreed across
• 3 health communities
• 3 clinical pathways
• 3 Acute Hospital Trusts covering 7 hospital sites

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What progress have we made?

• The first phase of the pilot has been implemented
  and extended
• 85 Information Prescriptions have been issued
  to date
• Rolled out beyond diagnosis to all points
  on the clinical pathway
• The pilot phase has continued
• The IP template has been amended
• Complete sign up from the Clinical
• Nurse Specialists

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What progress have we made?

• Local evaluation process for first phase agreed
  and implemented
• Patients consenting to participation
• Discovery Interviews being held
• National Evaluation
• Through GfNOP - an external organisation
• Questionnaires to CNSs/Patients/Carers
• Interim Project evaluation
• with OPM

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Benefits of IPs for patients and carers

• Anecdotal data
• CNSs are seeing people bringing the IP back for
  follow up consultations
• Continuity and consistency
• Avoiding duplication or repetition of information
• Brings all the pieces of information together
• Like having the diagnosis written down in
  relevant language
• Like diagrams
• Like having a point of contact written down

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Benefits of IPs for health care professionals

• Focus group feedback from CNSs
• IPs are providing a record of the patients
  consultation
• Providing a record of what information has been
  offered and given to patients avoiding
  duplication
• They are providing a focus on patient information
  needs and how these are met
• Facilitating team working
• Improving the quality of information provided
• Facilitated CNS access to pre - diagnosis part
  of the patient pathway
• Consultants are becoming more involved in
  information
• Transferability to patients with non-cancer
  diagnosis

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The challenges at the start of the pilot

• Not feeling we have to have the answers
• Giving people time to work out what an IP might
  be and how it might work
• Making sure that IPs add value and do not
  duplicate
• Finding ways to nurture what is already happening
  locally rather than
• replacing it
• Making it work for patients and professionals

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Emerging challenges

• Maintaining the current level of engagement and
  enthusiasm
• Putting in place an IT solution that will link to
  a number of IT systems
• Engaging with medical staff across all 3 pathways
• Involvement with primary care and issuing
• IPs to carers
• Integration of IPs with other drivers such as My
  Little Blue Book

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Next steps

• Issuing IPs continue throughout September
• Local evaluation August and September
• Making any changes or amendments to the template
  and operational policy End September
• Identify ways of testing the use of IPs jointly
  between medical staff and CNSs September
• Identify pilot sites for issuing IPs to carers
  Sept/October
• Information Technology option appraisal End
  September
• Looking at options for issuing IPs in primary
  care - September

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Any thoughts, comments or questions?