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Children with Special Health Care Needs in Illinois

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Children with Special Health Care Needs in Illinois University of Illinois Medical Center Division of Specialized Care for Children (DSCC) – PowerPoint PPT presentation

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Title: Children with Special Health Care Needs in Illinois


1
Children with Special Health Care Needs in
Illinois
  • University of Illinois Medical Center
  • Division of Specialized Care for Children (DSCC)

2
Established in 1937
  • The Division of Specialized Care for Children is
    the Illinois Title V agency for specialized
    treatment and rehabilitation of children with
    chronic physical disabilities and health
    impairments.


3
Division of Specialized Care for Children
1937 Agency created and placed under the Department of Welfare
1941 Funding transferred to the University of Illinois as part of the College of Medicine
1957 Officially transferred by the General Assembly to the University of Illinois
4
University of Illinois Medical Center
  • Stronger voice for CSHCN and their families
  • Greater credibility with providers and consumers
  • Ability to be more responsive to the needs of
    CSHCN
  • Learning opportunities through DSCC for students
    in the School of Public Health and Medical School
  • DSCCs statewide program is an essential element
    of UICs community service initiatives

5
DSCCs Mission Statement
DSCCs mission focuses on public service,
education, and research as a basis to provide,
promote and coordinate family-centered,
community-based, culturally competent care for
eligible children with special health care needs
(CSHCN) in Illinois.
6
A Tradition of Excellence
  • DSCC has provided care coordination services to
    over
  • 1 million Illinois families
  • of
  • children with special health care needs
  • in all 102 counties

7
13 DSCC Regional Offices
North Cook County Chicago North
South DuPage South Cook
Rockford Rock Island Peoria St. Clair
Champaign Springfield Olney Marion
DSCC also has 40 satellite locations
8
DSCC Clinics
Kane County Clinic
North Cook County Chicago North
South DuPage South Cook
Rockford Rock Island Peoria St. Clair
Kankakee Clinic
Champaign Clinic
Champaign Springfield Olney Marion
Mattoon Clinic
Salem Clinic
Carbondale Clinic
9
DSCC Programs
  • Core
  • SSI Disabled Childrens Program
  • Childrens Habilitation Clinic
  • Home and Community Based Waiver

10
DSCC Core Program
11
DSCC Core Program Eligibility
  • Defined by Administrative Rules
  • General Eligibility
  • Age
  • Residency
  • Citizenship
  • Medical Eligibility
  • Specific impairment categories
  • Financial Eligibility
  • 285 FPL

89 Illinois Administrative Code CH X, SEC. 1200.
12
DSCC Core Program
  • Any Illinois child from birth to age 21
  • Medical condition which can be improved through
    medical treatment
  • Eligible diagnosed condition (care coordination)
  • Suspected eligible condition (no-cost diagnostic
    services)
  • Financial assistance for those families who meet
    financial eligibility criteria.

DSCC Serves Approximately 23,000 children and
families annually
13
Medically Eligible Conditions
  • A child must have a treatable chronic condition
    in one of the following categories
  • Orthopedic (bone, muscle, joints)
  • Heart defects
  • Neurological condition (nerve, brain, spinal
    cord)
  • Hearing loss
  • Cystic Fibrosis
  • Disfiguring defects external body

14
Medically Eligible Conditions
  • Speech conditions requiring medical/dental
    treatment
  • Certain inborn errors of metabolism
  • Eye impairments including cataract, glaucoma,
    strabismus, and certain retinal conditions
    (excludes refractive errors)
  • Urinary impairments (kidney, ureter, bladder)
  • Hemophilia

15
Care Coordination Services
  • Development of an Individualized Service Plan
    (ISP)
  • Assists family in accessing needed services
  • Provides benefits management
  • Collaborates with a managing physician
  • Provides transition planning from adolescence to
    adulthood

All Eligible Families Receive Care Coordination
Services at No Cost
16
DSCC Approved Providers
  • Physicians
  • Board certified
  • Primary Care
  • Pediatric specialists
  • Therapists (OT, PT, Speech etc.)
  • DME
  • Supplies/Equipment
  • Hospitals
  • Specialty Centers
  • Cleft Lip/Cleft Palate
  • Craniofacial
  • Cochlear Implant
  • Cardiac Centers
  • Ambulatory Surgical Centers
  • Epilepsy Surgical Centers

DSCC has more than 10,000 enrolled providers
17
DSCC SSI-Disabled Childrens Program
18
Congress Established SSI-DCP
  • In 1978, Governor James Thompson designated DSCC
    as the state agency to administer the
    SSI-Disabled Childrens Program

Approximately 200 - 250 newly eligible children
for SSI receive information and referral services
each month.
19
DSCC Assistance for families in the SSI-DCP
  • Referral information to community and state
    resources
  • Referrals to Early Intervention Program birth to
    3 years
  • Referrals to Pre-school Educational Programs ages
    3 to 5 years
  • Transition follow-up for youth ages 14-15 years


20
Childrens Habilitation Clinic
21
Childrens Habilitation Clinic
  • Multidisciplinary CSHCN clinic with 950 visits
    annually
  • Training opportunity for UIC medical staff,
    nurses, therapists, and social workers

22
Home and Community Based Waiver Program
23
Home and Community Based Waiver Program
  • Predominantly care coordination service
  • More than 500 children in the program
  • Considered a model program by other states
  • Cost neutral program for DSCC
  • Operated by DSCC Administered by HFS

In 1980, the first ventilator dependent child was
discharged in collaboration between DHFS and DSCC.
24
Home and Community Based Waiver Services
  • Environmental modifications
  • Training of nurses, vent dependent children only.
  • Placement maintenance
  • Respite Care - up to 336 hours a year
  • Skilled shift nursing care
  • Special medical equipment and supplies

25
DSCC Advisory Groups
26
Family Advisory Council
  • Chairperson
  • DSCC Family Liaison Specialist
  • Represented by 13 family members
  • Activities
  • Family Newsletter (Special Addition)
  • Family Handbook
  • Block Grant Review
  • Technical assistance with agency
    procedures/documents

27
Medical Advisory Board
  • 15 members
  • Minimum of 12 physicians
  • Up to 3 other professionals
  • Ex-Officio parent representative from Family
    Advisory Council

The Medical Advisory Board usually meets three
times a year
28
University of Illinois Medical Centers Division
of Specialized Care for Children
Future Opportunities
29
What Families Say About DSCC
  • Excellent medical care received from well
    qualified DSCC-approved medical specialists
  • Caring, dedicated, committed DSCC care
    coordinators just doing their job
  • .no comparison to other agencies

DSCC Family Survey
30
For More Information
  • Visit our website . . .

31
Website
Address - http//www.uic.edu/hsc/dscc/
32
A Tradition of Excellence
. . . partnering with Illinois families to build
better lives for children with special health
care needs
My child is my life. A Parent 2005 DSCC Survey
Division of Specialized Care for
Children (DSCC) 3135 Old Jacksonville
Road Springfield, IL 62704-6488
1-800-322-3722
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