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Integrating Special Education and Family Science: Using Bibliotherapy to Address Stress of Parenting a Child with a Disability

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Integrating Special Education and Family Science: Using Bibliotherapy to Address Stress of Parenting a Child with a Disability Erin Boyd-Soisson, Ph.D., CFLE – PowerPoint PPT presentation

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Title: Integrating Special Education and Family Science: Using Bibliotherapy to Address Stress of Parenting a Child with a Disability


1
Integrating Special Education and Family Science
Using Bibliotherapy to Address Stress of
Parenting a Child with a Disability
  • Erin Boyd-Soisson, Ph.D., CFLE
  • Associate Professor of Human Development and
    Family Science
  • And
  • Melinda Burchard, Ph.D.
  • Assistant Professor of Special Education
  • Coordinator of Special Education Internship
  • Messiah College

2
EDSP/HDFS 396 Infants, Toddlers Families
  • Course Description and Content
  • This course will examine typical and atypical
    social, emotional, physical, cognitive, and
    linguistic development of infants and toddlers
    (birth through 3-years). This course will also
    examine the role of the family and other
    caregivers, such as childcare providers,
    preschool teachers, and foster care parents, in
    the development of infants and toddlers (birth
    through 3-years). Topics will include the
    development and maintenance of attachments to
    caregivers, the role of culture and gender in
    development, the role of socioeconomic status,
    infant and toddler mental health issues, and
    infants and toddlers with special needs. Early
    intervention and assessment techniques will be
    explored along with developmentally appropriate
    practices. For example, students will become
    familiar with the Individualize Family Service
    Plan (IFSP), the Denver Developmental Assessment,
    and other services that may be provided to
    infants and toddlers.
  •  Students who take this course.

3
Classroom Activity Integrating Family Science and
Special Education Concepts
  • The objectives of this activity are to
  • Have students identify the potential stresses of
    the transition to parenthood
  • Have students identify additional stresses
    parents of babies with disabilities or who are
    premature might experience
  • Have students understand the different types of
    stress
  • Have students understand the use of bibliotherapy
    as one way to empower parents and cope with
    stress

4
Identifying Potential Feelings Stresses
  • First students are asked
  • What do you suspect might be some typical
    stresses and feelings experienced by parents
    shortly after the birth of a healthy newborn?
  • Second, students are asked to identify additional
    stresses and feelings that might be experienced
    by parents of newborns who are premature or who
    are born with a disability.
  • In order to stimulate discussion, students do the
    following
  • Read Landsman, G. H. (1998). Reconstructing
    motherhood in the age of perfect babies Mother
    of infants and toddlers with disabilities.
    Journal of Women in Culture and Society, 4 (1),
    69-98.
  • Watch http//www.godvine.com/Mother-s-Inspiring-
    Video-About-her-Blind-Baby-Boy-1484.html
  • Listen to Welcome to Holland Emily Perl
    Kingsley
  • www.downsyn.com/holland.php
  • www.youtube.com/watch?vraEwoQDHRUg

5
Understanding Stress
  • Students are asked to apply the stress
    feelings identified in the reading and the video
    to Bosss classification of stressor events
    (2002)
  • Source
  • Internal vs. External
  • Type
  • Normative vs. Nonnormative
  • Ambiguous vs. Nonambiguous
  • Volitional vs. Nonvolitional
  • Duration
  • Chronic vs. Acute
  • Density
  • Isolated vs. Cumulative
  • (In addition, students also use Family Systems
    Theory, Hills ABC-X Model and Family Strengths
    Perspective to understand stress)

6
The Use of Bibliotherapy to cope with stress
  • Students discuss the use of bibliotherapy.
  • Bibliotherapy involves reading intentionally
    selected texts and then processing life issues
    depicted in those texts through expressive means
    such as journals, discussions, art or drama
    (Burchard et al, 2014).
  • Research indicates it is effective in improved
    problem-solving, emotional understanding,
    acceptance of differences, empowerment, reducing
    social anxiety and adjustment problems, and
    reducing panic attacks and fears
  • (these are often the issues students notice in
    doing the previous activities)
  • Finally, students discuss how bibliotherapy might
    help parents cope with different types of
    stressors (as identified by Boss)
  • (Students discuss other resources as well)

7
Resources
Selected Texts with Bibliotherapy Applications in
Preschool
Selected Literature Potential topics Bibliotherapy Applications
The Global Fund for Children. (2007). Global Babies. Watertown, MA Charlesbridge. Ethnicity and Race What this book does Illustrates babies from around the world. Ideas for using the book Talk about faces and colorful clothing.
Pitzer, M.W. (2004). I can. Can you? Bethesda, MD Woodbine House. Disability Ability What this book does Displays abilities of a child with Down Syndrome. Ideas for using the book Build early appreciation for difference and for celebrating ability.
Schertle, A. (2008). Little Blue Truck. Boston Houghton Mifflin Harcourt. Collaboration Forgiveness What this book does Shows how a group of animals working together with a little truck rescue a grumpy truck from the mud. Ideas for using the book Talk about what the grumpy truck did wrong and how the other characters showed forgiveness. Relate to projects requiring everyone work together. Plan roles in a group project.
Woloson, E. (2003). My Friend Isabelle. Bethesda, MD Woodbine House. Disability Ability What this book does Compares ability in different skill areas between two friends, one with and one without a disability. Ideas for using the book Gather data and compare ranges in basic preschool skills such as how high someone can reach. Prompt inclusive discussion.
  • From Burchard, M.S., Holford, D., and Goetz, S.
    (2014)

8
Resources
  • General Resource
  • http//www.carnegielibrary.org/research/parentsedu
    cators/parents/bibliotherapy/
  • Fact sheets
  • Cerebral Palsy http//www.cdc.gov/ncbddd/cp/facts
    .html
  • Spina Bifida http//www.ninds.nih.gov/disorders/s
    pina_bifida/detail_spina_bifida.htm
  • Retinopathy of Prematurity http//www.nei.nih.gov
    /health/rop/rop.asp
  • Fetal Alcohol Spectrum Disorder
    http//www.cdc.gov/NCBDDD/fasd/facts.html  
  • Down Syndrome http//www.cdc.gov/ncbddd/birthdefe
    cts/DownSyndrome.html  
  • Fragile X http//www.cdc.gov/features/fragilexawa
    reness/ 
  • Autism http//www.ninds.nih.gov/disorders/autism/
    detail_autism.htm
  • Resources for Families
  • The IFSP A family guide to understanding the
    Individualized Family Service Plan
    http//www.marylandpublicschools.org/NR/rdonlyres/
    E94CADE8-6143-4300-A2B8-7FDF00E709EC/29916/GreenIF
    SPBooklet18x11.pdf
  • Gallagher, G. Konjoian, P. (2010). Shut Up
    About Your Perfect Kid A Survival Guide for
    Ordinary Parents of Special Children. New York
    Three Rivers.
  • Klein, S. D. Schive, K. (2001). You Will Dream
    New Dreams Inspiring Personal Stories by Parents
    of Children with Disabilities. New York
    Kensington.
  • Power, P. W. Orto, A. D. (2003). The
    Resilient Family Living With Your Childs
    Illness or Disability. Notre Dame Sorin.
  • Simons, R. (1987). After the Tears Parents Talk
    about Raising a Child with a Disability. Denver
    Harcourt.

9
References and Additional Resources
  • Betzalel, N. and Shectman, Z. (2010).
    Bibliotherapy treatment for children with
    adjustment difficulties A Comparison of
    affective and cognitive bibliotherapy. Journal of
    Creativity in Mental Health, 5, 426-439.
  • Boss, P. (2002). Family Stress Management A
    Contextual Approach (2nd Ed.). Thousand Oaks
    Sage.
  • Burchard, M.S., Holford, D., and Goetz, S.
    (submitted 2014). Applications of bibliotherapy
    in the general education classroom.
  • Cowan, C. P. and Cowan, P. A. (2000). When
    Partners Become Parents The Big Life Change for
    Couples. Mahwah. N. J. Lawrence Earlbaum.
  • Febbraro, G. A. R. (2005). An investigation into
    the effectiveness of bibliotherapy and minimal
    contact interventions in the treatment of panic
    attacks. Journal of Clinical Psychology, 61(6),
    763-779.
  • Forgan, J. (2002). Using bibliotherapy to teach
    problem-solving. Intervention in School and
    Clinic, 38(2), 75-82.
  • Gavigan, K.W., and Kurtts, S. (2011). Using
    Children's and Young Adult Literature in Teaching
    Acceptance and Understanding of Individual
    Differences. Morality in Education, Delta Kappa
    Gamma Bulletin, 11-14.
  • Hunt, K. (2006). Do you know Harry Potter? Well,
    he is an orphan Every bereaved child matters.
    Pastoral Care In Education, 24(2), 39-44.
    doi10.1111/j.1468-0122.2006.00369.x
  • Land, G. H. (1998). Reconstructing motherhood in
    the age of perfect babies Mother of infants
    and toddlers with disabilities. Journal of Women
    in Culture and Society, 4 (1), 69-98.
  • Roberts, S.K. and Crawford, P.A. (2008).
    Literature to help children cope with family
    stressors. Young Children, 63(5), 12-17.
  • Russo, M., Vernam, J., Wolpert, A. (2006).
    Sandplay and storytelling Social constructivism
    and cognitive development in child counseling.
    The Arts and Psychotherapy, 33(3), 229-237.
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