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First Annual National EHDI Meeting

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Title: PowerPoint Presentation Author: lukshisj Last modified by: karl white Created Date: 1/11/2002 5:34:24 PM Document presentation format: On-screen Show – PowerPoint PPT presentation

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Title: First Annual National EHDI Meeting


1
First Annual National EHDI Meeting
  • Panel on Operating Effective Screening Programs
  • South Carolina
  • Jane Lukshis, MN, RN
  • Nurse Consultant- DHEC
  • Division of Children with Special Health Care
    Needs

2
  • Count Their FingersCount Their ToesTest Their
    Hearing
  • Because Babies Cant Tell Us If They Cant Hear

3
Background-1996
  • Conducted a needs assessment specific to
  • SC and results were consistent with
  • national findings
  • ? Hospitals were only screening newborns with
  • risk indicators (2 hospitals were screening
    all newborns)
  • ? Average age of identification was 2 ½ to 3
    years
  • of age
  • ? ? Limited number of audiologists providing
    services to infants identified with a hearing loss

4
January July, 1997
  • Established statewide Advisory Council
  • DHEC- serve as Lead Agency
  • SC Perinatal Association
  • Audiologists
  • SC Department of Education
  • Early Intervention Programs
  • Title V and Part C Programs
  • SC School for the Deaf and Blind

5
January July, 1997 (cont.)
  • Established statewide Advisory Council
  • Governors Office
  • Speech-Language Pathologists
  • Neonatologists
  • Otolaryngologists
  • Pediatricians
  • AG Bell
  • Bureau of Health Licensing- DHEC
  • South Carolina Medical Association

6
January July, 1997 (cont.)
  • Established statewide Advisory Council
  • DHHS- Medicaid program
  • USC Schools of Public Health Medicine
  • SC Academy of Audiologists
  • SC Association of the Deaf
  • SC Hospital Association
  • SC State Office of Rural Health
  • Nursery staff
  • Parents of children with hearing loss

7
January July, 1997 (cont.)
  • Created 4 subcommittees from the Advisory Council
  • ?Tracking and Data Management- responsible for
    developing hospital screening and audiology
    evaluation forms and tracking methods
  • ? Funding- responsible for exploring
    payment/reimbursement options for in-patient
    screens and audiologic follow-up

8
January July, 1997 (cont.)
  • Created 4 subcommittees from the Advisory Council
  • ? Education- responsible for developing public
    awareness and educational materials
  • ? Early Intervention- responsible for assessing
    SCs capacity to provide services for infants
    identified with a hearing loss

9
August 1997- December 1999
  • Implemented Pilot Project
  • ? 8 hospitals volunteered to participate
    (represented 24 of annual births statewide)
  • ? ABR or AABR technology used for in-patient
    screens
  • ? Hospital screening and audiology evaluation
    forms sent to DHEC for tracking purposes

10






Level I

Level II
Level III

11
Data analysis of pilot
  • Revisions in the hospital protocols,
  • introduction of an electronic data
  • monitoring and tracking system, and
  • referrals to Family Support Services
  • resulted in a 99.9 capture rate,
  • referral rate lt4, and 6 lost to
  • follow-up.

12
January 2000-June 2001
  • Developed a work plan to implement statewide
    early hearing detection and intervention
  • ? Intensified our collaborative efforts with SC
    Hospital Association
  • ? Arranged for NATUS and Pediatrix, Inc. to
  • provide technical assistance
  • ? Met with representatives from all 48 birthing
    centers and conducted a readiness
  • assessment

13
January 2000-June 2001 (cont.)
  • ? Outlined which hospitals on a monthly basis
  • we would bring on board
  • ? Funded legislation was passed in June, 2000
  • mandating that newborn hearing screening prior
  • to hospital discharge be conducted in hospitals
  • with at least 100 births annually beginning
  • July, 2001

14
January 2000-June 2001 (cont.)
  • ? Contracted with a consulting firm to develop
  • an Internet based data entry and tracking system
  • ? Developed First Sound brochure (available in
  • English and Spanish)
  • ? Completed statewide implementation in May, 2001

15
Data analysis 1/00-6/01
Benchmarks AAP and JCIH recommendations First Sound
Capture Rate 95 98
Audiology follow up 95 80 with audiology f/u 20 without audiology f/u
Referral Rate lt 4 2.1
False positive rate lt 3 1.9
HL identified by 3 months of age strive for 100 lt3 months 65 3-6 months 27 gt 6 months 8
Early intervention by 6 months strive for 100 60 known to Part C 90 of those enrolled within 6 months of confirmed HL
16
Infants with confirmed hearing loss n 84
17
Confirmed HL with risk factors
18
Laterality of confirmed hearing loss
19
Right Ear versus Left Ear (all confirmed hearing
loss)
20
Types of hearing loss (all confirmed hearing loss)
21
Degrees of hearing loss( all confirmed hearing
loss)
22
Unilateral- types of hearing loss
23
Unilateral- degrees of hearing loss
24
Bilateral- types of hearing loss
25
Bilateral- degrees of hearing loss
26
July 2001 to present
  • Funded legislation effective July, 2001
  • All 48 birthing centers are screening newborns
    prior to discharge and submitting data
    electronically to DHEC
  • Statewide implementation of Internet based
    application in progress, to include access and
    entry by hospitals, audiologists and PCP

27
July 2001 to present
  • Completed a statewide PR campaign in December,
    2001 which included PSAs and bill boards
  • Full time Program Manager, Program Coordinator
    and Data Manager
  • Continue to provide trainings, in-services and
    oversight for hospitals and audiologists
  • Strengthened our links with other programs to
    ensure follow up activities occur from hospital
    screening through early intervention

28
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