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A rights-based approach for older people in long-term care

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A rights-based approach for older people in long-term care The European WeDO experience by Maude Luherne, Policy and projects officer 3 April 2014, UN Social forum Geneva – PowerPoint PPT presentation

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Title: A rights-based approach for older people in long-term care


1
A rights-based approach for older people in
long-term care
  • The European WeDO experience
  • by Maude Luherne, Policy and projects officer

2
AGE Platform Europe at a glance
  • Set up in 2001, Social NGO with Belgian Statutes
  • European Network with about 160 Member
    Organisations
  • Represents directly over 30 million older people
  • Aims to voice and defend the interests of older
    people and to raise awareness on the issues that
    concern them
  • Co-financed by a grant of the EU (DG Justice)
    and by its members

3
What do we mean by long-term care?
4
Long-term care in the EU
  • Definition (WeDO quality framework for long-term
    care services)
  • They need to encompass prevention,
    rehabilitation and enablement, cure and care,
    including end-of-life care. They combine health
    and social care for activities of daily living
    (ADL) such as eating, bathing, dressing,
    grooming, housekeeping, and leisure. They also
    cover the instrumental activities of daily
    living (IADL) such as managing ones finances,
    shopping, using the telephone, transportation,
    and in some countries other activities such as
    taking medication. They can be delivered in
    various settings spanning the continuum from the
    beneficiarys home to intermediate care and
    (semi-) residential facilities.

5
Long-term care in the EU
  • Very diverse situations in the EU countries
  • We face the same challenges
  • Silos approach between health and social care
    impacting on the objective of person-centred care
    and support (different funding, administrations,
    sources of information)
  • Financial pressure on care systems and on older
    persons incomes (1/5 older person at risk of
    poverty), added to lack of adapted environments,
    risks of social isolation, etc.
  • Lack of support to informal carers, lack of
    recognition of professional care work
  • Quality what can I expect from the service I
    receive, what are my rights?
  • Lack of adequate support to persons with dementia
  • Prevention and fight against elder abuse

6
A right to long-term care?
7
A vision for long-term care in Europe
8
EUSTaCEA 2008-2010
  • European Charter of the rights and
    responsibilities of older people in need of
    long-term care and assistance
  • 10 articles 9 rights, 1 responsibility
  • Accompanying guide
  • Translated into 9 languages

9
The EUSTACEA project
  • The European Charter for older people in need of
    long-term care and assistance Ten articles
  • Art. 1 Right to dignity, physical and mental
    well-being, freedom and security
  • Art. 2 Right to self-determination
  • Art.3 Right to privacy
  • Art. 4 Right to high quality and tailored care
  • Art. 5 Right to personalized information, advice
    and consent

10
The EUSTACEA project
  • The European Charter for older people in need of
    long-term care and assistance Ten articles
  • Art. 6 Right to continued communication,
    participation in society and cultural activity
  • Art. 7 Right to freedom of expression and
    freedom of thought/conscience beliefs, culture
    and religion
  • Art. 8 Right to palliative care and support, and
    respect and dignity in dying and in death
  • Art. 9 Right to redress
  • Art. 10 Your responsibilities

11
WeDO (2010 - 2012)
  • European Quality framework for long-term care
    services
  • Translated into 11 languages
  • 11 quality principles and 7 areas of action
  • Case examples and good practices
  • Methodology for a participatory approach

12
  • 11 Quality principles, a quality service should
    be
  • Respectful of human rights and dignity
  • Person-centred
  • Preventive and rehabilitative
  • Available
  • Accessible
  • Affordable
  • Comprehensive
  • Continuous
  • Outcome-oriented and evidence based
  • Transparent
  • Gender and culture sensitive

13
  • 7 areas of action, a quality service should
    contribute to
  • Preventing and fighting elder abuse and neglect
  • Ensuring good working conditions and working
    environment and investing in human capital
  • Empowering older people in need of care and
    create opportunities for participation
  • Developing adequate physical infrastructure
  • Developing a partnership approach
  • Developing a system of good governance
  • Developing an adequate communication and
    awareness-raising

14
The vision
  • A rights-based approach to care
  • European Charter of the rights and
    responsibilities of older people in need of
    long-term care and assistance
  • Age-friendly environments and active ageing
    concepts as key to drive change
  • WHO age friendly cities and participatory
    approach
  • Integrated response to care and person-centred
    approach
  • Multi-stakeholders approach
  • Crucial role of informal carers and need to
    support them

15
A European movement
16
What can WeDO?
  • The WeDO partnership, informal network (EU and
    national coalitions) in 16 countries
  • WeDO2 project (2013-2015) developing training
    tools
  • Inspire EU coordination, inspire national and
    local stakeholders
  • Easily transferable
  • www.wedo-partnership.eu

17
Thank you for your attention!
18
  • AGE Platform Europe
  • Rue Froissart 111
  • 1040 Bruxelles Belgique
  • Contact person Maude Luherne
  • E-mail maude.luherne_at_age-platform.eu
  • tel. 32.2.280.14.70
  • fax 32.2.280.15.22
  • www.age-platform.eu
  • Register to our newsletter Coverage!
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