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EPOCH Ethics and Public pOlicy making, the Case of Human enhancement Collaborative Project, 7th Framework Program, Science

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Title: EPOCH Ethics and Public pOlicy making, the Case of Human enhancement Collaborative Project, 7th Framework Program, Science


1
EPOCH Ethics and Public pOlicy making, the Case
of Human enhancement Collaborative Project, 7th
Framework Program, Science in-Society
  • An overview of the project
  • Ruud ter Meulen
  • Centre for Ethics in Medicine
  • University of Bristol

2
Participants
  1. University of Bristol (UK)
  2. Karlsruhe Institute of Technology (D)
  3. University of Padua (I)
  4. CNRS-University of Paris Descartes (Fr)
  5. Maastricht University (NL)
  6. University of Ljubljana (Sl)
  7. Swansea University (UK)
  8. National University of Singapore (Si)
  9. University of Aarhus (DK)
  10. University of Calgary (Cnd)

3
Goal of the project
  • The overall goal of the project is to gain better
    insights into the potential contributions of
    ethics and ethical expertise in relation to the
    development of public policies on science and
    technology in the European context, in particular
    on issues of human enhancement by way of new and
    emerging technologies.

4
Objectives
  • To provide sophisticated, practically relevant,
    insight into the relationship between normative
    issues, ethical expertise and science and
    technology policy making.
  • To develop a framework, informed by
    multi-disciplinary perspectives, that can guide
    EU policy development in relation to a variety of
    issues concerning the use of ST for the purpose
    of human enhancement

5
Research questions
  • what types of ethical expertise are needed for
    the development of public policies?
  • what models of governance are needed (also
    specifically regarding the involved expertise)?

6
Research methodology
  • a comparative perspective which will include EU
    Member States as well as other parts of the world
    (America and Asia) where relevant
  • an overview of the kinds of evidence and
    expertise that are currently used by ethics
    committees and utilisation thereof
  • an exploration of how the input of ethics
    committees and public dialogue activities is used
    in decision and law-making processes
  • a focus on emerging fields of research and
    development and emerging trends in the
    relationship between normative issues, ethical
    expertise, and science and technology policy
    making.

7
Results (envisaged)
  • The project will provide an overview on how
    selected enhancement issues (in particular
    physical and cognitive enhancements) are dealt
    with EU Member States, at EU level and elsewhere
    in the world.
  • It will generate insight into cultural
    differences and shared values with regard to
    human enhancement.
  • It will generate a normative framework which will
    be derived from ethical expertise and
    non-academic, public discourses on enhancement
    issues.
  • It will identify cases of good or even best
    practice in the governance and regulation of
    enhancement issues.

8
Results (continued)
  • The project will also seek to identify possible
    shortcomings in existing normative and regulatory
    frameworks and conflicts of policy objectives
    (for example the tension between progress in
    physical enhancement technologies and global
    anti-doping policies)
  • The research is designed to provide insights
    into, and new ideas for, the regulation of
    enhancement technologies and for the governance
    of the topic of human enhancement in general.

9
Three main areas of the project
  1. Ethics and Governance of Science and Technology
    Bristol (lead), Maastricht, Ljubljana and Paris,
    supported by Work Packages 1,2,3,9
  2. Human Enhancement and European Policy Making
    Karlsruhe (lead), Bristol, Swansea, Aarhus and
    Calgary, supported by Work Packages 4,5, 6,7
  3. Challenges to Regulatory and Legal Frameworks
    Padua (lead), Swansea, Paris, Karlsruhe,
    Singapore and Bristol, supported by Work Packages
    7, 8,9,10

10
Area 1 Ethics and Governance Research questions
  • What is the impact of the empirical turn in
    bioethics on the role of theoretical and applied
    ethics, particularly in the context of public
    policy-making?
  • Is their a role for ethical theory, normative
    ethics and ethical expertise in participatory
    approaches to public decision-making on science
    and technology?
  • What are the roles of social scientists and
    ethicists in the governance of normative issues
    in science and technology?
  • Does the disciplinary status of bioethics change
    in its interface with social science when
    assessing and governing science and technology?
  • What will be the role of more traditional
    institutions such as ethics committees and other
    advisory bodies in assessing and governing new
    technologies and what is the role of ethical
    expertise in these committees?

11
Area 2 Human Enhancement and European Policy
Making Research questions
  • What is the relevance of the distinction between
    therapeutic and non-therapeutic uses of
    technologies for policy-making on the use of
    technology for human enhancement?
  • How can societal and cultural aspects, be taken
    into account, taking into account in discourses
    and governance activities dedicated to the topic
    of human enhancement?
  • How can the position of vulnerable groups and
    disabled people be taken into account in the
    governance of technology for human enhancement?
  • Is there a need for additional governance
    frameworks for physical enhancement in sport in
    addition to existing international doping
    policies?
  • In which way will the regulation and governance
    of science and technology be affected by the
    possibilities of the use of these technologies
    for non-therapeutic, including human enhancement
    purposes?
  • How can the discourses on human enhancement
    profit from a more systematic inclusion of gender
    aspects?

12
Area 3 Challenges to Regulatory and Legal
Frameworks Research Questions
  • how can public participatory approaches and
    collective responsibility be integrated in
    socially inclusive models of governance of
    science and technology?
  • is there a conflict between the normative
    approach of applied ethics on the one hand and
    empirical and participatory approaches on the
    other hand in the governance of science and
    technology?
  • how can so-called soft approaches to the
    governance of science and technology be combined
    with hard and explicit models of regulation?
  • what is the current role of advisory bodies in
    the assessment and governance of science and
    technology and what other governance models can
    or should be applied in this context?
  • is there a role for vision and speculation about
    the future in the assessment and governance of
    new emerging technologies, particularly in
    relation to human enhancement?
  • how can we take cultural differences into
    account, and how do European regulations of
    science and technology compare with other
    approaches in the global context?

13
Workpackages
  1. Ethics and policy making (Bristol)
  2. Governance and ethics (Maastricht)
  3. Ethical Policy Advice (Ljubljana)
  4. Enhancement technologies (Karlsruhe)
  5. Enhancement discourses (Aarhus)
  6. Enhancement policies (Karlsruhe)
  7. Sport enhancement (Swansea)
  8. Regulatory challenges (Padua)
  9. Implementation options (Paris)
  10. Global policy (Singapore)
  11. Dissemination (Karlsruhe)
  12. Final Conference (Padua)
  13. Co-ordination (Bristol)

14
Milestones
  1. Insight in the best possible model for governance
    of normative issues of science and technology
  2. Insight in actual role of ethical expertise in
    public policy making
  3. Insight in specific ethical expertise needed for
    public-policy making on science and technology
  4. Deeper understanding of ELSI and governance
    aspects of enhancement technologies
  5. Determining the need for new normative frameworks
  6. Situating the governance policies and regulatory
    structures of the European Union regarding
    enhancement technologies in the global context
  7. Development of guidance for including ethical
    expertise and public consultation in public
    policy-making

15
Workshops
  • Area 1 (Month 14) Reports of WP 1,2,3
  • Area 2 (Month 16) Reports of WP 4,5,6
  • Area 3 (Month 18) Reports of WP 7,8,9
  • Global Policies Singapore (Month 20) Report WP 10
  • Final Conference (Month 22)

16
Management
  • Project Management Office PMO (Bristol)
  • Steering Group SC (Leads of Areas 1,2,3 Bristol,
    Karlsruhe, Padua)
  • Academic Workpackage Management
  • Management and Other Workpackages (WP 11,12,13)

17
Project Management Office
  • Day-to-day project operation
  • Communication with Commission
  • Project infrastructure
  • Knowledge and risk management
  • Quality Assurance

18
Steering Committee
  • Overall responsibility for Project
  • Meets four times during project, with regular
    interim correspondence
  • Agree project processes and frameworks
  • Evaluate process and results

19
Management of the Project
  • Monitoring
  • Communication
  • Dissemination

20
Monitoring
  • WP Leads will monitor WP deliverables, milestones
    and financial matters.
  • WP Leads will serve as the primary point of
    contact between the Coordinator/Project
    Management Office and the partners.
  • WP Leads will contact the PMO on a regular basis
    (at least each quarter) to provide an informal
    update.
  • SC will oversee progress at SC meetings.
  • WP Leads will submit a formal progress report for
    each SC meeting (6 monthly), detailing progress
    towards tasks, deliverables and milestones.

21
Communication
  • The project will be managed with principles of
    consistent and transparent communication between
    the PMO and all partners.
  • The main mechanism of communication will be
    e-mail, with a shared mailbox email address to be
    established in Bristol, to which the coordinator,
    project officer and project manager will have
    access.
  • Email will be supplemented by the EPOCH website,
    which will contain a password-protected area for
    access by consortium members only as well as a
    repository for reports (non-public).
  • All matters of interest to the consortium will be
    shared, including meetings, workshop and annual
    reports.
  • Any communications from the Commission with
    implications for the consortium as a whole will
    also be shared.

22
Dissemination
  • Dissemination Plan (to be developed by SC)
  • Website (public and restricted)
  • Involvement with public meetings and debates
  • Releasing statements to the press articles for
    popular consumption (including on the EPOCH
    website)
  • Academic papers in scientific and bioethics
    journals and conference contributions.

23
  • Please visit
  • Epochproject.com
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