Sustaining and Strengthening Family-Run Organizations

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Sustaining and Strengthening Family-Run
Organizations

• Jane Kallal, CEO
  Family Involvement Center
• Maricopa County, Arizona
• Frank Rider, RTAC
• National Federation of Families -
  TA Partnership
  for Childrens Mental Health
• 14 November 2007

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Key Learning Objectives

1. How to recognize, create and pursue opportunities
   to diversify financial support for family-run
   organizations
2. How to cultivate, create and embed opportunities
   for family-driven/youth-guided services at both
   individual and system levels
3. How to sustain and strengthen consequential
   family voice through leadership development,
   workforce development, organizational development
   and sharing the learning.

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• Many Families Have Felt Disenfranchised
• (Arizona Families Before Transformation)

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Jane Knitzers Findings

• Childrens MH Problems Poorly Identified and
  Diagnosed
• Ineffective Service Plans
• Parents Blamed, Frustrated, Despairing
  
• 
  Jane Knitzer (1982), Unclaimed Children
• Parents, Against All Odds, Remained Committed to
  Their Children
• Parents Fought, Often Heroically, for Their
  Children
• Parents Were Resilient, Tenacious
• Knitzer (2005), Advocacy for Childrens Mental
  Health
• A Personal Journey

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Why Involve Families?1. Subject Matter Experts
What Works?2. Good Business Strategic
Partnership3. Families as Cultural Guides4.
Families as Mutual-Support Resource That Enhances
Clinical Services5. Continuous Commitment to
System Improvement6. Families Keep It Real

• Family-Run Organizations as Transformation Agents
  Blau (2005), National Federation of Families
  conference and Cline/SAMHSA (2007)

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Family Involvement Center opened its doors in
Maricopa County, AZ in 2002
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What Arizonas Family-Run Organizations Do

• Mentor and Support Families
• Develop and Organize Effective Family Youth
  Voice within Transformation Infrastructures
• Provide Operational Support for Parent Youth
  Leader Roles
• Public Education and Community Development
• Recruit, Train Families for BH Workforce,
  Leadership Roles Annapolis
  Coalition (2007) Recommendation 1
• Train Service Providers (current and future)
• Build Bridges between Service Systems and
  Providers
• Provide Home and Community-Based Services

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The Sustainability Challenge
for Family-Run Organizations

• Sustainability is Long-term survival of services
  and programs that were initiated with grants or
  other specialized funding
• TA Partnership (2005) Sustainability Tool Kit
• Family support services and mentoring decreased
• Supporting and maintaining an active family
  organization in the community decreased
• Family involvement in the service planning and
  delivery process (services level) increased, but
• Family involvement in system policy and
  management (system level) decreased.
  Stroul, Univ. of So. Florida (2006)

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1. Diversify Financial Support for
Family-Run Organizations

• Key Premise Public Investment in Family Driven
  Is Cost-Effective
• Resources to Seed Family-Run Organizations
• Develop Sustainable Business Enterprises
• Traditional Funding/Fundraising Strategies
• Most Effective Financing Strategies (Stroul 2006)

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Questions and Answers

• To ask a question, you can unmute your phone by
  dialing Star () 7.
• Mute your phone again by dialing Star () 6.

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AZ Transformation Process Began with Families at
the Table
State Medicaid Agency
Family Member
Education
Child Welfare
State BH and regional MCOs
Other Family Members
Family Member
Juvenile Corrections
2. Cultivate and Embed Opportunities
for Family-Driven Services
at both
individual/service and system/policy levels
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Embedding the Arizona Principle Collaboration
with the Child and Family

• JK Settlement (2000-01) - Families invited to
  participate.
• 300 Kids Pilot (2001) hires parent as a Systems
  Development leader in Maricopa County
• Early Visioning Family Support for all who need
  it
• Arizona Childrens Executive Committee (2003-04)
• Established Family Involvement Subcommittee
• Adopted Family Involvement Framework
• Governors Office, Childrens Cabinet (2006-07)

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Family-Run Organizations Woven into Structure of
Arizonas Behavioral Health System
AHCCCS (State Medicaid Agency)
Family Involvement Center (FIC)
MIKID
Arizona Department of Health Services/ Behavioral
Health Services
Pascua Yaqui Tribal RBHA
Gila River Tribal RBHA
Northern Arizona RBHA (NARBHA)
Community Partnership of Southern Arizona (CPSA)
Cenpatico BH
Magellan HS
Subcontracted Providers (including MIKID)
Subcontracted Providers (including MIKID)
Subcontracted Providers (including FIC)
Subcontracted Providers (including MIKID)
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Arizona Family Organizations

• Partnership Approach
• to Develop and Sustain
• Consequential Family and Youth Voice in System
  Transformation

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Embed Transformative Family Voice Portals
throughout System at Numerous Levels

• Participation in Leadership, Advocacy Venues,
  Policy Development and Planning Groups
• Families as Trainers, Coaches and New Hire
  Panelists
• Families as Case Managers, Service Providers,
  System Navigators and Per-to-Peer Supports
• Families in Continuous Quality Improvement Roles

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Questions and Answers

• To ask a question, you can unmute your phone by
  dialing Star () 7.
• Mute your phone again by dialing Star () 6.

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3. Sustain and strengthen consequential family
voice thru

• A. leadership developmentB. workforce
  developmentC. organizational development, and
  D. sharing the learning.

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The SOC Workforce Needs Families

• Broadening the Concept of Workforce
• Goal 1 Significantly expand the role of
  individuals in recovery, and their families when
  appropriate, to participate in, ultimately
  direct, or accept responsibility for their own
  care provide care and support to others and
  educate the workforce.
• The Annapolis Coalition on the Behavioral Health
  Workforce, Building a Strategic Plan for
  Behavioral Health Workforce Development (2007)

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Organization Development

• Organization (Self-)Assessment Domains
• Values
• Leadership Development
• Partnerships
• Access and Referrals
• Meeting Family Needs
• Productive Working Relationships
• Sustainability
• Supporting Youth Involvement

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Sharing the Learning

• TA Partnership Monthly Affinity Calls
• Arizona Institute for Family Involvement
• Peer to Peer Support Reinforces Leadership
  Development by providing opportunities to learn
  through teaching

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Resources/References

• Annapolis Coalition Strategic Plan for the
  Nations Behavioral Health Workforce (2007)
  http//www.annapoliscoalition.org/national_strateg
  ic_planning.php
• Stroul (2006) Sustainability Study
• USF Research Training Center (2007), Quick
  Guide for Self-Assessment of Family-Run
  Organizations in Systems of Care
  http//rtckids.fmhi.usf.edu/rtcpubs/FamExp/Familyq
  uickguide.pdf
• Family Involvement Center website
  www.familyinvolvementcenter.org
• TA Partnership Resources
• on Family Involvement http//www.tapartnership.or
  g/advisors/family/the_family_page.asp
• On Sustainability http//www.tapartnership.org/re
  sources/sustainability/toolkit.asp

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For further information, assistance
Jane Kallal CEO, Family Involvement Center, AZ
Institute for Family Involvement
(jane_at_familyinvolvementcenter.org) Frank Rider
MS, RTAC (frider_at_ffcmh.org) Gwen Palmer
(gpalmer_at_ffcmh.org) Kim Williams
(kwilliams_at_ffcmh.org) National Federation/TA
Partnership
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Questions and Answers

• To ask a question, you can unmute your phone by
  dialing Star () 7.
• Mute your phone again by dialing Star () 6.