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Arizona Bridge to Independent Living

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Arizona Bridge to Independent Living Where Are We on Disability Justice and Why it Matters! Amina Donna Kruck VP Advocacy Programs 602-443-0722 office – PowerPoint PPT presentation

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Title: Arizona Bridge to Independent Living


1
Arizona Bridge to Independent Living
  • Where Are We on Disability Justice and Why it
    Matters!
  • Amina Donna Kruck
  • VP Advocacy Programs
  • 602-443-0722 office
  • 602-980-1155 cell
  • aminak_at_abil.org

2
About ABILs
  • Our Mission
  • ABIL offers and promotes programs designed to
    empower people with disabilities to take personal
    responsibility so that they may achieve or
    continue independent lifestyles within the
    community.

3
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4
Disability Empowerment Center of AZThe Partner
Organizations
  • Arizona Autism United
  • Arizona Bridge to Independent Living (ABIL)
  • Arizona Center for Disability Law
  • Arizona Spinal Cord Injury Association
  • Brain Injury Association of Arizona
  • Joni Friends
  • NAMI National Alliance for the Mentally Ill
  • National MS Society - AZ Chapter of
  • Raising Special Kids
  • Statewide Independent Living Council
  • Symbius Medical
  • Valley Center of the Deaf
  • Plus Major Conference Space for Hosting
  • National, Regional, Local Events

5
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6
ABIL Programs
  • Living Well w/a Disability
  • Personal Assistance Services
  • Reintegration from Nursing Homes
  • Self Advocacy and Self Determination Skill
    Training
  • Socialization Through Recreation
  • Virginia G. Piper Sports and Fitness Center
  • Advocacy / ADA Services
  • Independent Living Skills Instruction
  • Information Referral
  • Peer Support
  • ABIL Employment Services
  • Early Intervention to People Newly Disabled
  • Empowering Youth in Transition
  • Home Modification

7
Learning Objectives for Today
  • Define Independent Living Philosophy
  • Recognize how legislation, culture, and aging
    shape the disability experience
  • Identify at least two barriers for people with
    disabilities today
  • Define People First Language and use two examples
  • Identify two civil rights laws that apply to
    Arizonans with disabilities.

8
Centers for Independent Living
  • 400 Centers for Independent Living nationwide
    www.virtualcil.net
  • The term center for independent living means a
    consumer-controlled, community-based,
    cross-disability, nonresidential, private
    nonprofit agency that
  • is designed and operated within a local community
    by individuals with disabilities and
  • provides an array of independent living services.

9
What is the Independent Living Philosophy?
  • The foundation of our programs and how we work
    with our consumers.
  • We believe disability is a natural part of the
    human experience and in no way diminishes the
    right of individuals to live independently.

10
Independent Living Philosophy (cont.)
  • We believe that the opportunity to fully
    participate in the political, economic, and
    social life of our own community is a basic human
    right. The existence of a disability which
    inhibits personal function is not, in itself, a
    reason to deny those rights.

11
History of Independent Living
  • Civil Rights
  • The history of Independent Living is closely tied
    to the civil rights struggles of the 1950s and
    1960s among African-Americans.

12
History of Independent Living (cont.)
  • People with disabilities were inspired to
    advocate.
  • Basic issues
  • Disgraceful treatment based on bigotry and
    negative stereotypes
  • Discrimination and segregation in housing,
    education, transportation, and employment
  • Lack of opportunities for people with
    disabilities to participate in society

13
Centers for Independent Living
The Rehabilitation Act of 1973, as Amended Title
VII Part C, funds over 400 CILs so that people
with disabilities can Live independently Exerci
se self-determination Make choices Contribute to
society Pursue meaningful careers Enjoy full
inclusion and integration in the economic,
political, social, and educational mainstream of
American society.
14
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15
Ed Roberts
  • The "father of independent living". He was
    diagnosed with polio at 14.
  • Eventually, he attended the University of
    California at Berkeley. Had to live in the campus
    hospital and use attendant services.
  • In 1970, Ed and other students with disabilities
    founded a disabled students' program called the
    "Rolling Quads." This group focused on the need
    for access beyond the university.
  • In 1972, Ed and other disability advocates
    started the first center for independent living
    in Berkeley.
  • In 1983, Ed co-founded the World Institute on
    Disability (WID), an advocacy and research center
    promoting the rights of people with disabilities
    around the world. Ed Roberts died unexpectedly on
    March 14, 1995.

16
IL Paradigm
MEDICAL MODEL INDEPENDENT LIVING
Definition of problem Physical/Mental impairment Dependence on others
Focus of problem Individual needs to be fixed Environment
Solution Professional intervention Barrier removal, advocacy, self-help
Who controls Professional Consumer
Social Role Patient or Client Consumer or User of services
17
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18
ABILs Tag Line
  • Advocacy and Programs
  • by and for
  • People with disabilities
  • Unofficial Motto
  • Nothing About us Without Us!

19
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20
Reality Today
  • Disability cuts across age, ethnicity, race,
    gender, sexual orientation, economic status,
    geography, urban/rural, and spiritual belief.
  • Disability is an equal opportunity club anyone,
    anytime can join!

21
Impact of Culture on View of Disability
  • Disability can be viewed through a cultural lens.
    It is important to understand how cultural
    beliefs may or may not shape the view of
    disability.
  • In some cultures, there may be shame attached to
    having a disability due to many reasons.
  • For example the traditional beliefs that
    disability is caused by witchcraft or that the
    individual, their immediate family, or their
    ancestors have committed a sin and the disability
    is a punishment for that sin.
  • In other cultures, the birth of a child with a
    disability might be viewed as Gods trust in the
    ability of the parents.

22
Impact of Culture on View of Disability (cont.)
  • In some cultures, there is a focus on the family
    unit. Family may be an important source of
    support and be involved in care of the loved one.
  • Spiritual and holistic treatments may be valued
    over traditional medicine.
  • Some types of disabilities are more prevalent
  • Native American communities have a high rate of
    diabetes and related complications, such as
    amputations.

23
  • What barriers do you think people with
    disabilities still have today?

24
  • How about
  • Transportation
  • Housing
  • Health
  • Employment
  • Stigma every system still needing to be
    educated

25
  • What stereotypes have you heard or seen about
    people with disabilities?

26
Negative Stereotypes
  • Group Brainstorming Get Wild!

27
Ouch!
28
Creative Responses
29
Fighting Fear of Disability
  • Disability is not a measure of character.
  • Disability is not contagious.
  • Most people with disabilities want to promote
    understanding.
  • People with disabilities would rather focus on
    their strengths than their weaknesses.
  • If you have questions about a disability, ask --
    within polite boundaries and if your question is
    relevant to the conversation.

30
What is Oppression?
  • Economic/political system where vast majority of
    people work to produce wealth for a small
    minority who own and control the wealth.
  • It causes disability
  • It stereotypes people with disabilities as less
    or non-productive, and by its own terms
    dis-values and further dis-ables us.

31
How Oppression Works
  • Every oppression relies on the psychological
    trick of separating one group from another by
    virtue of some real or imagined difference then
    using the difference for an excuse for
    mistreatment.
  • There is no normal everyone is different
    physically and mentally.

32
Results of Oppression
  • Negative Stereotyping
  • Discrimination
  • Segregation
  • Institutionalization
  • Inadequate Incomes
  • Economic Exploitation
  • Environmental Barriers to Mobility
  • Control of our Lives by Others
  • Internalized Oppression

33
Results of Oppression
  • Discrimination
  • Segregation
  • Institutionalization
  • Inadequate incomes Poverty!
  • PWD 16-64 only 37 were employed (2005) that is
    14M
  • For 65, 40.5 have 1 or more disabilities.
  • PWD 5yrs or over 21 are below the poverty level
    (8M) compared to 11 people with no disability.
    (2005)
  • Economic Exploitation sheltered workshops, low
    pay for care givers
  • Environmental Barriers to Mobility

34
Results of Oppression
  • Control of our Lives by Others
  • Less likely to vote
  • Less likely to run for office
  • More organizations for PWD than of PWD
  • Lack of political awareness
  • Feeling unattractive unlovable
  • Feeling we have no right to exist (the B word)
  • Lack of social skills
  • Youth and employment IEPs
  • Isolation from our allies

35
Control of our Lives by Others
36
Results of Oppression
  • Isolation and feeling left out
  • We dont show up!
  • Diverseness among ourselves
  • Denial of our disabilities and others
  • Blaming the disability for everything that is
    wrong
  • Compulsive cheerfulness
  • Compulsive misery

37
Internalized Oppression
  • Owning negative stereotypes as truth
  • For ourselves
  • For others with disabilities
  • We need our internalized oppression interrupted!
  • Encouragement to act outside the oppression Be
    Bold!
  • Knowing your legal rights and speaking up about
    them.

38
Civil Rights LawsCivil Rights Legislation began
to provide more rights and protections for people
with disabilities
  • Architectural Barriers Act (1968) prohibits
    architectural barriers in all federally owned or
    leased buildings.
  • Urban Mass Transit Act (1970) requires that all
    new mass transit vehicles be equipped with
    wheelchair lifts.
  • Rehabilitation Act (1973) particularly Title V,
    Sections 501, 503, and 504 prohibits
    discrimination in federal programs and services
    and all other programs or services receiving
    federal funding.

39
Progress !?!?!
40
Civil Rights Laws (cont.)
  • Air Carrier Access Act (1988) prohibits
    discrimination on the basis of disability in air
    travel and provides for equal access to air
    transportation services.
  • Fair Housing Amendments Act (1988) prohibits
    discrimination in housing against people with
    disabilities and families with children. Also
    provides for architectural accessibility of
    certain new housing units, renovation of existing
    units, and accessibility modifications at the
    renters expense.
  • Education of all Handicapped Children Act (PL
    94-142) (1975) requires free, appropriate public
    education in the least restrictive environment
    possible for children with disabilities. This
    law is now called the Individuals with
    Disabilities Education Act (IDEA).

41
Civil Rights Laws (cont.)
  • Americans with Disabilities Act (ADA) (1990)
    provides comprehensive civil rights protection
    for people with disabilities closely modeled
    after the Civil Rights Act and the Section 504 of
    Title V of the Rehabilitation Act and its
    regulations.

42
ADA Title I Employment
  • Title I requires employers with 15 or more
    employees to provide qualified individuals with
    disabilities an equal opportunity to benefit from
    the full range of employment-related
    opportunities available to others. For example,
    it prohibits discrimination in recruitment,
    hiring, promotions, training, pay, social
    activities, and other privileges of employment.

43
Title I Employment cont.
  • It restricts questions that can be asked about an
    applicant's disability before a job offer is
    made, and it requires that employers make
    reasonable accommodation to the known physical or
    mental limitations of otherwise qualified
    individuals with disabilities, unless it results
    in undue hardship. Religious entities with 15 or
    more employees are covered under title I.

44
ADA Title II State Local Government Activities
  • Title II covers all activities of State and local
    governments regardless of the government entity's
    size or receipt of Federal funding. It requires
    that governments give people with disabilities an
    equal opportunity to benefit from all of their
    programs, services, and activities (e.g. public
    education, employment, transportation,
    recreation, health care, social services, courts,
    voting, and town meetings).

45
ADA Title II State Local Government Activities
  • Title II covers all activities of State and local
    governments regardless of the government entity's
    size or receipt of Federal funding. It requires
    that governments give people with disabilities an
    equal opportunity to benefit from all of their
    programs, services, and activities (e.g. public
    education, employment, transportation,
    recreation, health care, social services, courts,
    voting, and town meetings).

46
ADA Title III Public Accommodations
  • Title III covers businesses and nonprofit service
    providers that are public accommodations,
    privately operated entities offering certain
    types of courses and examinations, privately
    operated transportation, and commercial
    facilities.

47
ADA Title III Public Accommodations
  • Public accommodations are private entities who
    own, lease, lease to, or operate facilities such
    as restaurants, retail stores, hotels, movie
    theaters, private schools, convention centers,
    doctors' offices, homeless shelters,
    transportation depots, zoos, funeral homes, day
    care centers, and recreation facilities including
    sports stadiums and fitness clubs. Transportation
    services provided by private entities are also
    covered by title III.

48
Reality Today
  • With this progress, people with disabilities
    still face significant challenges and barriers.
  • Affordable, accessible Housing
  • Access to medical care
  • Transportation
  • Higher rate of unemployment than the general
    population

49
Definition of Disability
  • A disability is an impairment that may be
    physical, cognitive, mental, sensory, emotional,
    developmental, or some combination of these. A
    disability may be present from birth or occur
    during a person's lifetime.
  • The majority of disabilities are hidden
    disabilities, that is a person cannot by
    identified as having a disability by simply
    looking at them.

50
Definition of Disability
  • Disabilities is an umbrella term, covering
    impairments, activity limitations, and
    participation restrictions.
  • An impairment is a problem in the function of the
    body or structure
  • An activity or functional limitation is a
    difficulty encountered by an individual in
    executing a task or action
  • A participation restriction is a problem
    experienced by an individual in involvement in
    life situations.

51
Disability Statistics Today
  • 2010 Population in USA 310 million
  • Population with Disabilities 54.4 million
  • 2009 Arizona population 6.5 million
  • Arizonans with disabilities 902,000
  • Source US Census Bureau

52
  • As professionals, we must be prepared to work
    with people with disabilities in a way that is
    empowering, respectful, and promotes their
    independence.
  • The language and etiquette we use is critical.

53
People First Language
  • Many people worry about how to talk to someone
    with a disability.
  • People First Language reflects good manners, not
    political correctness, and it was started by
    individuals who did not want to be labeled.

54
People First Language (cont.)
  • It helps us describe what a person has, not who a
    person is.
  • Why is People First Language important?
  • A persons self image is tied to the words used
    about him or her.

55
A Few Examples of People First Language
  • Children/adults with disabilities NOT
    Handicapped/the disabled/special needs
  • He has a cognitive or
  • intellectual disability
    NOT He's mentally retarded
  • He has a physical disability NOT He's a
    quadriplegic/crippled
  • She uses a wheelchair NOT She's
    confined to/ wheelchair bound/
    wheelchair person

56
More Examples of People First Language
  • He uses a power chair NOT Electric chair
  • He receives Special Ed services NOT He's in
    special ed/ a special ed kid
  • People without disabilities/non-disabled/
  • People who are not disabled NOT
    Normal or healthy people
  • Congenital disability/Brain injury
    NOT Birth defect/ Brain
    damaged
  • Stroke survivor/Cancer survivor NOT Stroke/Cancer
    Victim
  • Accessible parking, hotel room, etc.
    NOT Handicapped parking, hotel
    room, etc.

57
In Conclusion
  • Disability is a natural part of living. People
    with disabilities are not stereotypes. They
    dont want to be special or courageous,
    heroes or villains.
  • Using People First Language helps us talk about
    what a person has, not assume that is who the
    person is. Diagnosis should not be a label.
    Diagnosis are only to get services.
  • You have the power! Simple awareness and
    etiquette can help us be effective and empowering
    in our interactions with people with
    disabilities.
  • If you are not sure how to help, just ask!

58
  • Referrals
  • For further reading on disability history, check
    out the book No Pity by Joseph Shapiro.
  • For further reading on People First Language,
    visit www.disabilityisnatural.com
  • To find more about civil rights go to www.ada.gov
  • For accommodation expertise contact the Job
    Accommodation Network www.jan.gov
  • National Council on Independent Living
    www.ncil.org

59
ARIZONA BRIDGE TO INDEPENDENT LIVING
  • Phoenix
  • 5025 E. Washington St., Ste. 200 (602) 256-2245
  • 1229 E. Washington St. (602) 296-0551
  • Glendale
  • 6829 N. 57th Ave. (602) 424-4100
  • Mesa
  • 2150 S. Country Club Drive, Ste.10 (480) 655-9750
  • Website www.abil.org
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