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Ethics

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Ethics National Judging Advisory Committee – PowerPoint PPT presentation

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Title: Ethics


1
Ethics
  • National Judging Advisory Committee

2
YSF Ethics
Developing Awareness, Understanding and
Compliance
Judith Soon Patrick Whippey
3
We are discussing no small matter, but how we
ought to live. Socrates
Knowledge without conscience spells but the
destruction of the soul. Francois Rabelais
Business in Canada must have a conscience and
ethics. Lt.-Gen. Roméo Dallaire
4
Goals
  • To present the information that Regional Science
    Fair Committees need to understand the ethical
    issues
  • To define clearly the rules that participants
    must follow
  • To make it easy for participants to follow the
    rules

5
Background
  • Regional Science Fairs (RSF) need to ensure that
    projects comply with YSF rules and regulations
  • Need to get out of the mode of Backwards
    Compliance and surprises at the CWSFs
  • Help us encourage Canadas young scientists to
    conduct ethical and sound research

6
National Judging Advisory Committee
  • The National Judging Advisory Committee (NJAC)
    monitors YSF Canada policies and procedures
    relating to all aspects of judging

7
YSF Canada Ethics Committee
  • Responsible for the oversight of human and
    animal research at RSF and CWSF
  • Reviews challenging projects submitted by RSF
    Ethics Committees

8
Ethics What Types of Research?
  • Human Research
  • Ingestion and absorption
  • Psychological risk
  • Physical activities
  • Animal Research
  • Inhumane treatment

9
Regional Science Fair Ethics Committee
We propose to change this to required
  • Each region is expected to set up an Ethics
    Committee which will become knowledgeable about
    the rules and ethical issues related to student
    research

10
Ethics Review Committee
  • A group of adults knowledgeable about regulations
    concerning experimentation in restricted areas
  • Role is to educate and support
  • Members (1-3 people)
  • Ethics Consultant
  • Veterinarian
  • Health care professional
  • RSF Chief Judge

11
Ethics Review Process
  • All animal research
  • All human research
  • Research proposals must be reviewed by the RSF
    Ethics Committee
  • An Adult and Scientific Supervisor are required

12
Adult Supervisor
  • Required for projects involving human and animal
    research
  • Parent, teacher or scientist
  • Ensures student understands ethical issues at an
    appropriate level
  • Ensures YSF rules are followed

13
Scientific Supervisor
  • Involved if there is more than trivial risk
  • Often located in University or industrial
    laboratory setting
  • Usually has professional qualifications
  • May be the Adult Supervisor

14
Ethics Review Process
  • Can use primarily email and phone discussions
  • Communicate Ethics Rules and expectations to
    teachers, students and parents
  • Be prepared to enforce the rules

15
Challenging Issues
  • RSF Chief Judge refers to YSF Ethics Committee
  • Chair, Dr. Patrick Whippey
  • After seeking appropriate professional advice,
    the Committee will assist students where possible
    so that the methodology can meet the ethical
    rules for animal or human research

16
Human Participation Low Risk Projects
  • Surveys of attitudes and beliefs
  • Skill tests
  • Observations of behaviour
  • 4.1A Approval of Low Risk Projects

17
One Minute Moment
  • Examples of a low risk survey?

18
Human Participation High Risk Projects
  • Everything Else

19
High Risk Projects
  • Approval required before experiments begin
  • Projects often done in a research laboratory
  • Reviewed by RSF Ethics Committee
  • 4.1B Application For Review of Research with
  • Human Participants Involving
    Significant Risk
  • 4.1C Human Animal Research Approval

20
One Minute Moment
  • Examples of surveys with significant risk?

21
Informed Consent
  • Is a process
  • Ethics committee in place
  • Points student supporting adults to ethics web
    site
  • Reviews the Informed Consent Form
  • Ensures the required elements are present.
  • Monitors compliance by the student participants

22
Informed Consent Form Low High Risk projects
  • The right to be informed of risks
  • The right to remain anonymous
  • The right to withdraw
  • at any time
  • for any reason
  • The right to be informed of the results
  • Informed Consent Form

23
What is a Drug?
  • Health Canada definition
  • Drug" includes any substance or mixture of
    substances manufactured, sold, or represented for
    use in(a) the diagnosis, treatment, mitigation
    or prevention of a
  • disease, disorder, abnormal physical
    state, or its
  • symptoms, in humans or animals(b)
    Restoring, correcting, or modifying organic
    functions
  • in human beings or animals (c)
    Disinfection in premises food is manufactured,
  • prepared or kept.

24
Questions to ask of Projects with Human
Participation
  1. Is the project high or low risk?
  2. Is there supervision by an appropriate scientific
    advisor?
  3. Is the student familiar with the ethics web
    site(s).
  4. Does the informed consent form have all the
    required elements?
  5. Is the student familiar with the definition of a
    drug?
  6. Is a drug involved?

25
Non-Vertebrate AnimalsExcept Cephalopods
  • Allowed

26
Vertebrate Animals, (fishes, amphibians, birds,
reptiles, mammals) Cephalopods(Octopus, Squid,
Cuttle Fish)
  • Allowed only under four conditions
  • Observation only
  • Behavioural experiments
  • Projects conducted in a registered laboratory
  • Studies of embryos
  • 4.1C Human Animal Research Approval

27
Questions to ask if Animals are involved
  • Is the animal governed by the rules for
    vertebrates or invertebrates?
  • Is there supervision by an appropriate scientific
    advisor?
  • Is the student familiar with the ethics web
    site(s)?
  • Invertebrates any scientifically legitimate
    project is allowed.
  • Vertebrates is it one of the four types of
    projects allowed?

28
Case Study of Diabetes
  • Angelas mother is trained as a medical
    professional. She works in a community health
    clinic that supports a minority group with a high
    incidence of diabetes. Angela asked the RSF
    Ethics Committee for permission to
  • Take blood pressure
  • Take a blood sample to check the amount of HbA1c
    (long-term glucose) in the blood (her mother
    will take the actual sample)
  • Measure weight and waistline, and survey dietary
    habits of clients
  • Give a dose of the natural herb Gymnema Sylvestre
    daily to 12 clients for a month to see if it
    improves blood sugar levels.

29
Questions to be Asked?
  • Is Angela knowledgeable about the rules for
    Ethical Research that govern such a study?
  • Is this project being supervised by a research
    professional?
  • Is Gymnema Sylvestre used in this context a drug?
  • Is this being conducted in a vulnerable
    population?
  • Has it been approved by her school?
  • If this project is selected for CWSF, must it be
    disqualified?

30
Off-Side Projects
  • Please do not send projects that are in
    violation of the Ethics Rules to the CWSF,
  • no matter how meritorious

We get two or three a year that are in clear
violation
We are raising the bar
31
Resources
  • YSF Web Site Devoted to Ethics - New
  • http//www.ldstf.ca/ethics/
  • YSF Policy Manual the Official Rules
  • http//www.ysf.ca/Members/policydirectory.aspx

32
Summary
  • Adopt the YSF Ethics Rules for your Regional
    Science Fair
  • Form a Regional Science Fair Ethics Committee
  • Developing awareness and understanding of the
    ethical issues involved with Science Fairs will
    empower Canadas young scientists to conduct
    ethical and sound research

33
Questions?
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