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The stroke and aphasia quality of life scale (SAQOL-39g) in Greek: Psychometric

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The stroke and aphasia quality of life scale (SAQOL-39g) in Greek: Psychometric evaluation K. Hilari1, 3, E. Efstratiadou1,3, M. Ignatiou1, V. Christaki1, E. Chelas1 ... – PowerPoint PPT presentation

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Title: The stroke and aphasia quality of life scale (SAQOL-39g) in Greek: Psychometric


1
The stroke and aphasia quality of life scale
(SAQOL-39g) in Greek Psychometric evaluationK.
Hilari1, 3, E. Efstratiadou1,3, M. Ignatiou1, V.
Christaki1, E. Chelas1, I. Papathanasiou 1, 2,
3 1, Division of Language and Communication
Science, SHS, City University London,UK2Departmen
t of Speech and Language Therapy, TEI of Western
Greece Patras, Greece3Thalis Aphasia Project,
Department of Linguistics, School of Philosophy,
University of Athens, Greece
  • Background
  • Health-related quality of life (HRQL) reflects
    the impact of a health state on a person's
    ability to lead a fulfilling life.1
  • HRQL measures allow the clinician to understand
    and measure the impact of disease on a clients
    life as a whole2, to evaluate the efficacy of
    different therapeutic interventions and service
    provisions3 and to incorporate the patient's
    perspective in clinical decision-making.4
  • The Stroke and Aphasia Quality of Life scale-39
    item generic version (SAQOL-39g) is an English
    questionnaire that measures HRQL in people with
    stroke and aphasia.
  • SAQOL- 39 has been translated and culturally
    adapted for use in Greece5, where currently there
    is no other measure for the assessment of HRQL
    with people with aphasia.
  • Current study
  • Two studies were carried out to examine the
    psychometric properties of the Greek SAQOL-39g
  • test-retest reliability
  • proxy and self-report agreement and
  • construct validity
  • Study design
  • Interview-based psychometric study.
  • Participants were over six months post-stroke and
    medically stable. They had to be gt 18 years old
    and to score 7/15 on the receptive sub-tests of
    the Frenchay Aphasia Screening Test (FAST) in
    order to be able to self-complete the measures
    used.
  • Number of participants
  • Test-retest reliability was tested in a sample of
    26 people with aphasia.
  • Proxy and self-report agreement was tested on 23
    of the above sample and their partners.
  • Construct validity was tested on 60 people with
    stroke 24 of whom had aphasia.
  • Measures
  • Participants with stroke (/- aphasia) Greek
    SAQOL-39g, General Health Questionnaire-12,
    Frenchay Activities Index, Montreal Cognitive
    Assessment and Barthel Index.
  • Proxies complete Greek SAQOL-39g proxy version,
    General Health Questionnaire-12 and Caregiver
    Strain Index.
  • All participants were interviewed once except of
    the 26 participants which were tested for the
    test-retest reliability. They were interviewed
    two times in a period of 2-14 days in order to
    collect test-retest reliability data for the
    Greek SAQOL-39g

Participant characteristics Participant characteristics Participant characteristics
Variable Validity Test - retest
Participants n60() Participants n26()
Gender Female Male 13 (21.7) 47 (78.3) 6 (23.1) 20 (76.9)
Age Mean (S.D.) 66.68 (8.03) Range 42 86 Mean (S.D.) 60.7 (10.7) Range 39 - 81
Stroke type Ischaemic Haemorrhagic 36 (60) 24 (40) N/A N/A
Aphasia Aphasic No Aphasic 24 (40) 36 (60) 26 (100) 0 (0)
Results Results
Test retest reliability Scale Sub - domains ICC 0.96 ICC 0.89 0.97
Proxy and self-report agreement Scale Sub-domains ICC0.96 ICC0.83 0.99
Internal Consistency Overall score Sub domains a0.96 a0.83 0.99
Validity Convergent Validity Overall score Sub - domains Discriminant Validity Overall score Sub domains r 0.53 0.80 r 0.54 0.89 r0.52 r0.04 0.48
  • Conclusions
  • The Greek SAQOL-39g demonstrated excellent
    test-retest reliability, proxy and self-report
    agreement, internal consistency and good
    convergent and discriminant validity.
  • The findings suggest that the Greek SAQOL-39g can
    be used to evaluate health-related quality of
    life in stroke survivors with and without
    aphasia.
  • The results are in line with those of the
    SAQOL-39g tested in the UK6.
  • Using the Greek SAQOL-39g, proxy raters can
    provide useful information on the HRQL of PWA.
  • The client is the most appropriate source of
    information on their own HRQL and proxy reports
    should be used only when people with aphasia are
    so severely affected that they are unable to
    self-report.

References 1. Bullinger M., Anderson R., Cella
D., Aaronson N. Developing and evaluating cross
cultural instruments from minimum requirements
to optimal models. Qual Life Res 1993 2 451-
459., 2. Patrick D.L., Erickson P. Assessing
health-related quality of life for clinical
decision making. In Walker S.R., editor. Quality
of life assessment key issues in the 1990's.
Dordrecht Kluwer Academic Publishers 1993.p.11
- 63., 3. De Haan R., Horn J., Limburg M., Van
Der M.J., Bossuyt P. A comparison of five stroke
scales with measures of disability, handicap, and
quality of life. Stroke 1993 24 1178 - 1181.,4.
Mayou R., Bryant B. Quality of life in
cardiovascular disease. BMJ 1993 69 460 - 466.,
5. Kartsona A., Hilari K. Quality of life in
aphasia Greek adaptation of the stroke and
aphasia quality of life scale 39 item (SAQOL
39). Eura Medicophys 2007 43 27 - 35., 6.
Hilari K., Byng S. Health-related quality of life
in people with severe aphasia. International
Journal of Language Communication Disorders
2009 44 193 205.
This research has been co-financed by the
European Union (European Social Fund ESF) and
Greek national funds through the Operational
Program "Education and Lifelong Learning" of the
National Strategic Reference Framework (NSRF) -
Research Funding Program THALIS UOA - "Levels
of impairment in Greek aphasia Relationship with
processing deficits, brain region, and
therapeutic implications", Principal
Investigator Spyridoula Varlokosta.
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