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Special Educational Needs and Disability (SEND) Project Network Thursday 6 February 2013 National Council for Voluntary Organisations


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Title: Special Educational Needs and Disability (SEND) Project Network Thursday 6 February 2013 National Council for Voluntary Organisations

Special Educational Needs and Disability (SEND)
Project NetworkThursday 6 February
2013National Council for Voluntary Organisations
Our objectives for today
The SEND reformsJames CooperPublic Affairs
and Policy OfficerTogether for Short Lives
The SEND reforms
  • The Governments vision for reform
  • Progress to date
  • The implications for childrens palliative care

The Government's vision for reform
Problem with the current system
  • Its a minefield and you get frightened going
    through it. Services dont join up and people
    dont explain things to you. They dont tell you
    what all the services actually do. By the time I
    had made it all fit together my child had passed
    away - that makes me sad that he could have had
    so much more out of life..

The proposals for reform
  • New requirement for local authorities, health and
    care services to commission services jointly, to
    ensure that the needs of disabled children and
    young people and those with SEN are met.
  • Local authorities to publish a clear, transparent
    local offer of services, so parents and young
    people can understand what is available
    developed with parents and young people.
  • More streamlined assessment process, which
    integrates education, health and care services,
    and involves children and young people and their

The proposals for reform (continued)
  • New 0-25 Education, Health and Care Plan,
    replacing the current system of Statements and
    Learning Difficulty Assessments, which reflects
    the child or young persons aspirations for the
    future, as well as their current needs.
  • Option of a personal budget for parents of
    children with a Plan and young people with a
    Plan, extending choice and control over their
  • New statutory protections for young people aged
    16-25 in further education and a stronger focus
    on preparing for adulthood.

The proposals for reform (continued)
  • Academies, Free Schools, Further Education and
    Sixth Form colleges, independent special schools
    / colleges can be named in EHC Plans.
  • Involvement of children, young people and parents
    in developing assessments and local offers.
  • Key strands
  • Parent participation.
  • Preparing for adulthood.
  • Key working .

Our position on the Children and Families Bill
Our position on the Bill
  • We strongly support the aspirations of the
    reforms however, we retain a number of
    reservations about the Children and Families
    Bill, which will enshrine the reforms in law
  • EHC Plans should be made available to all
    disabled children, including those without a
    statement of SEN - 25 of disabled children do
    not have an SEN statement .
  • Without this, children who need palliative care
    but who are able to attend mainstream school will
    not benefit from the reforms - e.g. children with
    cystic fibrosis, liver failure and cancer.

Our position on the Bill
  • The entitlement to Education, Health and Care
    Plans (EHCPs) should extend to all disabled 18 to
    25 year olds, including those no longer in

The SEND pathfinder programme
The pathfinders
  • Since 2011, 20 pathfinders, involving 31 local
    authorities and health bodies, have been working
    towards the following objectives
  • Developing a new birth to 25 assessment process
    and a EHCP.
  • Exploring how the voluntary and community sectors
    can introduce more independence to the process.
  • Ensuring that children and young people, their
    parents and families are fully engaged.
  • Ensuring that schools and colleges are fully

The pathfinders (continued)
  • Choice, control and outcomes for children and
    young people are encouraged through the use of
    personal budgets and direct payments.

The pathfinder sites
Progress to date
Developments to date
  • September 2011 Government Green Paper published
    pathfinders planned and initiated.
  • Spring 2012 Pathfinders - families recruited and
    new testing of new approaches begun DfE
    publishes Support and aspiration Progress and
    next steps.
  • September 2012 Draft SEND clauses published for
    pre-legislative scrutiny by Education Select
  • December 2012 Pre-legislative scrutiny report

Developments to date
  • January - June 2013 House of Commons scrutiny of
    Bill Government amends Bill to include stronger
    duties on the NHS to deliver the single
    assessments and EHCPs
  • March 2013 Interim pathfinder report published
    new draft SEN code of practice and regulations
  • June 2013 present House of Lords scrutiny of
    Bill more Government amendments
  • new duties on all types of state schools
    (excluding early years providers) to support
    pupils who have medical conditions.

Developments to date
  • amendments to include all disabled children and
    young people within the scope of the Bill -
    including in local offers and joint commissioning
  • September 2013 Draft SEN Code of Practice and
    regulations published for consultation
  • local agencies must include childrens palliative
    care as part of their SEN planning.
  • local offers must include information about
    healthcare provision for children and young
    people with SEN this should include palliative
    and respite care and other provision for children
    with complex health needs.

Developments to date
  • December 2013 DfE publishes implementation pack
    for local authorities Mott Macdonald publishes
    Pathfinder information packs.
  • February 2014 more DfE amendments to strengthen
    rights of parent carers - including access to
    automatic assessments consultation on statutory
    guidance for supporting pupils at school with
    medical conditions
  • where pupils have life threatening conditions,
    specific transport healthcare plans should be
    carried on vehicles.
  • governing bodies should consider that conditions
    that require school support may be

Developments to date
  • February 2014 (continued) - DfE have also
    committed to
  • clarifying local authorities duties in
    delivering social care elements of EHC Plans
  • review complaints and appeals in relation to
    those with EHC Plans pilots will examine how
    SEND Tribunal can link up complaints and appeals

The implications for childrens palliative care
Implications for CPC
  • Opportunities
  • More integrated assessments and services for
    children, young people and families.
  • Opportunities for services to be included in
    local offers and CPC recognised in Joint
    Strategic Needs Assessments - enhanced by code of
  • More chance of NHS and local authorities jointly
    commissioning CPC services.
  • Potential for better links with schools and
    other education providers.

Implications for CPC
  • Threats
  • Potential risk to prospects of being commissioned
    if not included in local offers.
  • Services may become less attractive to families
    if they are not included in the local offers.
  • Personal budgets changes to funding streams for
    services increased competition from other
    providers difficult conversations with families.

Next steps
Next steps England-wide
  • Early 2014 Bill will receive Royal Assent .
  • April 2014 The SEND regulations, statutory
    guidance and transitional arrangements will be
    published .
  • September 2014 legislation will comes into
    force children and young people with existing
    SEN statements and LDAs will begin to transfer to
    the new system.
  • Until March 2015 pathfinder programme will
  • Also during 2014 public consultation on
    statutory guidance on new duties on schools to
    support pupils who have medical conditions.

Next steps local strategy
  • Local milestones
  • Until March 2014 each local area raising
    awareness of reforms and appointing local lead
    for SEND reform.
  • January - August 2014 planning service delivery
    and preparing for implementation. Local
    transition plan should be published in June.
  • September 2014 local offer published newly
    referred children and young people assessed under
    new system and given EHC plan those already with
    statements and LDAs begin to transfer to the new
    system personal budgets available.

Next steps local services
  • Now - September 2014
  • Joint commissioning plans
  • The local offer
  • Processes for assessment, planning and EHC plans
  • Services to be provided through personal budgets
  • Planning provision of local information, advice
    and support (with users)
  • Reviewing and developing local mediation and
    disagreement resolution arrangements
  • Engaging local partners, including further
    education and training providers.

Next steps local services
  • September 2014 onwards
  • Joint commissioning underway locally - needs
    assessment, planning, market development,
    collaboration with families.
  • Regular review and raising awareness of local
  • Annual reviews of EHC plans.
  • Transfer of children and young people with
    existing statements and Learning Difficulty
  • Review service budgets to offer increased
    personal budgets - and information, advice and
    support available to families.

SEND Project improving engagement with
children's palliative careAndrew Fletcher6
February 2014
SEND reform evaluation
  • Good progress made by many Pathfinders in many
    areas but
  • Poor representation from health agencies
  • Uncertainty about the role the voluntary sector
    could and should play
  • Significant opportunities to add value as
  • An England wide network of providers
  • Health interventions, often in complex care
  • Delivered largely through the voluntary and
    community sector

The SEND project
Project objectives
  • Children and young people with life-limiting and
    life-threatening conditions are included in
    Pathfinder testing and benefitting from greater
  • Childrens hospice and palliative care providers
    play an active role in supporting the Pathfinders
    and in the delivery of the reforms.
  • Schools and health and social care services are
    better equipped to support children with
    life-limiting conditions

Project activity
  • Work with Pathfinders to encourage inclusion of
    children with life-limiting and life-threatening
    conditions and the services that support them
  • Develop resources, workshops and tools to help
    voluntary childrens hospice and palliative care
    services to engage with local authority and
    health commissioners and support families in
    using personal budgets.
  • Strengthen understanding of childrens
    palliative care across health, social care and
    education, including schools.

Project activity
  • Support engagement with young people who need
    palliative care so that they have a voice in the
    development of their personalised plans
  • Identify and disseminate examples of good
    practice via case studies, web hub and
  • Support the childrens palliative care sector
    in non-Pathfinder areas in readiness for the
    future roll out of new SEND system

For children and families
  • Greater understanding of their needs in
    Pathfinder areas
  • More are included in the testing of the reforms
  • Improved support within schools as a result of
    schools resources
  • They are better supported to understand and use
    personal health budgets
  • In the longer term, childrens palliative care
    is embedded in Local Offers

For providers
  • Build new relationships with local authorities,
    which will play an increasing role in planning
    and commissioning.
  • Position services as key providers of specialist
    support locally
  • Better understand and influence how joint
    commissioning might work in the future.
  • Be better prepared for the introduction of
    Personal Budgets, including their extension into
  • Improve links with schools and other agencies
  • Help to embed childrens palliative care services
    in the Local Offer.

Progress to date
  • Established the project, including the steering
    group with representatives from families,
    providers and national partners
  • Appointed the Centre for Children and Families
    Applied Research at Coventry University to
    evaluate the project
  • Launched a bi-monthly e-newsletter for the
    childrens palliative care sector on the reform
    and the project
  • Launched dedicated web space www.togetherforshort
  • Mapped childrens palliative care services
    within the pathfinder areas and secured their

Progress to date
  • Presented to Pathfinder network, organised by
    National delivery agency Mott Macdonald
  • Approached Pathfinders individually to seek an
    initial meeting with local services to discuss
    the project
  • Secured 12 introductory engagement meetings with
    Pathfinder areas and local services with a
    further 5 planned
  • Delivered Personal Budgets workshop for
    voluntary providers in November and shared
    briefing from it
  • Scoped a toolkit for providers to influence
    their local authorities and Pathfinders
  • Exploring how to support non-Pathfinder areas

Coming up
  • Ongoing 11 engagement with Pathfinders
  • Rolling out the local engagement resource for
    all providers of childrens palliative providers
  • Resources for providers to support them to use
    personal budgets (March)
  • National Network meetings of local services to
    share information about the reform and the
  • Regional events for schools and local agencies
    on childrens palliative care (April-July 14)
  • Resources for schools to better support children
    who need palliative care (Oct 14)

Evaluating the project
  • Coventry University independently evaluating the
  • Baseline surveys of services, pathfinders and
  • Evaluation of resources, events and workshops
  • Interim evaluation in April 2014
  • Further evaluation surveys in 2014
  • Final evaluation in March 2015

How you can get involved
  • Share information about the project within your
    service and wider network
  • Are there examples of good partnership working
    between health, education and social care in your
    area? Share them with us for the web hub and
  • Support us by participating in Pathfinder
    engagement work locally
  • Attend regional network events and share your

  • Andrew Fletcher
  • Director of External Affairs
  • Together for Short Lives
  • Tel 0117 9102 464
  • Email andrew.fletcher_at_togetherforshortlives.org.u
  • Visit www.togetherforshortlives.org.uk/sendprojec

Any questions?
  • What are the opportunities for local services to
    be able to better integrate services for children
    who need palliative care?
  • What are the barriers?
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