Maximizing the Use of the New National Data Sets Providing Information on Children and Youth with Special Health Care Needs - PowerPoint PPT Presentation

Loading...

PPT – Maximizing the Use of the New National Data Sets Providing Information on Children and Youth with Special Health Care Needs PowerPoint presentation | free to download - id: 59b253-ZDgyN



Loading


The Adobe Flash plugin is needed to view this content

Get the plugin now

View by Category
About This Presentation
Title:

Maximizing the Use of the New National Data Sets Providing Information on Children and Youth with Special Health Care Needs

Description:

Maximizing the Use of the New National Data Sets Providing Information on Children and Youth with Special Health Care Needs Moderator: Christina Bethell, PhD, MBA, MPH – PowerPoint PPT presentation

Number of Views:426
Avg rating:3.0/5.0
Slides: 75
Provided by: ohsu96
Category:

less

Write a Comment
User Comments (0)
Transcript and Presenter's Notes

Title: Maximizing the Use of the New National Data Sets Providing Information on Children and Youth with Special Health Care Needs


1
Maximizing the Use of the New National Data Sets
Providing Information on Children and Youth with
Special Health Care Needs Moderator Christina
Bethell, PhD, MBA, MPH Oregon Health and Science
University The Child and Adolescent Health
Measurement Initiative Child Health Services
Research Meeting June 25 2005 Boston
Massachusetts
2
Purpose
  • Advance understanding and widespread and valid
    use of the National Survey of Children with
    Special Health Care Needs and the National Survey
    of Childrens Health for research, policy and
    advocacy purposes

3
Panel Presentations
  • Stephen J. Blumberg, PhD
  • Overview of the national data sets and issues to
    consider when analyzing and comparing findings
    across these data
  • Debra Read, MPH
  • Models, methods and findings for stratifying
    findings from national data sets by subgroups of
    children and youth with special health care needs
  • Virginia Sharp, M.A
  • Methods, opportunities and limitations in
    evaluation national data sets at a substate
    geographic level
  • Christina Bethell, PhD
  • Overview of The Data Resource Center on Child and
    Adolescent Health as a tool for easily accessing,
    analyzing and learning about findings from the
    national data sets

4
CSHCN Screener
  • Developed to operationalize the federal MCHB
    definition of CYSHCN
  • Children with special health care needs are
    children who have or are at risk for a chronic
    physical, developmental, behavioral, or emotional
    condition and who also require health and related
    services of a type or amount beyond that required
    by children generally.

5
CSHCN Screener
  • Five item consequences-based, parent reported
    screening tool that is not based on a condition
    check-list or ICD-9/10 diagnostic codes
  • Identifies children and youth who currently
    experience one or more of five health or health
    need consequences due to an ongoing health
    condition.
  • Current use of RX meds for ongoing condition
  • Above routine use of medical, mental or other
    type of health services for ongoing condition
  • Need or use specialized therapies for ongoing
    condition
  • Need or use treatment or counseling for an
    ongoing emotional, developmental or behavioral
    health condition
  • Functional difficulties/problem doing things
    other children his/her age can do due to ongoing
    condition

6
CSHCN Screener
  • Developed through an extensive survey design and
    item reduction process and validation against
    administrative and medical chart review data
  • Compared to 39 item QUICC and 16 item QUICC-R
  • Compared to Clinical Risk Groups (CRG)
    methodology
  • 85 identified also qualified using CRG method
    and had a recorded diagnosis using ICD-9/10 data.
    Those without a diagnosis disproportionately
    represented by emotional, behavioral or
    developmental
  • While CYSHCN have many more than the five
    consequences represented in the CSHCN Screener,
    all have at least one of the five represented
    according to the MCHB definition

7
The Data Resource Center on Child and Adolescent
Health (DRC) Presented by Christina Bethell,
PhD Co-Developers Debra Read, Nora Wells,
Brooke Latzke, Dana Zive, NCHS, National
Advisors, consultants and other staff Funding
Agency The federal Maternal and Child Health
Bureau, HRSA
8
What is the Data Resource Center?
  • A website that delivers
  • Hands-on, user-friendly access to national, state
    and regional data from the 2001 NS-CSHCN and the
    2003 National Survey of Childrens Health (NS-CH)
  • Technical assistance by email/telephone and
    online materials, such as examples of data use by
    states and links to related websites
  • Education -- thru hot topic e-updates
    in-person, telephone, and online workshops

9
(No Transcript)
10
(No Transcript)
11
(No Transcript)
12
Motivation for Developing the DRC
  • The importance of information on child and youth
    health and health care quality is widely
    acknowledged.
  • In recent years, with the leadership of federal
    agencies such as the Maternal and Child Health
    Bureau, previously unavailable national, state,
    and regional level data on child and youth
    health, health services need and use, and health
    care quality has been collected.
  • This information is particularly relevant to
    state and federal policymakers as well as health
    care providers and family and community
    leadersmany of whom lack the resources or skills
    to easily access this data.

13
Goals for Developing the DRC
  • The free, web-based, publicly accessible Data
    Resource Center on Child and Adolescent Health
    was developed to
  • eliminate barriers faced by policy, provider, and
    advocacy audiences in obtaining information in a
    real time and user-friendly manner
  • build data literacy
  • further advance evidence-based policy, program
    development, and advocacy on behalf of children,
    youth and families

14
(No Transcript)
15
Data Resource Center Functions
  • Directly search for data from a set of
    standardized measures about child, youth and
    family health, needs, and health care quality
  • Interactively compare national, state, and
    regional survey results by geographic area and
    socio-demographic groups
  • Learn to use data more effectively to assess
    needs and performance as well as to check
    assumptions
  • Discover how other state and family leaders are
    using data to inform and stimulate
    systems development and change
  • Get expert help via e-mail, telephone, or
    through a series of in-person or online skills
    building workshops

16
NSCH Survey questions address
  • Child health functional status
  • Health insurance
  • Health care access utilization
  • Medical Home
  • Early childhood (ages 0-5)
  • Middle childhood adolescence (ages 6-17)
  • Family functioning
  • Parental health
  • Neighborhood characteristics

17
Survey yields over 60 key indicators of child
health well-being in the following areas
  • Childs health status physical, emotional,
    dental
  • Childs health care including medical home
  • Childs school activities
  • Childs family including maternal health status
  • Child Familys neighborhood

18
NS-CSHCN Data Search Topics
  1. Children with without special health needs
  2. Households with without CYSHCN
  3. CYSHCN population only
  4. Demographics (all children or all households)
  5. CYSHCN Health functioning (Section 3)
  6. CYSHCN Access to services unmet needs
    (Section 4)
  7. CYSHCN Health care experiences (Section 6)
  8. CYSHCN Insurance status (Section 7)
  9. CYSHCN Adequacy of insurance coverage (Section
    8)
  10. CYSHCN Impact on family (Section 9)
  11. MCHB core outcomes for CYSHCN
  12. State profile key indicators

19
Data Resource Center Applications
  • Identifying/documenting needs
  • How many children have what needs?
  • How does data support what users are hearing from
    the field (providers, families, other agencies)?
  • Building improvement partnerships
  • What partners could use this data public
    programs, health plans, hospitals, providers,
    community groups, faith-based organizations?
  • Using data to inform and focus efforts to improve
    care.

20
Data Resource Center Applications
  • . Educating policymakers
  • What are key policy issues for your state or
    population of interest?
  • What programs need what information?
  • What data could help them learn about child
    health needs?
  • Advocacy
  • Are there anticipated key pressure points in
    program budgets or priorities?
  • What methods would be most effective in
    presenting your case?
  • How could you use data in fact sheets, testimony,
    and the media, along with family stories?
  • Grant Writing
  • Using data to frame the need and design

21
Data Resource Center Status and Future Development
  • Status of DRC Web Portals
  • www.cshcndata.org launched April
    2004(Approximately 105,000 hits prior to
    outreach and marketing.)
  • www.nschdata.org soft launch May 2005(Over
    82,000 hits prior to hard launch or outreach
    and marketing.)
  • Future Development
  • Starting in July 2005, the DRC will move into an
    outreach and marketing phase to motivate and
    expand use of data by non-technical and other
    audiences.
  • The DRC will be further developed on an ongoing
    basis and is expected to include data from
    additional surveys over time.
  • New features will include the capacity for
    sub-state geographic analyses, trending data
    (when future years of data are included),
    querying multiple indicators at one time, and new
    online workshops, resources, and examples for
    using data to stimulate systems change.

22
Data Search Recipe
23
  • Data Resource Center
  • for the
  • National Survey of Childrens Health and the
    NS-CSHCN
  • Online Tour

24
Using data to stimulate system changeThe QUEST!
  • Question What is the actionable question?
  • Understanding What are the relevant variables,
    measures and analyses to address the question?
  • Efficiently and effectively analyze data
  • Synthesize and summarize results in a relevant
    manner for each audience
  • Tell the story and take action!

25
Visit soon!
  • National Survey of Children with Special Health
    Care Needs
  • www.cshcndata.org
  • National Survey of Childrens Health
  • www.nschdata.org

26
(No Transcript)
27
(No Transcript)
28
(No Transcript)
29
(No Transcript)
30
(No Transcript)
31
(No Transcript)
32
(No Transcript)
33
(No Transcript)
34
(No Transcript)
35
(No Transcript)
36
(No Transcript)
37
(No Transcript)
38
(No Transcript)
39
(No Transcript)
40
(No Transcript)
41
(No Transcript)
42
(No Transcript)
43
(No Transcript)
44
(No Transcript)
45
(No Transcript)
46
(No Transcript)
47
(No Transcript)
48
(No Transcript)
49
(No Transcript)
50
(No Transcript)
51
(No Transcript)
52
(No Transcript)
53
(No Transcript)
54
(No Transcript)
55
(No Transcript)
56
(No Transcript)
57
(No Transcript)
58
(No Transcript)
59
(No Transcript)
60
(No Transcript)
61
(No Transcript)
62
(No Transcript)
63
(No Transcript)
64
(No Transcript)
65
(No Transcript)
66
(No Transcript)
67
(No Transcript)
68
(No Transcript)
69
(No Transcript)
70
(No Transcript)
71
(No Transcript)
72
(No Transcript)
73
(No Transcript)
74
(No Transcript)
75
(No Transcript)
About PowerShow.com