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Building a Coalition to End the Inappropriate Use of Seclusion

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... use of seclusion and/or restraint with their children, youth or adults with disabilities in the schools and/or CBRF with which they work. – PowerPoint PPT presentation

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Title: Building a Coalition to End the Inappropriate Use of Seclusion


1
Building a Coalition to End the Inappropriate Use
of Seclusion Restraints on Children
  • Children Come First Conference
  • Wisconsin Dells, WI
  • November 16, 2009

2
Presentation Overview
  • Seclusion/Restraint Coalition
  • Wisconsin S/R Issues
  • Initial Coalition Activities
  • Current Coalition Efforts
  • Future Plans

3
Seclusion/Restraint Coalition
  • vv
  • Vv
  • Other groups

4
Genesis of the Coalition
Angies death
  • Individual groups push DHS for S/R summit
  • No consensus on restraint at follow-up meeting
  • Request for moratorium on holds that restrict
    breathingfinally granted by DHS and DCF
  • DHS initiates S/R Practice workgroup

5
Wisconsin S/R Issues
  • Families seeking help related to use of S/R with
    their children
  • Media reports of S/R incidents causing injury or
    death to students
  • DPI Guidelines for the Appropriate Use of
    Seclusion
    Physical Restraint in Special

    Education Programs
  • WI Patients Rights law not
    updated
    since 1970s
  • WI has no statute or admin. code relating to S/R
    in special ed. programs previous attempts to
    pass have failed
  • Need to build a coordinated, grassroots effort

6
Initial Coalition Activities
  • Requested Legislative Council Study on S/R
  • Requested appointment to Special Committee on
    School Safety
  • Distributed surveys to collect Stories
  • Developed brochure display
  • Planned booklet contents
  • Researched literature, case law legislation

7
Surveys
  • Surveys widely distributed to collect stories
  • Spanish option
  • Confidentiality
  • Surveys revised
  • Raised awareness
  • Increased requests for help

8
Surveys
  • Type? (physical or chemical restraint, seclusion)
  • Setting? (school, treatment facility, both)
  • When occurred? Age of child at the time?
  • Part of IEP or Behavior Intervention Plan?
  • Details? (Frequency, length, location, staff
    involved)
  • Any documentation? Measurement of impact?
  • Written policy about S/R in place?
  • How when were you informed S/R was used?
  • How did your child feel when he/she was S/R?

9
Awareness Brochure
Seclusion and Restraint in Wisconsin
Schools Information for Parents
  • What do Seclusion Restraint mean?
  • Are there laws about S/R in WI schools?
  • What do DPI Guidelines state that school
    districts should do?
  • DPI Guidelines for Seclusion
  • DPI Guidelines for Restraint
  • Who is affected by S/R practices?
  • Resources for more information

10
Making the problem known

These organizations have formed an initiative to
promote a safe environment for children and staff
through education and legislation related to the
use of seclusion and restraint

in Wisconsin schools and institutions.
Please share your story! If you, or someone you
know, has a child that has experienced seclusion
and or restraint, whether it was used effectively
or ineffectively, we would like to gain a better
understanding about your experiences.
11
Tragic results
WHY IS CHANGE NEEDED?
Her death was a homicide caused by
complications of chest compression asphyxiation
arrest while restrained by another person
(Capitol Times, 2006)
ANGELLIKA Age 7
12
Inappropriate use of Medical Equipment
WHY IS CHANGE NEEDED?
Zachary, a 3 year old with autism attended an
early childhood program at a public elementary
school. Zacharys mother, Hasmig, didnt know
her son was being restrained in Rifton Chair.
the use of such mechanical restraint was not in
Zacharys IEP, nor was it ever discussed with
her. Both of these are apparent violations of
DPI guidelines (620 WTMJ, 2007)
Zachary Age 3
13
Out of DarknessInto the Light
  • Target audience legislators
  • Stories
  • Research on literature, case law, legislation in
    WI other states
  • Recommendations

14
Report - Stories
  • Story examples
  • Justin
  • Jenna
  • Teague
  • Frank
  • Many more

15
Report Research Section
  • Introduction
  • Federal Law
  • State Laws/Regulations
  • 20 states
  • 1999 - 2008
  • WI Guidelines/Best Practices
  • Why WI Corporal Punishment Law Not Effective in
    Regulating S/R in Schools
  • WI S/R Law for Hospitals Health Care Facilities
  • WI S/R Law Regarding Children in Juvenile
    Detention Facilities on Community Supervision
  • Conclusion

16
Current Coalition Efforts
  • Agreement on goals and process
  • Secure legislation to improve public policy
    related to the inappropriate use of S/R for
    schools community based treatment facilities.
  • Continuing education on appropriate use of S/R
  • Seek common ground with other stakeholders
  • Distribute Out of DarknessInto the Light

17
Current Coalition Efforts
  • Stakeholder viewpoints efforts
  • Position statements many overlapping areas of
    agreement
  • Meetings to seek common ground
  • 2008 School Power Point training
  • 32 slides -2 hour training on WDPI Best
    Practices WCASS Position Paper
  • Assurance that all staff in every WI school will
    be trained annually
  • Outcome data?

18
Guidelines for Appropriate Use of Seclusion
Restraint in Special Education Programs
  • Developed by WCASS with the Cooperation of SAA,
    AWSA, WASDA, WEAC, and WDPI

19
Current Coalition Efforts
  • Coalition Agreement on Requirements for the Use
    of S/R
  • Shared our information with national
    organizations and Congress for federal
    legislation
  • Seeking other stakeholders
  • Distribute Out of DarknessInto the Light
    available on line http//www.disabilityrightswi.
    org/archives/296more-296
  • Seek legislative support for bill

20
Positive Behavior Intervention and Support (PBIS)
  • School-wide approach to providing positive
    intervention with students instead of negative
    discipline
  • DPI web site had information
  • http//dpi.wi.gov/rti/pbis.html

21
Bill drafted
  • Rep. Sandy Pasch is sponsoring a bill which the
    coalition wrote. Sen. Julie Lassa is sponsoring
    a companion bill.
  • It is currently being circulated for co-sponsors.
    It focuses on PBIS, reducing use of seclusion
    and restraint, making it safer when it is used,
    and communicating with parents in a clear and
    effective manner.
  • Concerned parents need to contact legislators to
    encourage them to co-sponsor LRB 2425.

22
Legislative Process
  • Once the bill has co-sponsors, it will get a bill
    number and eventually a committee hearing.
  • It will be very important for parents of kids who
    have been secluded and restrained to come to
    Madison to testify at the hearing, or if they
    cannot, to share their stories in writing with
    committee members and their legislators.

23
Contact your legislators
  • If you know who your legislators are, contact
    each one (Assembly and Senate) to express your
    concerns about Wisconsin having no laws on
    seclusion and restraint.
  • If youre unsure who your legislators are, you
    can check on-line http//www.legis.wisconsin.gov
    /w3asp/waml/waml.aspx , or by phone
    1-800-362-9472

24
Contact Information
  • Disability Rights WI
  • 608-267-0214 www.disabilityrightswi.org/
  • WI Family Ties
  • 800-422-7145
  • www.wifamilyties.org
  • WI FACETS
  • 877-374-4677
  • www.wifacets.org
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