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asthma.org.uk

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asthma.org.uk Burden of asthma within UK Prevalence What people with asthma tell us Asthma prevalence 5.4 million people receive treatment for asthma in the UK (1 in ... – PowerPoint PPT presentation

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Title: asthma.org.uk


1
asthma.org.uk
2
Burden of asthma within UK
  • Prevalence
  • What people with asthma tell us

3
Asthma prevalence
  • 5.4 million people receive treatment for asthma
    in the UK (1 in 12 adults 1 in 11 children)
  • 368,000 of these live in Scotland
  • 1 in 5 households are affected
  • 2 children in every classroom

4
Hospital Admissions
  • Over 73,000 in 2007-08
  • One person every 7 minutes
  • One child every 19 minutes
  • Estimated cost to NHS 61 million

5
Asthma deaths
  • Every 7 hours someone dies due to an asthma
    attack
  • 3 people per day
  • 1,200 deaths in 2007 (21 children)
  • 112 people died in Scotland from asthma in 2007

6
Impact on children
  • High prevalence in UK
  • Third of all long term illnesses
  • 12 experience severe attacks
  • High admission rates
  • Parental smoking
  • Two thirds may lose symptoms as they get older

7
Environment
  • Fivefold increased risk if living with a smoker
  • More than 50 of people with asthma have allergic
    rhinitis
  • Pollutants can increase risk of asthma attacks
  • Association with damp housing

8
Impact of air pollution
  • Physical activity
  • Social activity
  • Quality of life

9
Occupational asthma
  • 1,500-3,000 new cases per year
  • 5-25 of individuals exposed to triggers will
    develop asthma
  • Occupation responsible for 1 in 10 cases of adult
    onset asthma
  • New cases cost society up to 176,000 per worker

10
Triggers at work
  • Dust
  • Fumes
  • Chemicals
  • Air conditioning
  • Stress
  • Perfumes/air fresheners

11
Healthcare
  • GP services
  • Asthma specialists
  • Asthma reviews
  • Asthma treatment
  • Prescribing
  • Personal asthma action plans
  • Emergency Care

12
Diversity
  • Ethnicity and hospital admissions
  • Gender
  • Hospitalisation

13
People numbers
  • Council of Trustees (14)
  • 127 staff London, Edinburgh, Cardiff, Belfast,
    Liverpool
  • Over 9,000 members
  • Over 1,500 active volunteers
  • Over 70,000 active supporters

14
What does Asthma UK do?
  • Asthma UK works together with people with asthma,
  • health professionals and researchers to develop
    and
  • share expertise to help people with asthma and
  • reduce the effect of it on their lives.
  • We are working towards our vision of control
    over
  • asthma today, freedom from asthma tomorrow.

15
Current Strategy
  • Support research and improve knowledge and
    treatments
  • Influence the provision of high-quality services
    that are accessible to all
  • Offer knowledge and support to people with asthma
    and healthcare professionals
  • Champion the interests and priorities of people
    with asthma on their behalf
  • Grow capacity in order to make a difference for
    people with asthma

16
Research functions
  • Ensuring a high quality peer reviewed grant and
    fellowship programme
  • Lead on developing scientific and clinical
    research strategy
  • Dissemination of research outcomes
  • Work to engage people with asthma in the research
    programme
  • Developing guidelines
  • Spent 50 million on research to date

17
Asthma nurses
  • Funding of asthma nurses over three years
  • Training provided for healthcare professionals
  • Developing asthma champion network

18
Information and advice
  • Adviceline 0800 121 62 44
  • email or call an asthma nurse specialist
  • Website
  • www.asthma.org.uk

19
asthma.org.uk
20
asthma.org.uk
21
Leaflets, booklets, cards, packs
  • Printed resources for people with asthma
  • Booklets
  • Factfiles
  • Flyers
  • Information cards
  • Posters
  • Self-management materials
  • Information for schools and preschools

22
Pharmacy tool pack
  • Information and advice for pharmacists
    undertaking Medicines Use Reviews for people with
    asthma
  • Helping people with asthma to understand their
    medicines
  • Asthma advice from your pharmacist

23
Emergency Care
  • Emergency Asthma Care pack
  • Healthcare professionals who might have to
    provide emergency care to people with asthma
  • Based on BTS/SIGN guideline
  • Aims to deal with asthma emergencies consistently
  • Provide supportive and follow-up information
  • Provide clear routes of communication between
    primary, secondary and emergency care

24
Consulting with people with asthma
  • Asthma panel
  • Surveys
  • Youth forum
  • Focus groups

25
Participation
  • Volunteering
  • Speak up for Asthma
  • Kick Asthma holidays
  • Case Study share your story
  • Fundraising
  • Fundraising volunteer
  • Special Events Committee member
  • Event Support
  • Consultative/Advisory
  • Wales Advisory Group
  • Northern Ireland Advisory Group
  • Scotland Advisory Group
  • Users and Carers Advisory Forum
  • Healthcare Advisory Forum
  • Black and Minority Ethnic Forum
  • Youth Forum

26
Participation
  • Research and Policy Volunteering
  • Research Strategy development
  • Asthma representative 
  • Focus groups
  • Participating in occasional consultation events
    with key political stakeholders
  • Surveys
  • E-campaigner
  • Governance
  • Council of trustees
  • Finance and audit committee
  • Admin
  • Office volunteer
  • Work experience/placement

27
Participation
  • I get a buzz from being involved and making
    people more aware of asthma and the impact it has
    on peoples lives.
  • Its been great helping people over the years,
    to give them support and help them feel that
    theyre not alone. The Adviceline is great but
    its also good to give people more local
    support.
  • Ive achieved things that I never would have
    done before like talking in Parliament. I also
    feel like Ive grown as a person and increased my
    self-esteem and confidence.
  • Ive managed to raise nearly 3,000 for Asthma
    UK and feel good to be able to give something
    back.

28
Kick-A website
Website
asthma.org.uk kickasthma.org.uk
29
Kick Asthma holidays
30
Asthma UK Scotland
  • Scottish office of Asthma UK based in Edinburgh
  • Also in London, Belfast, Cardiff
  • Celebrated our 15th Birthday in 2008 but Asthma
    UK has been around in some form since 1927
  • Asthma Research Council (ARC)
  • National Asthma Campaign (NAC)

31
Work with health professionals
  • Health Boards and Community Health Partnerships
    (CHPs)
  • Grants to prioritise asthma services
  • Glasgow, Fife, East Ayrshire, Angus, Stirling,
    Orkney and Shetland
  • NHS QIS
  • Focus groups with children
  • In their own words
  • Research programme nearly 50 million
  • Four projects in Scotland Edinburgh and Aberdeen
    and one Research Fellow

32
Community Health Partnerships
  • 2008/2009 Visits to CHPs
  • There are 40 CHPs in Scotland.
  • We have established contact with 22 of these and
    visited 14.
  • From these contacts we received 11 applications
    for funding of asthma projects.

33
Community Health Partnerships
  • Angus CHP implemented the Asthma UK emergency
    care pack
  • Southwest Glasgow identified children and
    families not attending for review targeting them
    to offer asthma education
  • North Glasgow conducted an audit within community
    pharmacy to identify over-use of reliever
    inhalers
  • Glenrothes and North East Fife CHP targeted
    schools offering an asthma course in primary and
    secondary schools

34
Work with people with asthma and their carers
  • Youth Ambassadors Scheme
  • Asthma advisory group
  • 15 years, 15 stories published 2008

35
Work with the Scottish Parliament
  • Regular Cross Party Group meetings to keep asthma
    and asthma issues on the agenda
  • Lobbying for national respiratory strategy
  • Regular dialogue with MSPs

36
School asthma policies
  • All schools should
  • Update and review the schools asthma policy
    every year
  • Have a centralised school asthma register that
    identifies all pupils at school with asthma
  • their individual common signs of an asthma attack
  • triggers and current medicines
  • It should also have emergency contact details
  • Ensure all school staff know what to do in an
    asthma attack regular training
  • Ensure all children and young people have
    immediate access to their medicines at all times

37
A school policy for asthma
  • The following items are available from Asthma UK
  • School Asthma Pack contains booklets on
  • asthma resources for pupils
  • school policy guidelines
  • school asthma card
  • asthma awareness for school staff
  • posters
  • order form
  • Download from our website www.asthma.org.uk
  • Order a hard copy by Emailing info_at_asthma.org.uk
    or
  • T 08456 038143

38
Asthma UK Scotland School Asthma Pack
  • Includes
  • Introduction
  • Sample school asthma policy
  • Roles and responsibilities.

39
Asthma UK Scotland School Asthma Pack
  • Specific information about asthma at school.
  • Asthma medicines
  • Legal issues
  • Supporting pupils with asthma
  • Exercise, activity and asthma

40
Alert to Asthma
  • Training sessions for primary teachers, early
    years carers and childminders
  • Training provided by local asthma nurses

41
The Good Asthma Services Checklist
The Asthma UK Good Asthma Services Checklist
42
World Asthma Day 5 May 2009
  • Missing Out Asthma attacks in more ways than one
  • Exclusion
  • Bullying
  • Ambivalence

43
asthma.org.uk
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