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Quality of life from the perspective of the palliative patient

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RESEARCH QUESTION What is the meaning of Quality of Life for patients managed at the Palliative Care Nursing Community of Practice of the Adelaide Tambo School ... – PowerPoint PPT presentation

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Title: Quality of life from the perspective of the palliative patient


1
Quality of life from the perspective of the
palliative patient
  • Kotie Jansen van Rensburg
  • M-Tech Nursing

2
CONTENTS
  • Background and Rationale
  • Research Question
  • Purpose of the Study
  • Theoretical Foundation
  • Research Methods and Design
  • Trustworthiness
  • Ethical principles

3
CONTENTS (cont.)
  • Findings
  • Discussion
  • Conclusions
  • Limitations of the study
  • Recommendations
  • Acknowledgements

4
  • Why another study on Quality of Life???

5
BACKGROUND AND RATIONALE
  • Palliative care
  • Quality of Life

6
PALLIATIVE CARE
  • Definition
  • Hospice care, supportive care, terminal/
    end-of-life care

7
QUALITY OF LIFE
  • Definition
  • Quality of Life in Palliative Care
  • Measurement of Quality of Life

8
WHY IS THIS STUDY DIFFERENT?
  • 1. Quality of life from the perspective of the
    palliative patient
  • 2. Quality of life from the perspective of
    patients living in the resource poor community
    of Soshanguve Extensions 12 and 13.

9
RESEARCH QUESTION
  • What is the meaning of Quality of Life for
    patients managed at the Palliative Care Nursing
    Community of Practice of the Adelaide Tambo
    School of Nursing Science, serving the resource
    poor communities of Soshanguve Extensions 12 and
    13?

10
PURPOSE OF THE STUDY
  • The purpose of the study was to explore the
    meaning of quality of life for patients managed
    at the Palliative Care Nursing Community of
    Practice of the Adelaide Tambo School of Nursing
    Science in the resource poor community of
    Soshanguve Extensions 12 and 13.

11
THEORETICAL FOUNDATION
  • The Human becoming theory of Rosemary Parse
    underpinned the study and guided the researcher
    in practice.

12
METHODS AND DESIGN
  • Research approach
  • Research context
  • Research design

13
METHODS AND DESIGN (cont)
  • Population and sampling
  • Data gathering
  • Data analysis

14
TRUSTWORTHINESS
  • Credibility
  • Dependability
  • Confirmability

15
ETHICAL PRINCIPLES
  • Autonomy
  • Beneficence
  • Informed consent

16
ETHICAL PRINCIPLES (cont)
  • Non-malfeasance
  • Confidentiality
  • Dissemination of findings

17
FINDINGS OF THE STUDY
  • Demographic information

18
DEMOGRAPHIC INFORMATION
Characteristics n
Gender Male Female 2 8
Age 30-39 40-49 50-59 60-69 70-79 2 2 4 1 1
19
DEMOGRAPHIC INFORMATION (cont)
Marital status Single Married Culturally Separated Widowed Living with partner 2 1 1 1 5
Primary care giver Daughter Self Self with help of partner 2 6 2
20
FINDINGS (cont)
  • THEMES
  • CATEGORIES
  • 1. Factors which had a positive influence on
    quality of life
  • Being able to work
  • Receiving support
  • Religion and religious practices
  • Symptom control
  • Receiving pension

21
FINDINGS (cont)
  • THEMES
  • CATEGORIES
  • 2. Factors which had a negative influence on
    Quality of Life
  • Experiencing poverty
  • Lack of employment
  • Isolation from children
  • Being rejected
  • Experiencing symptoms

22
FINDINGS (cont)
  • THEMES
  • CATEGORIES
  • 3. Experience of quality of life
  • Quality of Life before illness
  • Current Quality of Life

23
DISCUSSION
  • Factors which had a positive influence on
    participants quality of life
  • Being able to work
  • Receiving support
  • Religion and religious practices
  • Symptom control
  • Receiving pension

24
DISCUSSION
  • Factors which had a negative influence on
    participants quality of life
  • Experiencing poverty
  • Lack of employment
  • Isolation from children
  • Being rejected
  • Experiencing symptoms

25
DISCUSSION (cont)
  • Perception of quality of life before the illness

26
DISCUSSION (cont)
  • Perception of quality of life before the illness
  • Perception of current quality of life

27
  • Conclusions

28
  • Limitations of the study

29
  • Recommendations for further research

30
ACKNOWLEDGEMENTS
  • I would like to thank Dr van Belkum, the UNEDSA
    project and Adelaide Tambo School of Nursing
    Science for the scholarship and Dr van Belkum for
    being my co-supervisor.
  • My sincere appreciation to my study leader,
    Professor Maree for her support and guidance
    during the study.

31
Thank you
32
  • ANY QUESTIONS???
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