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Public Engagement in the Effective Health Care Program

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2010 International Conference of the American Thoracic Society, New Orleans, May 17, 2010 – PowerPoint PPT presentation

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Title: Public Engagement in the Effective Health Care Program


1
Public Engagement in the Effective Health Care
Program
  • Jean Slutsky
  • Director, Center for Outcomes and Evidence
  • AHRQ Annual Meeting
  • Bethesda, MD
  • September 27, 2010

2
Donald Schön, 1983
  • In the varied topography of professional
    practice, there is a high, hard ground, where
    practitioners can make effective use of
    research-based theory and techniques, and there
    is a swampy lowland where the situations are
    confusing messes incapable of technical
    solution. The difficulty is that the problems of
    the high ground, however, great their technical
    interest, are often relatively unimportant to
    clients or the larger society while in the swamp
    are the problems of greatest human concern.

3
Obama, iPad, and the value of information in 21c
democracy (and business)
  • What Jefferson recognized is that in the
    long run, their improbable experiment called
    America wouldnt work if its citizens were
    uninformed, if its citizens were apathetic, if
    its citizens checked out, and left democracy to
    those who didnt have the best interests of all
    the people at heart. It could only work if each
    of us stayed informed and engaged, if we held our
    government accountable, if we fulfilled the
    obligations of citizenship.

4
Engaging the Public
5
Suggesting Topics for Research
6

7
Comment on Key Questions
8
Commenting on Reports
9
AHRQ Communities Forum on Comparative
Effectiveness Research
  • An initiative to expand and systematize citizen
    and stakeholder engagement in AHRQs Effective
    Healthcare Program.
  • Citizen Input
  • Stakeholder Input

10
Definitions
  • Citizens - Members of the general public
    identified without regard to medical background
    or experience.
  • Stakeholders - Persons or groups who have a
    vested interest in a clinical, research or health
    policy decision.

11
Community Forum Components
  • Develop and demonstrate deliberative methods and
    tools for obtaining informed public opinion as an
    input to decisions related to the conduct of
    comparative effectiveness research (CER), as well
    as the application of research results in policy
    and practice.

12
So What Have We Learned?
  • It is important to have comments received in a
    central place
  • It is important to have responses centrally
    reviewed and released
  • In most instances, comments are cordial and
    useful
  • The volume of comments has been manageable

13
The Value of Public Engagement in the Effective
Health Care Program
  • Nothing about me without me
  • Understanding issues/values important to patients
    and providers
  • Relevancy of research to users
  • Dispels myths and fears

14
Thank You!
  • Jean.slutsky_at_ahrq.hhs.gov
  • http//www.effectivehealthcare.ahrq.gov
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