Grief is considered a universal human experience because we all suffer losses and feel the subsequen - PowerPoint PPT Presentation

Loading...

PPT – Grief is considered a universal human experience because we all suffer losses and feel the subsequen PowerPoint presentation | free to view - id: ecaaa-ZDc1Z



Loading


The Adobe Flash plugin is needed to view this content

Get the plugin now

View by Category
About This Presentation
Title:

Grief is considered a universal human experience because we all suffer losses and feel the subsequen

Description:

A. I wish this was all a dream and I could wake up back in my old life. Item 50 ... Hospice Foundation of America: Washington, D.C. (169-195) ... – PowerPoint PPT presentation

Number of Views:86
Avg rating:3.0/5.0
Slides: 29
Provided by: Staf518
Category:

less

Write a Comment
User Comments (0)
Transcript and Presenter's Notes

Title: Grief is considered a universal human experience because we all suffer losses and feel the subsequen


1
Introduction
2
  • Grief is considered a universal human experience
    because we all suffer losses and feel the
    subsequent sorrow.
  • Meuser and Marwit (2001) developed a model of
    grief in dementia which described the caregiver
    grief reactions associated with progressive
    cognitive decline in Alzheimers disease.
  • Dealing with anticipatory grief can reduce later
    anguish of grief when the loved one dies.

3
  • By contrast, the onset of aphasia is typically
    sudden secondary to a stroke.
  • This sudden loss of communication associated with
    aphasia may prevent the family and the individual
    with aphasia to grieve together.

4
Purpose
5
  • How do caregivers of individuals with aphasia
    cope with loss of communication?
  • Do they grieve the loss of a communication
    partner?
  • How do caregivers of individuals with aphasia
    differ from caregivers of individuals with
    dementia?
  • Can better understanding of these grieving
    processes help us to provide support?

6
Methods
7
  • Subjects
  • Caregivers are family and/or friends of
    participants in the UW-Whitewater aphasia group
    treatment program.
  • Caregivers meet once a month separate from the
    individuals with aphasia.

8
Table 1. Individuals with aphasia
9
Table 2. Caregiver respondents
10
B. Instrument
  • Grief related assessment (MM-CGI) consists of 50
    items (long form) corresponding to three
    categories

11
Table 3. Instrument (MM-CGI)
12
Personal Grief Profile Dementia Caregivers
13
MM-CGI Personal Grief Profile
  • Provides General Guide for Support
  • High Scores higher than average (1 sd above
    mean)
  • Interpretation may indicate a need for formal
    intervention or support assistance to enhance
    coping
  • Low Scores lower than average (1 sd below the
    mean)
  • Interpretation
  • may indicate denial or a downplaying of distress
  • may also indicate positive adaptation if the
    individual is not showing other signs of
    suppressed grief
  • Average scores indicate most common reactions

14
Results
15
1. Overall Grief Profile Aphasia Caregivers
16
2a. Highest Grief Intensity Ratings All
caregiver respondents
17
2b. Highest Grief Intensity Ratings Spouses top
ten responses
18
3. Comparative Caregiver Grief Profiles
19
4. Communication loss
20
Discussion
21
  • Study results are similar to caregivers of
    individuals with mild dementia
  • Meuser, Marwit Sanders (2004) study
  • Individuals with dementia had impairment in
    memory and higher order thinking abilities, but
    with intact personality.
  • Caring for individuals with mild dementia tended
    to show a low grief level of intensity with the
    focus on their own personal sacrifices (self
    focus vs. other focus).
  • Caregiver focus on helping with the activities of
    daily living that the individual could no longer
    perform independently.

22
  • In this study caregivers of individuals with
    aphasia face
  • Life long adjustments to living with aphasia.
  • Contrasts with the progressive but anticipatory
    challenges families face with dementia.

23
  • For this study --- primary interest
  • characterize the group for the purposes of
    preparing for the caregiver small group
    counseling discussions
  • make individual referrals to the free university
    counseling service
  • Grief level for this study caregiver respondents
  • items associated with personal sacrifice given
    the highest scores
  • corresponds to an average grief level
  • Items associated with sadness and longing or
    worry and isolation were rated lower

24
Conclusions
25
  • Concern over the loss of a communication partner
    was rated in the low average or low grief
    intensity level, despite significant alterations
    in communication.
  • As in the caregivers of individuals with mild
    dementia items related to loss of independence
    and increased caregiver burden were associated
    with highest grief intensity.

26
  • As in the MM study these results can serve as
    general guides for discussion and support only.
  • More research is needed on more specific
    interpretation issues in aphasia.
  • It may be worthwhile to create a grief profile
    instrument specific to aphasia or acquired
    communication problems.

27
References
  • Marwit, S.J. Meuser, T.M. (2002). Development
    and initial validation of an inventory to measure
    grief in caregivers of persons with Alzheimers
    disease. The Gerontologist, 42 (6), 51-65.
  • Meuser, T.M., Marwit, S.J. (2001). A
    comprehensive stage sensitive model of grief in
    dementia caring. The Gerontologist, 41(5),
    658-670.
  • Meuser, T.M., Marwit, S.J. Sanders, S. (2004).
    Assessing grief in family caregivers. In Living
    with grief Alzheimers disease. Kenneth Doka
    (Ed.) Hospice Foundation of America Washington,
    D.C. (169-195).

28
Acknowledgements UW-Whitewater graduate student
clinicians, Fort Healthcare, UW-Whitewater SOTL
program
About PowerShow.com