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Deaf Child: Normal? Various Perspectives

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National Black Deaf Advocates. USA Deaf Sports Federation. Telecommunications for the Deaf Inc. ... Deaf theater and entertainment. Signing with hearing babies ... – PowerPoint PPT presentation

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Title: Deaf Child: Normal? Various Perspectives


1
Deaf Child Normal?Various Perspectives
  • Beth Benedict, Ph.D.
  • Gallaudet University
  • Barbara Raimondo, J.D.
  • American Society for Deaf Children
  • Marilyn Sass-Lehrer, Ph.D.
  • Gallaudet University

2
Questions
  • Deaf and hard of hearing people are as capable as
    hearing people. Agree Disagree
  • Deafness should be eliminated. Agree Disagree
  • Use of sign language with deaf and hard of
    hearing children should be encouraged. Agree
    Disagree
  • A deaf culture exists in the United States. Agree
    Disagree
  • Deafness is a disability. Agree Disagree
  • Who should make decisions for deaf people?

3
Who are we?
4
After identification
  • Parents
  • Medical professionals/testing
  • Audiologist
  • Physician
  • Geneticist
  • Otolaryngologist
  • Speech-language pathologist
  • Medical technicians

5
  • Evaluations, advice, and services can be
    valuable.
  • BUT
  • How do hearing parents learn about the lives of
    deaf and hard of hearing people?

6
Deaf and hard of hearing organizations
  • National Black Deaf Advocates
  • USA Deaf Sports Federation
  • Telecommunications for the Deaf Inc.
  • Deaf and Hard of Hearing in Government
  • AGBell Oral Hearing Impaired Section
  • Association of Late Deafened Adults
  • National Cued Speech Association
  • National Association of the Deaf
  • American Association of the Deaf-Blind
  • Self Help for Hard of Hearing Persons
  • Deaf and Hard of Hearing Entrepreneurs Council
  • Intertribal Deaf Council
  • American Society for Deaf Children
  • Religious associations
  • State and local organizations and events

7
Programs
  • Schools
  • Statewide schools
  • Regional programs
  • Charter schools
  • Camps and programs
  • NASA Space Camp
  • Young Scholars Program (Gallaudet)
  • Aspen Camp School for the Deaf
  • National Leadership and Literacy Camp
  • Institutes of Higher Education
  • Gallaudet University
  • Natl Tech Institute for the Deaf/Rochester
    Institute of Technology
  • California State University

8
International networks
  • Deaf Way I and II
  • World Federation of the Deaf
  • Deaflympics

9
Societal awareness
  • Deaf theater and entertainment
  • Signing with hearing babies
  • Media portrayals
  • Sensitivity regarding access such as real time
    captioning, interpreting
  • American Sign Language as a foreign language
  • Country becoming more diverse

10
Legislation
  • Americans with Disabilities Act/Section 504 of
    the Rehabilitation Act
  • Section 508 of the Rehabilitation Act
  • Telecommunications Act of 1996
  • Television Decoder Act

11
Technology
  • Video relay service
  • Web cams
  • Pagers
  • Instant messaging
  • Internet
  • Captioned media

12
Myth
  • Deaf people oppose hearing technologies such as
    hearing aids and cochlear implants.
  • The NAD
  • recognizes the rights of parents to make
    informed choices for their children
  • respects their choice to use cochlear
    implants and all other assistive devices
  • strongly supports the development of the whole
    child and of language and literacy.
  • (Cochlear Implants, NAD Position Statement,
    2000)

13
Myth
  • All deaf parents want a deaf baby.
  • Cultural identification with Deaf community
  • no preference 62
  • prefer deaf 27
  • prefer hearing 4
  • (SJ Stern, KS Arnos, L Murrelle, K Oelrich
    Welch, WE Nance, and A Pandya (Attitudes of deaf
    and hard of hearing subjects towards genetic
    testing and prenatal diagnosis of hearing loss. J
    Med Genet 200239449-453)

14
  • Deaf designer baby - 52,000 Internet hits
  • First embryo screened for deafness - 600
  • Gender selection for family balancing
  • (www.microsort.com)

15
Why include the deaf community?
  • Human rights issue
  • Know about lives of deaf people
  • Assurance and support
  • Positive view of the future
  • Better decisions

16
Hearing and deaf working together
  • Dismantle societal barriers
  • Promote positive view of deaf and hard of hearing
    people
  • Paid consultants in EHDI programs
  • Qualified individuals working in non-deaf jobs

17
Resources
  • Inside Deaf Culture, Carol Padden Tom
    Humphries, Harvard University Press, 2005.
  • Movers and Shakers People Who Changed the
    World, Dawnsign Press, Carolyn Carroll Sue
    Mather, 1997.
  • The Silent Garden, Paul Ogden, Gallaudet
    University Press, 1996.
  • Two Views of Deafness
  • http//www.aslaccess.org/twoviews.htm

18
Questions
  • Deaf people are as capable as hearing people.
    Agree Disagree
  • Deafness should be eliminated. Agree Disagree
  • Use of sign language with deaf and hard of
    hearing children should be encouraged. Agree
    Disagree
  • A deaf culture exists in the United States. Agree
    Disagree
  • Deafness is a disability. Agree Disagree
  • Who should make decisions for deaf people?
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