Personal Outcomes and Opportunity Development

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Personal Outcomes and Opportunity Development

• Presented by
• Christopher teKampe
• Acumen, Inc.

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Presentation Overview

• Recent History and the Model
• Opportunities for Development
• Quality of Life Format
• Accountability

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That was then, This is now
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The three Ds

• Disconnected
• Different
• Dependent

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IN ..OUT

• Support Broker
• Person Centered Plan
• Spiderman
• Opportunity development
• Choice of where and with whom to live
• Generating Income
• Accountability
• Capabilities/flexible supports
• Relationships
• Connections

• Support Coordinator
• ISP
• Batman
• Habilitation
• Funding Slots Placement
• Day program
• Data Collection
• Deficit Model
• Social Skills
• Community membership

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What About Change?

• Excellent firms dont believe in
  excellence---only in constant improvement and
  constant change
• ---Tom Peters
• Are you a change agent or a change target?

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How do we change?

• Begin by listeningremember that the person with
  the disability is the real expert
• Use planning process as a framework for learning
• Reflect what is important to people
• Describe what makes a person happy first, safe
  second
• Cleary identifies the responsibilities of those
  who support people as they move toward their
  desired life
• Help people and their families find a balance
  between what is important to people and what is
  important to the people who know and care about
  the person
• Remember this is a process and a journey, not a
  single isolated event

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19922002

• Systems of Supports Published (AAMR) I,L,E,P vs.
  levels of disabilities
• ELP, Personal Futures, MAPS, Whole Life Planning
• First Implementation of Levels of Supports with
  Habilitation

• Integrated PCP and Quality of Life Indicators
  with Habilitation
• Outcomes for People A Customer Service Approach
  to Habilitation
• Continue to Introduce Changes Based on Customer
  FeedbackSystem Being Used in Four States

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Fundamental to Supporting People(core
responsibilities)

• Washing hair
• Setting the table
• Making a sandwich
• Using a fork
• Tying shoes
• Brushing teeth
• Combing hair
• Shaving

• Getting dressed
• Staying on task
• Counting money
• Toileting
• Doing laundry
• Using zippers
• Dialing the phone
• Applying deodorant

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(No Transcript)
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Would You Rather

• Tie your shoes or Tie the game
• Comb your hair or Comb the beach
• Make your bed or Make a friend
• Plan a menu or Plan a get-together
• Make a purchase or Shop til you drop
• Clean a room or Clean up on the dance
  floor
• Tie your shoes or tie the game make your bed or
  make a friend from
• Hingsburger (1998) do?be?do?

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Quality of Life Indicators

• What is most important to the person?
• What does the person need?
• What does the person enjoy and like?
• Spirituality Self determination
• Relationships Rights
• Material well-being Personal development
• Health
• Community connections

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Person-Centered Goals(self-determined)

• Going on a date
• Taking karate lessons
• Looking great for school
• Getting a job
• Being a Girl Scout
• Going to summer camp
• Putting together a photo album
• Visiting my family
• Going to a dance

• Joining a health club
• Taking horseback riding lessons
• Being an active senior
• Riding my bike
• Listening to live music
• Going to the beauty salon
• Joining the Diamondbacks fan club
• Hosting a BBQ

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Is it a Good Opportunity for Development?

• Are there opportunities for relationships?
• Are people supported in connecting to their
  communities?
• Are people doing things everyone else might do?

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Traditional Curriculum vs. Quality of Life
Outcomes (Red)

• Judy will take a shower with physical guidance
  6/7 days a week by 12/01. I want to look nice
  when I go to school for the next two semesters.
• Fay will exercise three times a week with verbal
  prompts for 6 consecutive months by 12/01. I
  want to earn my orange belt in karate in the next
  9 months.
• Anna will participate in 1 social/recreational
  outing a week with staff supervision until 12/01.
  I want to join the Girl Scouts in my
  neighborhood and be a member this year.

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Adaptive Skill AreasAdapted from the AAMR
Definition, Classification, and Systems of
Supports

• Communication
• Self Care
• Social Skills
• Home Living
• Community

• Self Direction
• Functional Academics
• Health and Safety
• Work (or School)
• Leisure

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Support FunctionsAdapted from the AAMR
Definition, Classification, and Systems of
Supports

• Teaching
• Befriending
• Employee Assistance
• In-Home Living Assistance

• Health Assistance
• Financial Planning
• Behavioral Support
• Community Access and Use

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Support Network Adapted from the AAMR
Definition, Classification, and Systems of
Supports

• Myself---Its MY goal
• Natural e.g., roommate, co-worker
• Technical e.g., equipment, devices
• Other

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Quality of Life Format

• Outcome or Person-Centered Goal
• Who is going to help?
• How are they going to help?
• What happens if the customer is not satisfied and
  outcomes are not present?

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Outcome/Person-Centered Goal

• Written in the first person
• Contains what the person wants or would like to
  do
• Includes flexible supports
• Identifies how long the person wants to do the
  activity

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Flexible Supports

• Vary with intensity (no more counting prompts)
• I did most/all of it on my own
• I did half of it on my own
• I did some of it on my own
• I needed help with the whole thing
• Follow the person
• Ensure success and outcomes
• Are defined by the person
• Encourages support professionals to do with
  rather than do for

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How do we help?

• Why is this important to the person?
• What support is needed to make it happen?--May
  include a statement of what the person already
  knows how to do
• When are we accountable?
• What happens when outcomes are not present or the
  customer is not satisfied?

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Personal Outcomes

• List the preferences of the customer
• Directly reference the person-centered plan and
  Quality of Life indicators
• For a man who wants to be an active senior
• went to the senior center
• had lunch with my sister
• browsed at the swap meet
• worked out at the Y

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Name Goal/OutcomeI want to invite friends
over and host a BBQ/gettogether with flexible
supports Start Date 7/1/02 How Often 1 time
a week Materials needed to start Invitation
list, planner or calendar How we help(Support
Activity) Getting together with friends is a
great way for me to stay in touch and spend time
with people that are important to me. I will
need help with cooking/using a grill and
planning my get-together from start to finish.
My DSP will record what is working or not working
with this goal once a week. My plan is to get
together with my friends once a month.
Accountability Y I went shopping, I
called/invited friends over, I rented movies, or
I cooked/BBQd N I did not plan, invite or make
any arrangements toward having people over
Changes when outcomes are present When the
outcomes I want are present for 6 months I would
like to plan a get-together away from my home
e.g., pizza place Changes when outcomes are not
present When the outcomes I want are NOT
present for any 2 months in a row, me and my
support team will look at other ways I can spend
time with my friends.
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Accountability

• Narrative
• what worked with the activity OR
• what didnt work with the activity
• Outcomes
• Y desired outcomes were present
• N desired outcomes were not present

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Customer Friendly Accountability

• Captures information on two levels
• Provides a snapshot of the activity
• Communicates to entire support network

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What does this mean to people supported?

• Ownership with activities/personal goals
• Makes sense to the customer
• Confidence
• Outcomes that people can count on
• Enhanced quality of life

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What does this mean to people delivering supports?

• Must be accountable to figure out what people
  want
• Must deliver what is of value to the person
• Maximizing Quality and Accountability is the way
  to do business

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Think and act along these lines

• Search for what is right, not what is wrong
• Work on the facts, not on assumptions
• Support cooperation, not competition
• Explore possibilities, not find barriers
• Educate by example, not preaching

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Its what you learn after you know it all that
counts.

• --John Wooden