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National Center for the Dissemination of Disability Research

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Title: National Center for the Dissemination of Disability Research


1
National Center for the Dissemination of
Disability Research
  • Welcome to the New NCDDR
  • May 31, 2006

2
NIDRRs Long-Range Plan and Knowledge Translation
Program Art Sherwood, PhD Ellen Blasiotti NCDDR
Scope of Work John D. Westbrook, PhD NIDRR
Researcher Collaborators NCDDR Website Joann
Starks NCDDR Collaborating Partners An
Overview Frank Martin
3
NIDRRs Long-Range Plan and Knowledge Translation
Program Art Sherwood, PhD Ellen
Blasiotti National Institute on
Disability and Rehabilitation
Research U.S. DEPARTMENT OF EDUCATION
4
NIDRR Logic Model Planning for Research Outcomes
Situation Significant gaps exist in knowledge,
skills, policy, and practice and system capacity
that prevent people with disabilities from
having equal access to opportunities for
employment, health and function, and
participation.
Long-term Outcome Arenas Changes in Overall
Conditions
Short Term Outcome Arenas Advances in
Understanding, Knowledge, Skills, and Learning
Systems via
Intermediate Outcome Arenas Adoption and Use of
New Knowledge Leading to Changes/ improvements in
Major Domains of NIDRR Research
Intended Beneficiaries
Intermediate Beneficiaries
RD
C-B
KT
  • Eliminate disparities between people with
    disabilities and the general population in
  • employment,
  • participation community living
  • and
  • health and function.
  • Researchers
  • Clinicians
  • Service providers
  • Educators
  • Policy experts
  • Federal non-
  • federal partners
  • Industry reps product developers
  • Employers
  • Media
  • Consumer advocates
  • People with disabilities family members

Research Development
Policy
Discoveries
Practice
Capacity Building
Theories, Measures, Methods
Knowledge Translation
Behavior
Interventions, Products, Devices, Environmental
Adaptations
System Capacity
Performance Assessment Outcomes Evaluation
05/05/05
Contextual Factors Variable funding scientific
and technological advancements societal
attitudes economic conditions changing public
policies coordination and cooperation with other
government entities.
5
National Center for the Dissemination of
Disability Research Scope of Work John D.
Westbrook, PhD
6
NCDDR Staff Members
Project Director John D. Westbrook, PhD Program
Associate Joann Starks Program Associate Frank
Martin Program Associate Kathleen Murphy,
PhD Information Specialist Lin Harris Web
Administrator John Middleton Web Production
Artist Magda Acuña
7
Highlights of NCDDR Scope of Work
  • Focusing on Services that Facilitate
  • Building of capacity of NIDRR researchers to
    negotiate the knowledge translation (KT) process
  • Increasing inclusion of NIDRR-sponsored research
    in systematic reviews
  • Improving consumers' access to and use of
    disability and rehabilitation research

8
Implications of New KT Paradigm
  • Definition of KT
  • KT is defined as the exchange, synthesis, and
    ethically-sound application of knowledge within
    a complex set of interactions among researchers
    and users to accelerate the capture of the
    benefits of research through improved health,
    more effective services and products, and a
    strengthened health care system.
  • Adapted from the
  • Canadian Institutes of Health Research (CIHR)

9
NCDDR Service Areas
  • Research Quality
  • Development
  • Dissemination
  • Technical Assistance
  • Utilization Effectiveness

10
Research Quality Services
  • Quality and Alignment of Research Design
  • Research questions(s) and research design
    (assessment)
  • Type of new knowledge to be developed
  • Standards of Evidence
  • Implications for existing research efforts and
    to-be-proposed work

11
Research Quality Services (continued)
  • Evidence-based Guidelines
  • For use in conducting systematic reviews
  • For use in clarifying roles, responsibilities,
    targets of NIDRR researchers
  • Research Registration and Reporting
  • Inclusion in registries
  • Change in reporting
  • Low Cost/No Cost Modifications

12
Development Services
  • Reporting Standards
  • Research reports vs. journal articles
  • CONSORT, STARD, QUORUM
  • Disability Research Reporting Facilitator
  • Web-based supports/guides

13
Dissemination Services
  • Information Resources
  • Increase awareness/understanding about KT
  • Library of KT Resources and Strategies
  • Web-based resources
  • Accessing Systematic Reviews
  • Search assistance

14
Dissemination Services (continued)
  • Registry of NIDRR-Sponsored Research
  • Heighten profile of NIDRR-supported research
    results
  • Online Instructional Modules
  • Useful in planning or reviewing new research
    designs
  • Registry of Syntheses and Evidence-based
    Systematic Reviews
  • Produced by NIDRR grantees

15
Dissemination Services (continued)
  • Community of Practice on Research Quality
  • Community of Practice on Outreach to Diverse
    Audiences
  • FOCUS Publications
  • Web Site
  • Webcasts

16
Technical Assistance Services
  • On-site technical assistance
  • Off-site technical assistance
  • Toll-free telephone
  • Workshops

17
Technical Assistance Services (continued)
  • Proposal reviewer resources
  • Characteristics of research quality
  • Module
  • Systematic review training
  • Campbell Collaboration electronic and
    teleconference

18
Utilization Effectiveness Services
  • Support for Conducting Systematic Reviews and
    Evidence-based Systems
  • Direct assistance to those conducting systematic
    reviews
  • Evidence/Product Grading System
  • Disclosure for public dissemination and
    utilization

19
Utilization Effectiveness Services (continued)
  • Consumer Resources
  • Most effective communication and resource systems
  • Evidence-Based Technology
  • Merging evidence-based information in technology
    engineering and transfer

20
Consensus Building Strategies with NIDRR Grantees
  • Knowledge Translation Planning Committee
  • Standards and Research Review Board

Joann Starks
21
National Center for the Dissemination of
Disability Research (NCDDR) Organizational Chart
for Major Responsibilities
Southwest Educational Development Laboratory
(SEDL) Wesley Hoover, President and CEO
Disability Research To Practice Program John D.
Westbrook, Program Manager
NCDDR Standards and Research Review Board John D.
Westbrook, Facilitator
Knowledge Translation Planning Committee John D.
Westbrook, Facilitator
Task Force on Systematic Review and
Guidelines Marcel Dijkers, Facilitator Joann
Starks, NCDDR Liaison
Task Force on Knowledge Translation
and Knowledge Value Mapping Juan Rogers,
Facilitator Frank Martin, NCDDR Liaison
Task Force on Standards of Evidence and
Methods Mark Johnston, Facilitator John
Westbrook, NCDDR Liaison
22
Knowledge Translation Planning Committee
  • Will provide guidance to the NCDDR and NIDRR
    staff regarding supports and services to
    strengthen the quality of NIDRRs KT Program.
  • NCDDR staff will work closely with NIDRR-funded
    KDU and KT projects to incorporate their work
    into larger scale efforts in guideline
    production.

23
The KT Planning Committee will draft position
statements
  • To help in identifying needs
  • Suggesting transition resources and supports
  • Describing information dissemination and
    utilization conduits appropriate for the
    development of NIDRRs KT Program

24
Logistics
John Westbrook, PhD, will serve as
facilitator Electronic discussion
list exists Committee will meet in person
annually Committee will meet via
teleconference monthly/ bimonthly
25
Members of KT Planning Committee
Katherine Belknap ABLEDATA ORC Macro Marianne
Farkas, ScD, Innovative KDU for Disability and
Professional Organizations and Stakeholders,
Boston University/Sargent College Mark X. Odum,
National Rehabilitation Information Center
(NARIC), HeiTech Services
26
Members (continued)
Joe Lane RERC on Technology Transfer
(T2RERC) University at Buffalo, The State
University of New York John H. Stone, PhD,
Center for International Rehabilitation Research
Information and Exchange (CIRRIE-2), University
at Buffalo, The State University of New York
27
Standards and Research Review Board
Will provide guidance and review in
establishing standards of evidence for
research Uses a consensus-building approach to
ensure the rigor and quality of standards as well
as the buy-in necessary for their actual use.
28
Three Task Forces
Standards of Evidence and Methods
Systematic Review and Guidelines Knowledge
Translation and Knowledge Value Mapping
29
Logistics
John Westbrook, PhD, will serve as
facilitator Electronic discussion list will
be established Board will meet in person
annually Board will meet periodically via
teleconference
30
Board Members include NIDRR-funded researchers
representing
3 RERCs 6 RRTCs 2 TBI Model Systems
1 each SCI Model Systems, Burn Model
Systems, Field Initiated Projects, Advanced
Rehabilitation Training, and ADA/IT Centers
31
Members of the Standards and Research Review Board
Matthew H. Bakke, PhD, RERC on Hearing
Enhancement, Gallaudet University Marcel
Dijkers, PhD, Mt. Sinai SCI Model System and a
Longitudinal Study of Psychosocial Outcomes and
Subjective Quality of Life Many Years After
Traumatic Brain Injury Mount Sinai School of
Medicine Charles Drum, PhD, Northwest ADA/IT
Center (Disability Business Technical Assistance
Center - Region X), Oregon Institute on
Disability and Development, Oregon Health
Science University Steve Gard, PhD, RERC on
Prosthetics and Orthotics, Northwestern University
32
Members (continued)
Wayne A. Gordon, PhD, RTC on TBI Interventions
and New York TBI Model System, Department of
Rehabilitation Medicine, Mount Sinai School of
Medicine Allen W. Heinemann, PhD, ABPP, RRTC on
Measuring Rehabilitation Outcomes and
Effectiveness, Rehabilitation Institute of
Chicago, Northwestern University Mark V.
Johnston, PhD, Advanced Rehabilitation
Effectiveness Research Training Center on
Outcomes and Intervention, and TBI National Data
Center, Kessler Medical Rehabilitation Research
Education Corp.
33
Members (continued)
Dennis C. Lezotte, PhD, UCHSC Burn Model System
Data Coordination Center (BMS/DCC), University of
Colorado Health Sciences Center Craig M.
McDonald, MD, RRTC in Neuromuscular Diseases
(RRTC/NMD), University of California-Davis Dennis
C. Moore, EdD, RRTC on Substance Abuse,
Disability, and Employment, Substance Abuse
Resources and Disability Issues (SARDI), Wright
State University, School of Medicine
34
Members (continued)
Juan Rogers, PhD, Director, Research Value
Mapping Program, Georgia Institute of Technology
RERCs on Mobile Wireless Technologies for Persons
with Disabilities, Wheeled Mobility and Workplace
Accommodations Dave Vandergoot, PhD, RRTC on
Improving Employment Outcomes, Hunter College of
CUNY Gregg C. Vanderheiden, PhD, RERC on
Telecommunications Access, RERC on Universal
Interface and Information Technology Access,
University of Wisconsin-Madison, and Glen W.
White, PhD, RRTC on Full Participation in
Independent Living, Schiefelbusch Institute for
Life Span Studies, University of Kansas
35
Task Force on Standards of Evidence and
Methods Mark V. Johnston, PhD, Facilitator John
Westbrook, PhD, NCDDR Liaison
36
The task force on standards of evidence and
methods will develop and present to the Board
draft consensus/position statements regarding
  • Standards of quality for research addressing each
    of the three stages of knowledge development
    identified by NIDRR
  • Standards of evidence for the systematic review
    of disability and rehabilitation research

37
The task force on standards and methods will
address
Activity 1.1 Establish collaborative mechanisms
for developing standards of evidence and other
supports for developing evidence-based
knowledge. Activity 1.2 Identify existing
standards of evidence and assess their
applicability to NIDRR-sponsored
research. Activity 1.3 Facilitate the
development and refinement of standards of
evidence for NIDRR-sponsored research.
38
Task Force on Systematic Review and
Guidelines Marcel Dijkers, PhD,
Facilitator Joann Starks, NCDDR Liaison
39
The task force on systematic review and
guidelines will
  • Develop and present to the Board draft
    consensus/position statements regarding
    recommended strategies for conducting systematic
    reviews in disability and rehabilitation research
  • Review examples and components of guidelines
    produced in disability-related areas in order to
    suggest structures and components for developing
    additional guidelines derived from disability and
    rehabilitation research.

40
The task force on systematic review and
guidelines will address
Activity 4.1 Facilitate the identification,
development, and dissemination of guidelines for
disability and rehabilitation practices and
programs drawn from evidence produced through
systematic reviews.
41
Task Force on Knowledge Translation and
Knowledge Value Mapping Juan Rogers, PhD,
Facilitator Frank Martin, NCDDR Liaison
42
The task force on knowledge translation (KT) and
knowledge value mapping (KVM) will develop and
present to the Board draft consensus/position
statements and recommendations regarding
  • KVM in relation to moving scientific evidence
    into policy and practice
  • Use of the concept of knowledge value communities
    (KVC) in dissemination and utilization of
    systematic reviews

43
  • Considerations of driving and restraining
    forces in moving NIDRR-sponsored research results
    into public policy
  • Needs for evidence grading to be responsive to
    NIDRRs desire to address end-users with limited
    scientific training
  • Knowledge mapping standards appropriate for each
    of NIDRRs targeted stages of knowledge
    development

44
NCDDR Web Site and Resource Highlights
Joann Starks
45
www.ncddr.org
46
NCDDR will develop and maintain several Web-based
resources and services
  • Library of Knowledge Translation Resources and
    Strategies
  • Multi-media
  • Evidence-based materials
  • NCDDR FOCUS/Updates

47
  • Registry of Systematic Reviews
  • Searchable
  • NIDRR researcher authorships
  • Summaries, digests, reports also included
  • Registry of NIDRR-Sponsored Research
  • NIDRR Research Studies
  • Searchable by relevant components for example
    research questions, research design, sample
    characteristics

48
  • Evidence-based Registries and Databases
  • Portal to variety of resources
  • Communities of Practice
  • Forums, Online meetings
  • Teleconferences and Webcast events
  • Archives
  • Needs Sensing Activities and Reports
  • Restricted access as needed
  • Data gathering for specific audiences

49
  • Research Report Facilitator
  • Based on type of research design, suggestion for
    report components/content
  • Tools and Guides
  • Research Instrumentation
  • Guides and Guidelines

50
  • Webcasts
  • Calendar
  • Archives
  • Workshops
  • Registration
  • Archives
  • Technical Assistance Services
  • Request
  • Online TA and Training Events

51
NCDDR Collaborating Partners An Overview
Frank Martin
52
Campbell Collaboration (C2)
  • What is Campbell Collaboration?
  • C2 Goals and Activities
  • Anticipated Partnership Roles Contribution
  • Disability Research Collaborating Group
  • Online training
  • Onsite training
  • Involve NIDRR researchers in Campbell reviews
  • Key Personnel
  • Brian Cobb, PhD
  • Chad Nye, PhD

53
Cochrane Collaboration
  • What is Cochrane Collaboration?
  • Cochrane Activities - Cochrane Library
  • Anticipated Partnership Roles Contribution
  • Disability Rehabilitation Field Group
  • Involve NIDRR investigators in Cochrane reviews
  • Training for Health and Function research area
  • Key Personnel
  • Rob de Bie, PhD
  • Kay Dickersin, PhD
  • Lisa Bero, PhD

54
National Guideline Clearinghouse
  • Rationale for the NGC
  • Role of Evidence-based Practice Guidelines
  • Anticipated Partnership Roles Contribution
  • Registry development
  • Expertise on KT and guideline development
  • Key Personnel
  • Mary P. Nix

55
National Rehabilitation Information Center
  • NARIC Structure and Function
  • Anticipated Partnership Roles Contribution
  • Evidence grading system for products
  • Key Personnel
  • Mark Odum

56
Independent Living Research Utilization
  • What is ILRU?
  • ILRU and the Disability Community
  • Anticipated Partnership Roles Contribution
  • Webcasts
  • Key Personnel
  • Lex Frieden

57
RTC on Traumatic Brain Injury Interventions
  • RTCs Scope of Work
  • Systematic Review Project
  • Anticipated Partnership Roles Contribution
  • Identify research design modifications
  • Key Personnel
  • Wayne Gordon, PhD

58
Pimjai Sudsawad, PhD
  • Mary E. Switzer Fellow
  • Assistant Professor, University of Wisconsin,
    Madison
  • Research Focus Knowledge Utilization Process and
    Strategies
  • Social Validation Model
  • Anticipated Partnership Roles Contribution
  • Identify and test knowledge dissemination and
    utilization strategies
  • Effectiveness of plain language summaries

59
Ralf Schlosser, PhD
  • Mary E. Switzer Fellow
  • Associate Professor, Northeastern University,
    Boston
  • Augmentative and Alternative Communication
  • Systematic review experience
  • Conceptual framework for systematic review
  • Anticipated Partnership Roles Contribution
  • Translating the EB on assistive/adaptive devices
  • Bridging the gap Systematic reviews and
    rehabilitation engineering research

60
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