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Teaching you the skills you need to take an active part in staying healthy

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Title: Teaching you the skills you need to take an active part in staying healthy


1
  • Teaching you the skills you need to take an
    active part in staying healthy!

2
Funders
  • WV Developmental Disabilities Council
  • Sisters of St. Joseph Charitable Fund
  • Ross Family Foundation
  • Godfrey Oakley Foundation
  • Parkersburg Area Community Foundation
  • United Way Alliance of the Mid Ohio Valley

3
Fast Facts
  • West Virginia has the highest per capita rate of
    disabilities in the United States.
  • 26.8 of the states population, or more than 1
    out of every 4 WVians have a disability.
  • Thats enough people to fill
    Mountaineer
    field 9 times!
  • Thats over 7 times the
    population of Charleston.

4
The Arc of the Mid Ohio Valley
  • Serve approximately 3000 families per year
  • 10-County Region (primary) WV (other)
  • Funders Include
  • United Way Alliance of the Mid Ohio Valley
  • Corporate Individual Contributions
  • Grant Writing
  • Noahs Arc Thrift Shops
  • Family Support Program
  • Program Revenue
  • 28 programs and services
  • Serve ages birth to the
    end of life

5
What is Health Wellness?
  • Disability is not an illness. The concept of
    health means the same for persons with or without
    disabilities achieving and sustaining an optimal
    level of wellness both physical and mentalthat
    promotes a fullness of life (Krahn 2003).

6
What is Health Wellness?
  • For persons with disabilities, as for those
    without disabilities, to be healthy, it means
    having the tools and knowledge to help promote
    wellness and knowing the risk factors that can
    promote illness and the protective factors that
    can prevent it.
  • For persons with all kinds of disabilities it
    also means knowing that conditions secondary to a
    disability … can be treated successfully.

7
What is Health Wellness?
  • Health also means that persons with disabilities
    can access appropriate, integrated, culturally
    sensitive and respectful health care that meets
    the needs of a whole person, not just a
    disability.

8
A healthy lifestyle means more that not having a
disability….. It means
  • Eating well
  • Going to the doctor for regular check-ups
  • Handling stress well
  • Getting plenty of exercise
  • Relaxing and Resting
  • Making healthy choices

9
Benefits of Healthy Lifestyles
  • Prevents complications of a disability
  • Makes daily activities easier with increased
    strength and energy
  • Helps individuals feel happier and improves
    quality of life

10
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11
Program Focus Areas
  • Fitness Recreation
  • Primary Preventative Care
  • Health Nutrition
  • Emergency Preparedness

12
History of Program - 2005
  • Initial funding was secured
  • Wood County/Mid Ohio Valley were pilot
  • Part-time coordinator hired
  • Advisory Board established
  • 49 individuals enrolled in program
  • 36 active participants in multiple Fitness and
    Recreation activities
  • 13 mailings to 200 people complete
  • 609 people touched by program
  • 41 presentations made

13
Program Successes Year One
  • Program Signup
  • Excitement spread and participation increased
    steadily over the year
  • Change in attitude in the group homes staff
  • Multiple interactions with home administrators
    and management
  • Increased participation by residents of those
    group homes has increased in programs of The Arc
    across the board

14
Program Successes Year One
  • Walking Club
  • consistent participation increased from 3 to 16
  • HW participant was the team captain for The Arc
    Heart Walk team, attended the captain's luncheon
    and was listed on the AHA website as such!
  • Participated inclusively in the Parkersburg
    Homecoming's 2 mile walk as part of the highly
    publicized Half-Marathon
  • Participants comparing their pedometer readings
    throughout the day while they worked, ate dinner,
    etc.

15
Program Successes Year One
  • Women Be Healthy - WOW!
  • First session had 22 participants who came all 5
    weeks
  • Participants ranged from individuals living on
    their own to those with 24-hour assistance
  • Change in attitudes amongst group homes staff
  • One comment was "I have never seen these women be
    treated like the adults they are".
  • Pre Post surveys showed a definite improvement
    in the participants knowledge of the material
    covered, from both consumers and staff.

16
Program Successes Year One
  • Lunch Learns
  • If you feed them they will come"!
  • Opportunity to teach a handful of consumers, who
    would not have been exposed otherwise, to some
    basic wellness issues including dental care, cold
    flu germ control, nutrition, setting goals,
    tobacco issues, stretching, etc.
  • One participant asked if they could take the
    leftover educational materials because she wanted
    to take them home with her to teach her
    housemates what she had learned.

17
Program Successes Year One
  • Aerobics Class
  • Participant's enjoyment and involvement in a
    class that incorporated basic aerobic, step,
    stretching, yogo, etc.
  • Enlightenment of collaborating community
    organizations (YWCA) to inclusive, not
    segregated, activities

18
Program Successes Year One
  • Living Well With A Disability
  • 4 facilitators were certified for the 8-week
    program
  • Modifications were made to ensure individuals
    with cognitive and intellectual disabilities were
    able to comprehend content
  • 5 participants in each session
  • Great feedback particularly in the Goal
    Setting and Dealing with Stress components!

19
History of Program - 2006
  • Two expansion sites identified
  • Memos of Understanding
    drafted and signed
  • Part-time coordinators hired
  • Advisory Board established
  • 116 individuals enrolled in
    program
  • 520 unduplicated people
    touched by program

20
Program Successes Year Two
  • Increased calls to agencies implementing
    requesting registration forms and calendars
  • Steady increase in participation
  • Enthusiasm, inquisitiveness, and overall interest
    of the participants
  • Participants are actively holding their staff,
    personal assistants, and family members
    accountable for smoking, eating junk food, and
    making doctors appointments

21
Program Successes Year Two
  • Participant testimonials
  • One was heard saying This program changed my
    life.
  • Another has made it known that by using the
    altered breathing techniques she was taught
    during a Women Be Healthy session, she can now
    stay calm and focus when she was not able to
    before.

22
Program Successes Year Two
  • Personal assistants, staff, and family members
    gave positive feedback
  • Were thrilled for their loved ones to have
    personal growth opportunities presented at an
    age-appropriate level, on meaningful topics.

23
Program Successes Year Two
  • Walking Club
  • Opportunities for individuals with developmental
    disabilities to be viewed in positive, socially
    valued roles in the community increased
  • Participants actively organized and participated
    in (including raising funds for the causes) both
    the American Heart Walk and the Relay For Life.
  • Participants attended a Women Go Red event that
    was attended by many community leaders.

24
History of Program - 2007
  • Three more expansion sites identified
  • Memos of Understanding drafted and signed
  • Part-time coordinators hired
  • Advisory Board established
  • 300 individuals enrolled in program
  • 791 unduplicated people touched by program
  • Men Be Healthy curriculum developed
  • Relaxation CD completed
  • Rate Your Plate components included
  • 199 presentations made

25
Program Successes Year Three
  • New strong collaborations developed
  • Wheeling Jesuit University new perspective
  • Service-Learning departments of our states
    higher educational facilities have emerged as
    partners.
  • Partnerships are mutually beneficial
  • students and faculty are gaining first-hand
    training and experience interacting people with
    developmental disabilities, and those with
    developmental disabilities are being provided
    with valuable services and education from the
    students and faculty

26
Program Successes Year Three
  • New strong collaborations developed
  • WVU Extensions Nutrition Outreach Program
  • instructors are providing comprehensive nutrition
    trainings designed for those on low-income
    budgets and modifications to their eight-week
    programming.
  • Men Be Healthy curriculum complete
  • presented in three areas of the state resulting
    in increased knowledge from participants

27
History of Program - 2008
  • Educational materials on emergency preparedness
    and disaster response for people with
    developmental disabilities and family members
    developed trainings conducted
  • To date, almost 400 individuals are enrolled in
    program
  • Program CD complete with most program material
    included
  • Physician training presentation complete and
    presented
  • 41 organizations collaborating on the project

28
Program Successes Year Four
  • New strong collaborations developed
  • WVU of Parkersburg
  • Fitness and yoga courses (credit) were open to
    individuals participating in the HW program to
    encourage inclusion (at no cost)
  • Legislative Advocacy
  • Training for self-advocates on how
    to speak about issues
    pertaining to health-related topics
  • Successful visits to state Capitol

29
Program Promotion
  • Newsletters/Website
  • Calendars/Reminder Flyers
  • WV People First Conference
  • Cross-Promotion at Events
  • Meetings with Disability Service Provider
    Agencies
  • Direct Mailings to Teachers
  • Outreach to DHHR/DRS/Sheltered Wshp

30
Requirements for Enrollment
  • Participants agree to stay for 1 year
  • Participants agree to take part in at least one
    activity in each of the three focus areas
  • Participants agree to
    complete the pre- and
    post- health status
    surveys and release the information
    to us

31
Program Registration
  • Registration Packet
  • Participant Agreement
  • Activity Interest Sheet
  • Program Registration
  • Informed Consent
  • Health Status Survey

32
Welcome Packet
  • Health Wellth Bag
  • Health Care Tool Kit
  • Toothbrush/Paste/Floss
  • Water Bottle
  • Pedometer
  • Fact Sheets
  • Component Folders

33
Collaborating Sites
  • Memo of Understanding
  • Inclusion of individuals outside of client base
  • Must host a disability awareness, etiquette, and
    inclusion training
    for community and
    collaborators
  • Budget
  • Reports

34
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35
Fitness Recreation Components
  • Walking Clubs
  • Held 2x week from May
    to October
  • Participants track steps
    with pedometers and through West Virginia
    on the Move.
  • Held at most inclusive location available
    (example city park, university walking track)

36
Fitness Recreation Components
  • Relay for Life Heart Walk
  • Program participants signed up and formed teams
    with themselves as team leaders raised money for
    their team through fundraising received
    literature on cancer and heart disease
    prevention and then walked for their causes.

37
Fitness and Recreation Components
  • Collaboration with local fitness clubs and
    universities
  • Currently consumers participate in inclusive
    Aerobics, Kickboxing, Strength
    Training, Yoga and Relaxation

38
Fitness and Recreation Components
  • Exercise Video Relaxation CD
  • taped using both staff program participants.
  • Currently being prepared for distribution for
    those who want to exercise at home or who are not
    able to come and enjoy
    classes on schedule days.

39
A Participants View
40
Primary Preventative Components
  • Tobacco Cessation/Prevention
  • Over 400 individuals with a disability have
    received documents detailing the importance of
    being or becoming tobacco-free.
  • Health Departments have
    collaborated on lunch
    learns and
    health fairs.

41
Primary Preventative Components
  • Living Well With a Disability
  • Eight week program with curriculum that is based
    on the assumption that goal setting and problem
    solving provide a framework for a healthy
    lifestyle.
  • Sessions include Beating the
    Blues, Communications,
    Seeking info, Physical Activity,
    Eating Well Being Safe,
    Self-Esteem, and
    Disability Pride.

42
Primary Preventative Components
  • Women Be Healthy
  • Series designed to educate adult women with
    cognitive or intellectual disabilities understand
    what it is to be a healthy woman
  • Gender-specific material is present-
    ed on an appropriate cognitive level
    with emphasis on doctors
    visits, relaxation to over come
    anxiety, self exams,
    the body, pelvic/groin
    area, cancer with treatments and
    prevention, role playing, and at
    the end of the visiting a doctors
    office and tour the facility

43
A Participants View
44
A Participants View
45
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46
… I would like to say that the adult women
involved with this program enjoyed sharing and
acknowledging their interest and concerns about
their health…. …They felt more at ease
knowing what a preventive check-up meant to them
and to their health care providers and knowing
what to expect during there check-ups and the
reasons for them… It was and is a joy to know
that we can provide preventative health care for
all ages and stage regardless of disability to
all women… I appreciate being involved in
this wonderful program. -Kate Hasse RN CFNP
A Practitoners View
47
Primary Preventative Components
  • Men Be Healthy
  • Series designed to educate adult men with
    cognitive or intellectual disabilities understand
    what it is to be a healthy man
  • Gender-specific material is presented on an
    appropriate cognitive level with emphasis on
    doctors visits, relaxation to over come anxiety,
    self exams, the body, pelvic/groin area, cancer
    with treatments and prevention, role playing, and
    at the end of the visiting a doctors office and
    tour the facility

48
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49
Primary Preventative Components
  • Health Fairs
  • Collaborations with local health care education
    professionals
  • Basic baseline and follow up
    blood pressure testing
  • Body composition assessments
  • Total cholesterol/glucose tests
  • Other screenings including
    hearing, skin cancer, flexibility,
    eye sight, etc.
  • 250 consumers attend these
    events every year.

50
Primary Preventative Components
  • Healthcare Toolkit
  • For individuals with disabilities and the people
    who support them
  • Designed to improve direct communication between
    the healthcare provider and the person with the
    disability.
  • Kit includes a set of forms for tracking
    healthcare concerns, patient visits, and
    interventions.
  • Healthcare Resource Guide
  • Updated annually to track
    available services and
    programs in local
    community that are
    free or reduced cost.

51
Primary Preventative Components
  • Training of Healthcare Personnel
  • Health Wellth has opened
    doors for educating various
    individuals in the medical
    field
  • People First Language
  • Disability Etiquette
  • Breaking Down Communication
    Barriers
  • Disability-Specific Trainings

52
Health Care Issues
  • Persons with disabilities have
    health care needs like
    everyone else.
  • Disability is neither inability nor sickness.
  • Most persons with disabilities are just as
    healthy as
    people who dont have disabilities
    however, for a
    variety of reasons, persons with
    disabilities can be at greater risk for illness.
  • Most people with disabilities can, and do, work,
    play, learn, and enjoy full healthy lives in
    their communities.

53
Health Care Issues
  • Persons with disability need health
    care professionals who really
    listen
    to, communicate with, and respect them.
  • People with disabilities need health care
    professionals who treat all of their health
    needs, not just their disability.
  • With accommodations and supports, ample access to
    health care, engagement in wellness activities,
    and the impetus that comes from supportive
    friends and families, persons
    with disabilities can, and do, lead long,
    productive, and healthy lives.

54
Healthcare Professionals are Responsible for
Treating the Whole Person, Not Just the
Disability
55
Challenges
  • Challenges include,
  • Insufficient knowledge and awareness of
    by the public,
    health care, and wellness service providers,
    educators,
    administrators, the media and others.
  • Health care professionals and community attitudes
    and behaviors that lead people to see and respond
    only to the disability, not to the whole person.
  • Insufficient health care and wellness promotion
    services and information that is adapted for
    persons with disabilities.
  • Service systems that do not always make use of
    innovative and creative approaches to enhance the
    health and wellness of persons with disabilities.

56
Health Care Issues
57
Health Nutrition Components
  • Cooking Club
  • Incorporates structured nutritional information
    into every session.
  • On average 40 consumers attend these
    activities every month
  • Participants have also volunteered to be the
    Guest Chef and teach their peers
    how to cook healthy independently.

58
Health Nutrition Components
  • Grocery Store tour at local grocers
  • Consumers learn how to make healthy selections
    and where to go for these
    foods in a store.

59
Insert pics
60
A Participants View
61
Health Nutrition Components
  • Monthly Lunch Learn educational series
  • Participants attend mini sessions that cover
    varying topics that have included
  • Fire prevention, How to Stop Germs, Volunteering
    in the Community, Diabetes Education,
    Chiropractic Health, Diets, How to Plant an Herb
    Garden out your window to use in your meals at
    home, and so many more..

62
Health Nutrition Components
63
Health Nutrition Components
64
A Participants View
65
Health Nutrition Components
  • How to Understand and Use the Nutrition Facts
    Label training
  • This hour long class teaches consumers how to
    read a serving size label, calories, calories
    from fat, nutrients, understanding the footnotes
    on the bottom of the nutrition facts, daily
    values, nutrients with percents, and nutrients
    with out percents.

66
A Direct Support Staffs View
The Arc sponsors many great programs for people
with disabilities but I think we all agree that
the Health and Wellness program is one of the
most important that we attend. It focuses on
learning to live a healthier lifestyles that is
important for everyone… …These programs lead to a
longer, healthier life,
allows interaction with
new people, and adds fun into their
busy schedules. The staff
here also enjoys these
programs as much as
the residents. Thanks Guys! Jennifer Watson,
Counselor Horizons
67
A Parents View
  • I wanted you to know how much my son,
    Jeffery Vaughn, enjoyed the Health and Wellth
    Programs he attends. He rarely misses anything
    that is scheduled and…Not only is it important
    that he is On the Move, but he enjoys the
    social interaction as well.
  • …He also participated in the Healthy Screening
    by Mountain State Blue Cross/Blue Shield. Jeffery
    has benefited from all the
    Health and Wellness Programs
    especially the socialization which
    I think is so important. Jeffery is
    autistic and social
    interaction is really difficult
    for him.
  • -Linda Vaughn, Parent

68
Emergency Preparedness Components
  • Education of Individuals with Disabilities and
    those who serve them
  • Education of First Responders, Emergency
    Planners, Volunteer Response Agencies
  • Involvement of Individuals with Disabilities and
    Direct Care
    Providers in Planning
  • Local and State Level

69
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70
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71
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72
Lessons Learned Keys to Success
  • Hire passionate staff to coordinate
  • Must have support from the top of site
    coordinating agencies
  • Reminders….Reminders….Reminders
  • If at first you dont succeed, rethink and try
    again.
  • Repeat….Repeat….Repeat
  • Must sell program to direct care providers to
    ensure involvement of PWDD

73
Health Wellth Products Available
  • Heath Wellth Registration packets
  • Women Be Healthy Curriculum NC Office on
    Disability
  • Living Well with a Disability Curriculum - Rural
    Health Institute, Montana
  • Disability Etiquette People First Language
    trainings
  • Guest Chef/ Cooking Club Guidelines Nutrition
    topics
  • Healthcare Toolkit Wisconsin Council on
    Developmental Disabilities
  • Lunch Learn Topics and Educational Materials
  • Pedometers- WV on The Move
  • Participant Health Wellth Bags
  • How to read Labels/Nutritional Guidelines
  • Men Be Healthy Curriculum
  • Exercise Video
  • Health Wealth flyer templates
  • Relaxation CD
  • Program Materials CD
  • Emergency Preparedness for PWDD Video (in
    process)
  • First Responder Training on Special Population
    Issues Video (in process)

74
Collaborating Groups/Agencies/Organizations
  • WV Developmental Disabilities Council
  • America On the Move/WV On the Move
  • YWCA
  • City(s) of Parkersburg, Fairmont, Charleston
  • SW Resources
  • WV Office of Maternal, Family, Child Health
  • Wisconsin Developmental Disabilities Council
  • Dr. Brian Powderly staff
  • Camden Clark Memorial Hospital
  • Montana Rural Health Institute
  • ResCare, REM, Horizons, Self-Advocates
  • American Heart Association
  • University of NC Office on Disabilities
  • American Cancer Society
  • The Arc of Three Rivers
  • Cross Lanes Methodist Church
  • South Charleston Rec Center
  • WVU Extension
  • Wood County Recreation
  • Marion County Vintage Program
  • Diabetes Centers
  • Right From The Start
  • Ohio Valley University
  • Local Dentists
  • Parkersburg Cardiology Associates
  • St. Josephs Hospital
  • HealthSouth
  • Local Yoga Instructors
  • Sweetsong Recording
  • WVU Center for Excellence in Disabilities
  • Dr. Heather McCarter
  • The Arc of Marion County
  • YWCA of Harrison County
  • WVU-P

75
  • Teaching you the skills you need to take an
    active part in staying healthy!
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