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Muscular Dystrophy and Assistive Technology

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Children can use this easy-to-move device as a standing walker or for scooting ... to the table or a counter for participation in crafts and other quiet activities. ... – PowerPoint PPT presentation

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Title: Muscular Dystrophy and Assistive Technology


1
Muscular Dystrophy andAssistive Technology
Stefanie Arnold Tanea Spencer Katherine Zapata
2
What is Muscular Dystrophy?
  • Muscular Dystrophy(MD) is a term that describes
    more than 30 genetic muscle diseases. It is
    characterized by progressive muscle weakness and
    degeneration of the skeletal muscles that control
    movement. Specifically in the trunk and lower
    extremities.

3
What is Muscular Dystrophy?
  • The most common type, Duchenne muscular
    dystrophy, primarily affects boys. The onset is
    between 3 to 5 years. Most are unable to walk by
    age 12, and later may have cardiac problems or
    need a respirator to breathe.

4
What is Muscular Dystrophy?
  • PROGNOSIS
  • Some cases may be mild, while others produce
    severe muscle weakness, functional disability and
    loss of the ability to walk. The atrophy of
    muscle results in chronic weakness and fatigue.
    The muscles affected can be around the pelvis,
    shoulder, and face.

5
What is Assistive Technology?
  • It helps a child with a disability or special
    need to do something.
  • The legal definition is "any item, piece of
    equipment or product system whether acquired
    commercially , modified, or customized, that is
    used to increase, maintain, or improve the
    functional capabilities of individuals with
    disabilities" (20 U.S.C., Chapter 33, Section
    1401(25).

6
Muscular Dystrophy, Client Factors and
Performance Skills
7
Activities of Daily Living
  • Feeding Problems
  • Decreased hand muscle weakness
  • Limited range of movement
  • Loss of function in muscle skills

8
Activities of Daily Living
  • Feeding Solutions
  • The Zonco Mobil Arm Valet has attachments to
    help with feeding, writing, keyboarding, shaving,
    and brushing your teeth. It also clamps easily to
    a table or a wheelchair.

9
Activities of Daily Living
  • Feeding Solutions
  • Larger handled forks, knives and spoons or ones
    with easy-to-grip foam handles.
  • Special plates with raised edges so food won't
    slide off.
  • Cups with handles or a cut out from which to
    drink.

10
Activities of Daily Living
11
Activities of Daily Living
  • Functional Mobility Problems
  • Progressive weakness in shoulders and chest
  • Walking difficulty
  • Waddling gait
  • Poor balance
  • Frequent falls

12
Activities of Daily Living
  • Functional Mobility Solutions
  • By age 12, power wheelchair is strongly
    recommended
  • Walkers
  • Dynamic standers

13
Activities of Daily Living
  • Adapt-A-Walker
  • Children can use this easy-to-move device as a
    standing walker or for scooting around while
    seated. Its features include
  • This sturdy PVC walker rolls easily both indoors
    and outdoors. Its suitable for children 4 years
    old to teen/small adult (40"- 60" tall). It can
    also be used for children 36"- 40" tall in the
    standing position, using the seat to rest.

14
Activities of Daily Living
  • Dynamic Standers
  • The Rifton Dynamic Stander rolls easily and
    supports standing from non-weight-bearing to full
    weight-bearing.
  • Without the large wheels, the Stander rolls right
    up to the table or a counter for participation in
    crafts and other quiet activities.
  • With the optional large wheels in place, children
    have the freedom to explore their surroundings
    alongside their playmates-indoors, as well as on
    level surfaces outdoors.

15
Activities of Daily Living
  • Atila Posture Walker A bright yellow frame makes
    this rollator walker a favorite with kids. Double
    caster wheels in front make steering easy, and
    rear wheels allow smooth rolling with no need for
    lifting. Hand brakes, adjustable to childs
    ability, provide safety and control. Handy seat
    cushion is a ready support when rests are needed.
    A tray which doubles as a seat support is also
    available. Generous space between wheels
    accommodates wide or uncoordinated gaits.

16
Activities of Daily Living
  • Finesse 290 Junior
  • The robust design is well suited to the typical
    wear and tear caused by children and young adults
    while providing the same functionality and
    comfort in a smaller seat. 
  • The F290 Junior can last a child into adulthood
    by simply getting larger systems as your child
    grows.

17
Instrumental Activities of Daily Living
  • Community Mobility Problems
  • Marked weakness of muscles of the trunk and
    extremities
  • The need to transport power wheelchair

18
Instrumental Activities of Daily Living
  • Community MobilitySolutions
  • Wheelchair Van
  • For power wheelchair transportation
  • Enjoy family vacations
  • Outings

19
Education
  • Education Problems
  • Muscles Weaknesses progresses (including lack of
    head control)
  • Fatigue quickly
  • Reduced fine motor skills decrease of UE
    strength
  • Difficulty with taking notes
  • Assistance with school materials (lifting a
    books, turning pages, etc.)

20
Education
  • Education Solutions
  • Laptop for easy transport
  • Have reading assignments in class computer or
    laptop instead of carrying books
  • Trackball
  • Onscreen keyboard
  • Word prediction
  • Scanner

21
Education
  • On-Screen Keyboard (WiViK ver. 3)
  • Any pointing device can be used as input
  • All on screen keys work like standard keyboard
  • Keys selected are sent to word processor, email,
    web, etc.
  • Keyboard can be configured to users needs

22
Education
  • The Eyegaze Computer System is an eye controlled
    (eye gaze) computer input, communication, and
    environmental control system
  • Make selections by looking at keys displaced of
    the screen
  • For school
  • To turn on/off lights
  • Appliances
  • Access mouse and keyboard for school tasks
    (including e-mails and internet)

23
Play
  • Play Problems
  • Weakness
  • Poor balance
  • Weakness of scapular stabilization
  • Affects controlled movement of the arms and hands
    during reaching
  • Waddling gait
  • Fatigue
  • Calf muscle pain

24
Play
  • Play Solutions
  • Use computer to play cards or online games
  • Virtually reality systems
  • Looking glass technology that transport the user
    into imaginary, three-dimensional universe
    created with software
  • It can be used for wheelchair drivers education,
    too.

25
Play
Switch adapted mouse!
  • Game Boy Adapter
  • Modified game controller
  • Play using switches

26
Play
  • Rifton Adaptive Tricycles
  • Rustler, Ranger, Wrangler. This therapeutic trike
    grows with your child you adjust it all with the
    twist of a knob! Thats right, no tools.
  • Adapted tricycles are available for children who
    cannot support themselves in a safe sitting
    position on a moving tricycle

27
Play
  • Little Chalk Drawer Kit
  • Clients create works of art, simply by propelling
    themselves in their wheelchairs or walkers!

28
Leisure
  • Leisure Activities Problem
  • Limited muscle strength
  • Shoulders, arms and hands
  • Progressive muscle wasting
  • Limited mobility
  • Ambulates with waddling gait
  • Running is difficult or cannot run at all
  • Wheelchair use
  • Fatigue

29
Leisure
  • Leisure Activities Solutions
  • Bi-Unique Biski
  • transfers the skier's movements to the ski, and a
    safety evacuation harness integrated into the
    Glove Seating System

30
Leisure
  • Double Adjustable Putter
  • An adjustable patented pivot assembly allows you
    to adjust the angle of the handle and the head,
    making this putter accessible to clients with
    physical disabilities who are ambulatory or
    wheelchair-bound.

31
Leisure
  • Bowling Ramp - Freestanding Chrome
  • helps people with limited physical strength or
    mobility enjoy bowling.

32
References
  • www.rifton.com
  • www.teachmorelovemore.com
  • www.zoncoarm.com
  • www.wikipedia.org/wiki/Muscular_dystrophy
  • www.flaghouse.com
  • http//prekese.dadeschools.net/primetime.htm
  • www.sammonspreston.com
  • www.balder.co.uk/home/default.asp
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