Privacy,%20Security%20and%20Data%20Sharing%20Committee

1
Privacy, Security and Data Sharing Committee

• March 27, 2006

2
Background and Mission

• Formed Dec. 9, 2002
• Mission
• represent public health and health services
  research interests in privacy and security issues
  
• address balancing patient privacy,
  confidentiality, and security with the need for
  useful data for public health and research
• Focus on priorities related to privacy, security
  and data standardization including implementation
  of the HIPAA privacy and security rules

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Accomplishments

• Broadened committee focus to include security and
  renamed as Privacy, Security and Data Sharing
  Committee
• Completed and posted all local health privacy
  case studies developed under a HRSA grant
• Updated web site information and materials
• Participate in new and ongoing national efforts
  regarding privacy and security
• Pursuing collaborative opportunities with ASTHO

4
Updated Privacy and Security WRC Information and
Materials

• Updated the URL's and expanded the list of sites
  for Privacy and Security, and added many states
  HIPAA websites
• Distributed solicitation letters for privacy and
  security materials to post on the Consortium
  website
• Updated the list of committee members and the
  committee description on the Consortium website
• Have a task on the contract to revise the WRC to
  develop a web portal to provide educational
  materials on health data privacy issues

5
Participate in National Efforts on Privacy and
Security

• Considered how the committee and the Consortium
  might be involved in the RTI contract for the
  privacy and security ONC RFP
• Wrote and distributed letters to all state
  governors to
• encourage strong public health and other public
  sector participation
• outline some of the major privacy concerns for
  public health, especially those that differ from
  the private sector, and
• offer the Consortiums support
• Participate on the AHIMA Security and Privacy
  Task Force under the RTI project to generate
  draft health information workflow and sharing
  scenarios

6
Pursuing Collaborative Opportunities with ASTHO

• Had initial discussions on possible
  collaborations items proposed include
• submitting articles for ASTHOs newsletters
• partnering on writing and producing documents,
  such as a white paper on cross state data
  exchanges due May 6
• sending a joint letter of support to the state
  recipients of the RTI contract
• developing a joint national communications effort
  to communicate with both the public health sector
  as well as to groups involved in national efforts
  
• soliciting funds for the support of public health
  representation on the various contract activities

7
Future Activity

• Most activities are in the early stages
• Further discussions with ASTHO and the Committee
  will be held to narrow the choices and prioritize
  activities for the upcoming year
• Continue to monitor and look for avenues of
  involvement and/or participation in the national
  privacy/security efforts
• Additional work to follow up on materials
  solicitation to enhance privacy and security
  content on the Consortium website
• Development of ideas for security projects

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Committee Chairs

• Vicki Hohner, MBASenior ConsultantFox Systems,
  Inc.Email vicki.hohner_at_foxsys.com
• Dr. Richard Urbano
• Research Professor
• Vanderbilt Kennedy Center
• Email RICHARD.URBANO_at_Vanderbilt.edu

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Committee Members

• Bruce Burns
• Texas Health Care Information Council
• Kathleen Cook
• National Association of County and City Health
  Officials (NACCHO)
• Robert Davis
• National Association of Health Data
  Organizations
• Wanda Govan-Jenkins, M.S., M.B.A., R.N.
• CDC/NCHS
• Marjorie Greenberg, M.A.CDC/NCHS
• Michael C. Jones
• Illinois Department of Public Health
• Michael Kassis
• California Department of Developmental Services
• Hetty Khan, M.S., B.S.N., R.N.CDC/NCHS

10
Committee Members

• Sally Klein, RN, MBAFox Systems, Inc.
• Jonathan LawniczakAcademyHealth
• Starla Ledbetter, M.H.S.A., R.H.I.ACalifornia
  Office of Statewide Health Planning and
  Development
• Denise Love
• National Association of Health Data
  Organizations
• Janet MarchibrodaeHealth Initiative
• Dr. Gerald Masson
• Johns Hopkins University
• Beverly Meadows, M.S., R.N.National Institutes
  of HealthNational Cancer Institute
• Anna Orlova
• Public Health Data Standards Consortium

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Committee Members

• Derek Pate
• Oklahoma Department of Health
• Barbara Rudolph, Ph.D.The LeapFrog Group
• Anne Ryan, R.N. National Institutes of
  HealthNational Cancer Institute
• Carol Stocks, R.N., M.H.S.A.Agency for
  Healthcare Research and Quality (AHRQ)
• Walter Suarez, M.D., M.P.H.Midwest Center for
  HIPAA Education
• Jonathan Teague
• California Office of Statewide Health Planning
  and Development
• Jessica Townsend, M.P.H.Health Resources
  Services Administration
• Socrates Tuch
• Ohio Department of Health

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Committee Members

• Dorothy Webman, D.S.W.Workgroup for the
  Computerization of Behavioral Health Human
  Services Records
• Michelle Williamson, B.S., B.S.N., R.N.CDC/NCHS