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The National Program of Cancer Registries: Enhancing Cancer Incidence Data

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United States Cancer Statistics. Combined NPCR and SEER incidence data ... United States Cancer Statistics: 2004 Census Region and Division. MIDWEST ... – PowerPoint PPT presentation

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Title: The National Program of Cancer Registries: Enhancing Cancer Incidence Data


1
The National Program of Cancer Registries
Enhancing Cancer Incidence Data …
  • Hannah K. Weir, PhD
  • Division of Cancer Prevention and Control
  • Centers for Disease Control and Prevention

2
…with Vital Records Data for Cancer Control
  • Cancer Control an approach to reducing cancer
    incidence, morbidity and mortality through
    prevention, early detection, treatment,
    rehabilitation and palliation.

3
CDCs Cancer Prevention and Control Programs
4
Model for Cancer Control
  • Plan Interventions
  • Prevention
  • Screening
  • Treatment rehabilitation
  • Palliative Care

Measure Evaluate Cancer Burden
Act Implement Interventions
5
The Cancer Continuum
Diagnosis / Stage
Death
Survival
Treatment Rehabilitation
Palliative Care
Prevention
Early Detection
6
Cancer Control in Action
  • If Cancer Control Planners are the hands of CC
  • Plan and implement the interventions)
  • Vital Records and Cancer Registries are the
    eyes of CC
  • Measure and evaluate cancer burden

7
Surveillance, Epidemiology, and End Results
Program (SEER)
  • 1971 National Cancer Act
  • 1973, 5 States, 4 Metro Areas, 10 population
    coverage
  • 1991 added 2 more Metro Areas, 14 population
    coverage
  • 2001, added 4 more states,
  • 26 population coverage

8
National Program of Cancer Registries (NPCR)
  • 1992 Cancer Registries Amendment Act
  • 1995 1998
  • 45 states, 3 territories, District of Columbia
  • 96 population coverage

SEER NPCR NPCR/SEER
AK HI
9
What do the eyes see in the cancer continuum ?

10
Vital Records - Cancer Deaths
Death
11
Cancer Registries - New Occurrences of Cancer
Diagnosis
Prevention
12
United States Cancer Statistics
  • Combined NPCR and SEER incidence data
  • Increase in population coverage
  • 1999 .. 78 2002 .. 93
  • 2000 .. 84 2003 .. 96
  • 2001 .. 92 2004 .. 98
  • 100 cancer death data
  • State, regional, and national incidence and
    mortality data for whites, blacks, Asians/Pacific
    Islanders (A/PI), American Indian/Alaska Native
    (AI/AN), Hispanics, and children

www.cdc.gov/cancer/npcr/
13
United States Cancer Statistics 2004 Census
Region and Division
Seattle-Puget Sound
WA
NORTHEAST
MIDWEST
ND
MT
OR
MN
PACIFIC
WEST NORTH CENTRAL
MI
ID
WI
SD
Detroit
WY
MOUNTAIN
IA
San Francisco-Oakland
NE
EAST NORTH CENTRAL
NV
OH
UT
San José-Monterey
CA
CO
KS
IN
MO
IL
WV
VA
KY
Los Angeles
AZ
NM
NC
TN
OK
WEST
Atlanta
AR
SC
AL
MS
SOUTH ATLANTIC
EAST SOUTH CENTRAL
WEST SOUTH CENTRAL
Division
GA
LA
TX
State
AK
State contributing mortality data
FL
HI
SOUTH
State contributing incidence and mortality data
14
Female Breast Cancer (Invasive) SEER Incidence
and U.S. Death Rates
Incidence Death
Rates are per 100,000 and are age-adjusted to
the 2000 U.S. standard population. Source SEER
Cancer Statistics Review, 1975-2004
15
(No Transcript)
16
(No Transcript)
17
The Cancer Continuum
Diagnosis / Stage
Early Detection
18
Female Breast Cancer Cases Diagnosed at Early
Stage
19851987
Percentage of Cases
lt 39.1
39.148.1
48.255.9
56 over
19
Female Breast Cancer Cases Diagnosed at Early
Stage
19951997
Percentage of Cases
lt 39.1
39.148.1
48.255.9
56 over
20
Institute of Medicine Reports
  • We all want to believe that when people get
    cancer, they will receive medical care of the
    highest quality. Even as new scientific
    breakthroughs are announced, though, many cancer
    patients may be getting the wrong care, too
    little care, or too much care, in the form of
    unnecessary procedures.
  • (IOM 1999)
  • NPCR …has great potential to facilitate
    national, population-based assessments of the
    quality of cancer care …
  • (IOM 2000)

21
The Cancer Continuum
Diagnosis
Death
Survival
Treatment Rehabilitation
Palliative Care
22
Linkage between the Registries and State Vital
Statistics Offices
Cancer Registry
Vital Statistics
23
… to update vital status
24
Blanket NPCR-NDI Application
  • 2006 application approved to obtain vital
    status information on cancer patients who move
    our of state between the time of their diagnosis
    and their death

25
Clinical Research vs. Public Health
Clinical trials highest achievable
survival Public health average survival achieved
26
100
90
80
70
60
Relative survival ()
2000-01
50
1996-99
1991-95
40
1986-90
30
20
10
0
1
2
3
4
5
0
Years since diagnosis
27
Relative Survival and Population Cure
Mean survival of fatal cases
28
Cure for more Colorectal Cancers, UK
Source M. Coleman
29
The Eyes and Hands of Cancer Control
Diagnosis
Death
Survival
Treatment Rehabilitation
Palliative Care
Prevention
Early Detection
30
Model for Cancer Control
  • Plan Interventions
  • Prevention
  • Screening
  • Treatment rehabilitation
  • Palliative Care

Measure Evaluate Cancer Burden Incidence
Stage at diagnosis Deaths Survival
Act Implement Interventions
31
Important Collaborations between Cancer
Registries and Vital Records
  • Hannah Weir
  • HBW4_at_CDC.GOV
  • (770) 488-3006
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