The National Organization on Fetal Alcohol Syndrome Washington State FASD Family Summer Camp - PowerPoint PPT Presentation

Loading...

PPT – The National Organization on Fetal Alcohol Syndrome Washington State FASD Family Summer Camp PowerPoint presentation | free to download - id: 27172a-ZDc1Z



Loading


The Adobe Flash plugin is needed to view this content

Get the plugin now

View by Category
About This Presentation
Title:

The National Organization on Fetal Alcohol Syndrome Washington State FASD Family Summer Camp

Description:

NOFAS Washington State. NOFAS Washington Mission Statement ... Craft building ... Mothers group/craft activity ... – PowerPoint PPT presentation

Number of Views:21
Avg rating:3.0/5.0
Slides: 60
Provided by: allison66
Category:

less

Write a Comment
User Comments (0)
Transcript and Presenter's Notes

Title: The National Organization on Fetal Alcohol Syndrome Washington State FASD Family Summer Camp


1
The National Organization on Fetal Alcohol
Syndrome Washington State FASD Family Summer Camp
  • Julie Gelo, Executive Director
  • NOFAS Washington State

2
NOFAS Washington Mission Statement
  • The National Organization on Fetal Alcohol
    Syndrome Washington State, a nonprofit 501 (c)
    (3), is an alliance of families and professionals
    supporting individuals with Fetal Alcohol
    Spectrum Disorders, the families that care for
    them, and the systems that serve them by way of
  • prevention
  • education
  • intervention
  • advocacy

3
Summer Camp Objectives
  • To increase individual protective factors for
    children with FASD by providing access to
    services and support systems focused on the
    prevention of the secondary disabilities of FASD.
  • To increase family protective factors by
    providing an opportunity for families of children
    with FASD to gather in a supportive environment
    to develop and enhance their network of supports.
  • To increase family protective factors by
    providing parents and caregivers with an
    opportunity for respite, education and
    networking.
  • To increase individual protective factors by
    providing opportunities for children with FASD to
    develop healthy peer relationships and to
    interact with other children in developmentally
    supportive and well supervised recreational and
    social activities.
  • To decrease the incidents of FASD through
    prevention and education.

4
Summer Camp Objectives
  • Opportunities for families of children with FASD
    to develop a network of family supports.
  • Respite, educational sessions, networking, and
    pampering for parents.
  • Opportunities for children and youth with FASD to
    interact with other children in supported and
    well-supervised recreational and social
    activities.
  • Opportunities for siblings to meet and interact
    with other siblings of affected individuals.
  • Social and recreational activities for adults and
    children to enjoy time together, e.g., walks,
    cooperative games, yoga, etc., as well as story
    time, crafts, music, and nature talks for the
    children.

5
Model
  • 5 day overnight camp
  • Wednesday through Sunday
  • Children in groups with volunteers and counselors
    in morning and afternoon
  • Meals eaten family style in the A-frame
  • Parents attended trainings during the day
  • Short respite opportunities for parents

6
Model
  • Family activities in the evening
  • Magician, Bubbleman, camp songs and skits led by
    counselors, Reptileman, informal activities
  • 18 to 24 families attended each camp
  • 125 to 150 participants including families,
    staff, and volunteers

7
Funding
  • First year-SAMHSA
  • Subsequent years-collaborative effort
  • SAMHSA, DASA, NOFAS, NOFAS Washington, Washington
    State DOH, donations from stores, donations from
    community providers, registrations from families

8
Facility
  • Camp Volasuca
  • Volunteers of America camp
  • Sultan, Washington (foothills of the Cascade
    Mountains)
  • Tent cabins for families
  • Cabins held between six to sixteen beds
  • Single parent families often shared a cabin
  • Electricity but no plumbing or heat
  • Allowed a few RVs

9
Facility
  • Male and female shower/bathroom building
  • Swimming pool/wading pool
  • A-frame building for meals and kitchen
  • Craft building
  • Ball field, basketball court, in-ground
    trampoline, swings, campfire area with stage
  • Community resource building-parent training
  • Miniature golf, volleyball, and ropes course

10
Participants
  • Identified clients
  • Birth families
  • Foster families
  • Adoptive families
  • Relative placements
  • Aunts and uncles, grandparents and
    great-grandparents raising grandchildren
  • Siblings
  • Respite providers/community providers

11
Counselors and Volunteers
  • Camp provided-5 to 8 counselors, kitchen
    staff/cook, lifeguard, maintenance man, craft
    leader, lead staff person
  • Volunteers-FASD diagnostic clinic staff, special
    education teachers, doctoral psychology students,
    social workers, special Olympics coaches, NOFAS
    Washington board members.
  • Ratio of 3 campers to 1 adult with 11
    supervision provided if needed.

12
Families
  • Wide range of families
  • Single parents, same sex couples, birth mothers,
    two parent families, adoptive/foster/kinship
    families, different ethnic/cultural groups
  • Family size range-single parent and one child to
    families with eleven children
  • Families may include multiple generations
  • Some families came all six years

13
Identified Clients
  • Age range 11 days old to 24 years old
  • First year
  • Documented alcohol exposure
  • FASD diagnosis with documented evidence of
    learning and behavioral differences
  • Age range 6 to 11 years old
  • Subsequent years
  • Documented alcohol exposure

14
Groups
  • Children assigned to groups based on
    age/development
  • Rabbits0 to 3 year olds
  • Foxes4 and 5 year olds
  • Bears6 and 7 year olds
  • Wolves8 and 9 year olds
  • Hawks10 to 12 year olds
  • Deer13 to 15 year olds
  • Eagles16 and older (junior volunteers in
    training)

15
Agenda
  • 8am-- breakfast
  • 9am to noon group activities for children and
    training for parents
  • Noon lunch
  • 1pm to 4pm group activities for children and
    training for parents
  • 4pm to 530pmfamily activities (swimming,
    bubbles, nature walks, miniature golf)
  • 530pmdinner
  • 630pm to 8pmcampfire/family activity
  • 8pmbedtime snack
  • 830 to 9pm--bedtime

16
Training Opportunities
  • Sensory Processing Disorder
  • Positive Behavior Supports
  • Home and Classroom Modifications
  • Educational Advocacy
  • Psychopharmacology
  • Brain Function
  • Post Adoption Support
  • Social Skills Training
  • Nurtured Heart Approach

17
Agenda Special Activities
  • Fathers group
  • Mothers group/craft activity
  • Bubbleman, Reptileman, Magician, Native American
    storyteller, harmonica lessons
  • Carnival
  • Slumber party/movie night
  • Parents massages, foot/leg massages,
    dancing/music, snacks, networking

18
2007 Washington State FASD Summer Camp
Evaluation Results
19
Figure 1 Parent Feedback (n28) Children's
Needs Met?
Average Rating
Comfort
Needs
20
Figure 2 Parent Feedback (n26) Satisfaction
with amount of time spent in parent training.
21
Figure 3 Parent Feedback (n26) Satisfaction
with amount of time spent with childrens
activities.
22
Figure 4 Parent Feedback (n26) Satisfaction
with amount of time spent in family activities.
23
Figure 5 Parent Feedback (n26) Satisfaction
with amount of parental respite and pampering.
24
Figure 6 Parent Feedback (n26) Willing to
attend a similar camp in the future?
25
Figure 7 Parent Feedback (n26) Willing to
attend a weekend camp during the school year?
26
Figure 8 Parent Feedback (n26) Willing to pay
for the camp?
27
Figure 9 Parent Feedback (n17) Amount willing
to pay?
28
Figure 10 Parent Feedback (n26) Satisfaction
with camp length.
29
Figure 11 Counselor Feedback (n10) Satisfaction
with camp length.
30
Figure 12 Parent Feedback (n26) Organization,
supervision and facility.
31
Figure 13 Counselor Feedback (n8) Organization,
supervision and facility.
32
Figure 14 Parent Feedback (n27) Most valuable
part of the camp?
33
Figure 15 Parent Feedback (n28) Importance of
parent networking, respite, and pampering?
34
Figure 16 Parent Feedback (n28) Met new
families to maintain contact?
35
Figure 17 Parent Feedback (n28) Would you
recommend this camp to other parents?
36
Figure 18 Counselor Feedback (n10) Would you
recommend this camp to other parents?
37
Figure 19 Parent Feedback (n19) Suggestions
for future summer camps (n24).
38
Figure 20 Parent Follow-up to the 2006 Camp
(n18) Maintained contact with families they met
last year?
39
Figure 21 Parent Follow-up to the 2006 Camp
(n18) Recommended the Family Summer Camps to
other parents?
40
Figure 22 Parent Follow-up to the 2006 Camp
(n18) Comparison of 2007 camp with the 2006 camp.
41
Figure 23 Parent Follow-up to the 2006 Camp
(n18) Improved knowledge/access to different
services?
42
Figure 24 Parent Follow-up to the 2006 Camp
(n18) Better knowledge/access to
parent/community supports and networking?
43
Figure 25 Parent Follow-up to the 2006 Camp
(n18) Feel less stress and more competent,
resilient, and hopeful?
44
Figure 26 Parent Follow-up to the 2006 Camp
(n18) Positive changes due to 2006 camp
experience?
45
Figure 27 Parent Follow-up to the 2006 Camp
(n18) Maintained contact with families they met
at the camp?
46
Figure 28 Parent Follow-up to the 2007 Camp
(n23) Would recommend the Family Summer Camp to
other parents?
47
Figure 29 Parent Follow-up to the 2007 Camp
(n23) Interested in attending similar summer
camp in 2008?
48
Washington State FASD Family Summer Camp
  • Parent Narrative Results

49
Decreased stress/increased competence,
resiliency, hope healing
  • …made me realize I am not alone in the struggle…
  • …we have been heard and seen, and therefore feel
    validated and less desperate…
  • …easier to persevere…if others are giving you
    encouragement…
  • …our child is not only healthier but doing better
    in school….I dont feel as hopeless…

50
Better Parenting Attitudes and Techniques
  • …see my daughter in a different light, accept her
    the way she is…
  • …more compassion for our son and patience with
    ourselves…
  • …much less fear of the unknown and the future….
  • …learned different ways of coping….

51
New Friendships for the children
  • …sons self esteem has improved as have his
    social skills.
  • …some of my children have developed their first
    true friendships.
  • …my child has gotten to spend the night with a
    friend for the first time in his 13 years because
    I know and can trust that these parents
    understand my childs needs.

52
Support System with other Families
  • I have a lot of support from the other families
    that attended camp.
  • We network to find professionals, doctors, etc.
    for the kids.
  • When I feel like giving up my new friends are
    always there for me. They are my support system.
  • Less strife, more fun, happier child…

53
Changes due to Camp Experience
  • Because of the strong sense of companionships
    among the families…you literally live with
    someone else for a few days you make a connection
    that is different than just knowing someone on a
    superficial basis. We share everything and it
    wouldnt have happened without this camp.

54
Changes due to Camp Experience
  • Having both specific knowledge and encouragement
    by fine examples empowered me to stand by my son,
    even when he is very difficult to understand. My
    level of competence in parenting a brain injured
    child, and my hopes for his future increased
    dramatically at summer camp.

55
Changes due to Camp Experience
  • Our little boy didnt have many friends at home
    because people did not like to deal with his
    behavior issues or special health needs. He was
    nervous with other kids because he didnt always
    understand what was going on and felt different.
    Here is feels the same, included, and valued.

56
Changes due to Camp Experience
  • At the camp, my children were able to be
    themselves without ridicule. They were at the
    camp with children that were just like them. I
    was able to relax at the camp because other
    parents understood when one of my kids started to
    rage. In a public place, people would have looked
    at me and said, cant you control your child?
    At the camp we all understood. I cant put it all
    into works. This camp made my childrens summer.
    I am not able to bring my children to regular
    camps because of their behaviors.

57
Changes due to Camp Experience
  • My child was happier and more accepting of
    himself because of the friendship and the
    acceptance he received from other children at the
    camp. An additional benefit was being able to
    attend the camp as a family because it provided
    us with a great shared memory of our time there
    together.

58
Changes due to Camp Experience
  • It was a shocker to see my child stand out in a
    crowd of other FASD kids because of his mood
    disorder. I was affirmed via this experience. I
    DO have a harder than average child and I am
    doing better than average handling him and my
    stress. I was impressed with the generosity,
    caring, and tolerance of the kids, the families,
    and the staff. I was never made to feel like a
    bad parentonly supportedpeople understood that
    Ms behavior is not his fault or mine. A nice
    relief.

59
Changes due to Camp Experience
  • Although my husband was not yet at this stage, I
    had arrived at the point of considering
    relinquishment of our son. This is so far from my
    daily reality now. Our son was placed in a
    wonderful special education class, once we were
    able to grieve and really know what was a
    reasonable course of action to best help him
    learn.
About PowerShow.com