Integration of Behavioral Health and Education Programs into Pediatric and Adolescent Cancer Care

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Integration of Behavioral Health and Education
Programs into Pediatric and Adolescent Cancer Care

• CHILDRENS CENTER FOR CANCER BLOOD DISEASES
• CHILDRENS HOSPITAL LOS ANGELES
• Department of Pediatrics, Keck School of
  Medicine
• University of Southern California
• Ernest R. Katz, PhD
• Kathy Ruccione, RN, MPH
• Co-Directors, Health Promotion Outcomes Program

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Childrens Hospital Los Angeles
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Fact...
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Survival in Common Pediatric Cancers
100
Retinoblastoma
Hodgkin's Disease
Wilms' Tumor
Acute Lymphoblastic
80
Leukemia
Non-Hodgkin's Lymphoma
Osteosarcoma
60
Brain Tumors
Neuroblastoma
40
Acute Myeloid Leukemia
20
Data from Parker SL et al, Ca - Cancer J Clin,
465-25, 1996 except retinoblastoma
0
1960 -1963
1970 -1973
1974 -1976
1977 -1979
1980 -1982
1983 -1985
1986 -1991
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Whether prognosis is good or poor, survivorship
brief or long, young people and their families
need...

• gold standard medical treatment
• interdisciplinary clinical teams
• family-centered care
• open communication
• health education and psychosocial support
• cultural sensitivity

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Phases of Cancer Experience

1. Diagnosis
2. Start of Treatment
3. Maintenance
4. End of Tx
5. Survivorship/Cure
6. Recurrent Disease/Death

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The Health Promotion and Outcomes Program Mission

• To provide a complete range of clinical
  psychosocial services and educational activities
  for patients with cancer or blood diseases, their
  families, professionals, and the community
• To provide leadership and coordination in
  psychosocial health promotion and outcomes
  research with this population.

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Core HPO Program Services

• Chase Child Life Program
• Patient Family Educational Resource Ctr.
• Social Work Program
• Psychology Consultation Service
• Neuropsychology Program
• STAR School Program
• Teen Impact for Adolescents Young Adults
• LIFE Survivorship Program
• Padres Contra El Cancer

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Health Promotion and Outcomes Program Research

• Improving Coping, Adjustment, and Quality of Life
  in Patients, Parents, Families, Schools, and
  Healthcare Providers
• Improving Communication Between Providers,
  Patients, and Families
• Improving Acquisition of Health Information and
  Health Promoting Behaviors in Patients and
  Families Using Multimedia Technology
• Improving Health Promotion and Outcomes in Short
  and Long-Term Survivors