Title: National Survey of Children with Special Health Care Needs, 20052006
1National Survey of Children with Special Health
Care Needs, 2005-2006
Presentation at the AMCHP Conference Michael
Kogan, Ph.D. Director, Office of Data
and Program Development U.S. Maternal
and Child Health Bureau (MCHB) Health
Resources and Services Administration (HRSA)
Department of Health and Human
Services March 2008
2Purpose of the NS-CSHCN
- Measures and Tracks Prevalence of CSHCN
- Nationally
- By State
- Describes Demographic Characteristics
- Other Measures Include
- Functional Limitations
- Health Care Access
- Needs and Satisfaction with Care
- Burden and Impact on Family
3Uses of the NS-CSHCN Data
- Title V performance measures
- Measuring Healthy People 2010 objectives
- Planning and program development at the State
level - Compare changes since 2001 NS-CSHCN
- Inform organizations that work directly with
CSHCN - Scientific research
4Prevalence of CSHCN
Children with Special Health Care Needs
Non-CSHCN
Individuals
Households
5Prevalence of CSHCN State Variation
5 Highest and 5 Lowest Prevalence States
CSHCN Prevalence
6Functional Difficulties
Types of Functional Difficulties Among CSHCN
Percent of CSHCN
7Percent of CSHCN with Selected Health Conditions
- Allergies 53.0
- Asthma 33.8
- ADD / ADHD 29.8
- Depression, anxiety or other emot probs 21.1
- Migraine or frequent headaches 15.1
- Mental retardation 11.4
- Autism or autism spectrum disorder 5.4
- Joint problems 4.3
- Seizure disorder 3.5
8Specific Health Care Needs
Percentage of CSHCN Needing Specific Health
Services
9Health Insurance Coverage
Percentage of CSHCN, by Type of Health Insurance
2001
2006
Does not include 2.2 with other comprehensive
insurance.
Does not include 0.4 with other comprehensive
insurance.
10Adequacy of Health Insurance
Percentage of CSHCN whose insurance does not
usually or always meet each criterion for adequacy
11Adequacy of Health Insurance
CSHCN with Inadequate Insurance, by Impact of
Childs Condition on Functional Ability
Percent of CSHCN
12Access to Care
Percentage of CSHCN with Reported Health Services
Needed but Not Received
5
10
15
20
13Percentage of CSHCN with Reported Health Services
Needed but Not Received
5 Highest and 5 Lowest Prevalence States
Unmet Needs
14Care Coordination
Percentage of CSHCN Lacking One or More Elements
of Care Coordination
Communication among health care providers
Receipt of extra help when needed
All CSHCN
Communication between health care providers and
other providers programs
15CSHCN Needing a Referral who have Difficulty
Getting it
5 Highest and 5 Lowest Prevalence States
Medical Home
16CSHCN in a Medical Home
Percentage of CSHCN Receiving Care Through a
Medical Home, by Family Income
17CSHCN in a Medical Home State Variation
5 Highest and 5 Lowest Prevalence States
Medical Home
18Financial Impact on the Family
Annual Out-of-Pocket Expenditures for Care of
CSHCN
20.0
42.6
13.0
24.4
19Time Spent Providing, Arranging, or Coordinating
Health Care, per Week
9.7
47.3
8.9
34.1
20Impact on Parents Employment
CSHCN Whose Parents Cut Back on Work or Stopped
Working to Care for the Child
All CSHCN
Activities affected usually, often, or a great
deal
Daily activities moderately affected some of the
time
Daily activities never affected
Percent of CSHCN
21Receipt of Services Necessary for Transition to
Adult Health Care
5 Highest and 5 Lowest Prevalence States for
Youth, 12-17
Receiving Services
22NS-CSHCN Chartbook
23Contact Information
- Michael Kogan, Ph.D.
- HRSA/MCHB
- Director, Office of Data and Program Development
- 5600 Fishers Lane, Room 18-41
- Rockville, MD 20857
- 301-443-3145
- mkogan_at_hrsa.gov