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SLAITS Survey on Children with Special Health Care Needs

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DECEMBER 2000. 1. Maternal and Child Health Bureau ... DECEMBER 2000. 15. Maternal and Child Health Bureau. Impact on Family: Out-of-pocket expenses, ... – PowerPoint PPT presentation

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Title: SLAITS Survey on Children with Special Health Care Needs


1
SLAITS Survey on Children with Special Health
Care Needs
  • Bonnie Strickland, Ph.D.
  • MCHCOM.COM Webcast
  • December 8, 2000

2
National CSHCN Survey
  • Partnership between Maternal and Child Health
    Bureau (MCHB) and National Center for Health
    Statistics (NCHS)
  • Using SLAITS, complete 750 CSHCN interviews per
    state.
  • Data available Summer 2002

3
Purpose
  • Establish uniform state, regional, and national
    prevalence estimates for CSHCN under 18 with
    existing special health care needs using the MCHB
    definition,
  • Provide state, regional, and national data for
    CSHCN characteristics and systems impact as
    baseline estimates for federal and state
    performance measures, Title V needs assessment
    activities and HP 2010.

4
Additional Purposes
  • Provide estimates of health care coverage for all
    children and
  • Provide information on low income, uninsured,
    families regarding health status and
    Medicaid/SCHIP

5
Prevalence Estimates Using Uniform Measure
  • Living with Illness Survey (Foundation for
    Accountability)
  • Questionnaire for Identifying Children with
    Chronic Conditions (QUICCC-R)

6
Examples of Screener Topics
  • Need or use medicine prescribed by a doctor
  • Need or use more medical care, mental health, or
    educational services than is usual for most
    children
  • Limited or prevented in ability to do things
  • Need or get special therapy
  • Need or get treatment or counseling for an
    emotional, developmental, or behavioral problem

7
Interview Process
  • Households screened for children under 18
  • NIS conducted if household has a 19-35 month old
    child
  • Screener to identify children with special health
    care needs
  • Detailed questionnaire for children with special
    health care needs
  • Target sample size 750 CSHCN per state

8
Characteristics and Impact Data Service Needs
and Systems Adequacy
  • Demographics
  • health and functional status
  • access to care
  • care coordination
  • satisfaction with care
  • health insurance coverage
  • adequacy of health care coverage
  • impact on family

9
Health and Functional Status
  • Extent to which condition limits ability to do
    things other children can do
  • Overall severity and stability of condition
  • IFSP or IEP
  • School days missed

10
Access to Care
  • Usual source of care (location and provider),
  • Reasons for delay in obtaining needed health
    care,
  • Difficulty in obtaining specific services

11
Care Coordination
  • Availability
  • Source of care coordination
  • Coordination within health
  • Coordination with community services
  • Services from Title V

12
Satisfaction with care
  • Time spent with child/family
  • Listening and partnership
  • Respect for values and customs
  • Adequacy of information

13
Health Insurance Coverage
  • Source of insurance
  • Gaps in insurance coverage
  • Duration of uninsurance

14
Adequacy of Health Care Coverage
  • Adequacy of benefits,
  • Out-of-pocket costs,
  • Access to health care providers,
  • Adequacy of information,
  • Overall satisfaction

15
Impact on Family
  • Out-of-pocket expenses,
  • Health care provided by family,
  • Time spent providing and coordinating care,
  • Financial and employment impact.

16
Objective / Performance Measure
  • All CSHCN will receive regular ongoing
    comprehensive care within a medical home
  • Existence of a primary care provider
  • Care coordination by PCP
  • Communication between PCP and other health
    providers, schools, and child care providers

17
Objective / Performance Measure
  • All families of CSHCN will have adequate
    insurance to pay for the services they need
  • Current health insurance coverage
  • No insurance and gaps in coverage over past 12
    months
  • Delays or failure to get needed care due to costs
  • Access problems due to health plan
  • Satisfaction with health plan

18
Brief Interview for Children Without Special
Needs
  • Health Insurance Coverage
  • Demographics

19
Medicaid and SCHIP
  • All low income and uninsured receive
    Medicaid/SCHIP section plus a subsection of the
    CSHCN questions
  • Main reason for no health insurance
  • Awareness of Medicaid/SCHIP
  • Application, eligibility, and enrollment
    information,
  • Reasons for not wanting to enroll.

20
Schedule
  • Questionnaire Finalized Nov 1999
  • Pretesting Mar Sept 2000
  • Conduct interviews Oct 2000 2001
  • 6 month national data Sept 2001
  • State-level data Summer 2002
  • Repeat periodically
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